Discussions By Condition: I cannot get a diagnosis.

Am I really crazy?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: SLJones77
  • October 8, 2009
  • 11:04 PM

about 6 years ago I had a Pulmonary Embolism. Ever since then, I've been in extreme pain. I experience the worst pleuretic pain you can ever imagine. I've had several tests done, several dianosis screenings, seen pulmonologists, pain specialists, etc. Nobody can tell me why I'm continuing to experience extreme level's of pain.

I keep being told that they don't know why I'm having this pain and that I need to learn how to control the pain within myself. I'm currently seeing a pain specialist as well as a rehabilitation therapist. I'm on a lot of pain medication and I am working on relaxation and self hypnosis techniques.

My issue is that I truly do not understand how someone can be in this much pain, have extreme trouble breathing, massive bouts of vomiting and yet, nothing be wrong with me. I guess I'm not ready to fully accept the "It will NEVER go away" diagnosis I've been given. How do they know, if they can't even tell me what it is!

I just don't know what to do or where to go anymore for additional help.

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