Discussions By Condition: I cannot get a diagnosis.

Alopecia Areata

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Sln.1357
  • April 7, 2009
  • 09:03 AM

I am a 30 year old woman. I lost my hairs 5 years ago because of Alopecia it seems , after 1 year my hair grows back by use of cortisone tablet but when I leave the tablet They fall out, and when I use 3 ( 2 in 10 days and 3rth afer 15 days) triamhexal injection they grow up for 3 months, and then when I leave it they fall out again. Please let me know what can I treat my continuously hair loss. And how it is better to use cortizone injections?

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  • I am 44 years old and I have had alopecia for 10 years. THERE IS NO CURE. YOU MAY HAVE REMISSIONS. The remission can (rarely) be permanent. Permanent remissions are much more common in people with patchy hair loss. I have (almost) complete hair loss on my head. I cope very well with it. I do not hide the fact that I have it and friends, family, everybody is so used to it--because I accept it and live my life fully. I have a variety of wigs, use bandanas for swimming and my martial arts training. I suggest you go to http://www.alopeciaareata.com/requestinfo/faq.aspol . I will tell you my experiences:*steroids--injectable, oral, etc.---work for as long as you take them. That's it. Many side effects, some quite serious especially when steroids are used long term.*Topical creams--anthralin etc--produce extremely uncomfortable rashes with burning and itching. MAY work until hair grow back, then not enough is absorbed and the hair falls out again.*PUVA or Psoralen Ultraviolet A therapy--Very time consuming, takes total commitment, occasionally works for a few people. Increases risk of skin cancer.*Immunosuppressants--I would seriously run from any doctor that would prescribe immunosuppressants for a cosmetic condition. I have never even considered it. I'd rather be healthy with little to no hair than place my life in jeopardy.*Diets, aromatherapy, nutritionals--do not work. At all. If an ad says it can cure your alopecia it's a scam. I was young hot-looking, and at my prime physically when my hair fell out. It happened when I went into preterm labor with my second child. Somehow, my little genetic alopecia switch got turned on and that was that. My Doc at first thought it was due to pregnancy hormones but I knew it wasn't (I am a nurse). I held up one exclamation point hair for him to see and we both knew what it was. I am not big on denial. I accepted what I had right away but was devastated, humiliated, did not feel pretty or womanly. I knew that treatment would most likely not work but gave them all a shot (except immunosupressant therapy). Nothing worked. I am alive, happy, I sometime still feel unattractive when I don't where my wigs, but I choose to live life fully rather than feel pretty all the time. I will not give up swimming or martial arts. Men get to know me, are attracted to me, and respect me more because I accept who I am. MSN has a pretty good alopecia areata group online. Let me know if you have any questions at all or if you need an ear. Peace.
    mene19 1 Replies Flag this Response
  • I have had AA off and on for 8 years, I have tried everything...I mean EVERYTHING!!! Oral/Local steroids, rogain, anxiety meds, anti fungal meds, skin irritants, puva, herbal remedies, just to name a few... I even spent $150 on some crap from a guy with a website in Italy who claimed he had success!!! I tried it for 8 weeks with NO Results...The steroids worked to an extent, but with side effects... While in Europe, I got an RX from a Auto Immune specialist while in Germany. It comes in a 2ml bottle, and cost close to $65.00 USD. In mid-May, I had 3 patches (1 quarter size on my scalp) and the other (2 nickle size on my facial hair area). All except 1 is completely gone, and the 1 on my beard is 80% gone " A MIRACLE". I spent $650.00 to buy 10 bottles... Best investment possible for aa. I know what aa does to people, if someone wants to try it, let me know, and I can give you more info on the product. What I know for sure is that it regrows hair for aa. However, if you have totalis or more then 10% total hair loss, this probably won't be of use to you.. Sorrry!!:( I wouldn't wish aa on my worse enemy. hbcsbiller@gmail.com.
    Anonymous 42789 Replies Flag this Response
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