Discussions By Condition: I cannot get a diagnosis.

Allergic to My Apartment/Mold????

Posted In: I cannot get a diagnosis. 32 Replies
  • Posted By: Anonymous
  • March 20, 2007
  • 09:12 PM

At the end of last year I became sick for 3 painful months, but was never able to get a diagnosis. In the end, the only reason I got better was because my doctor told me to get out of my apartment, thinking it could be mold exposure. When my roommate began showing the same symptoms a few days later, we left. With in days of leaving, I felt a lot better. There had been a slow leak in my apartment for months and I think that was what made me sick. BUT the doctors mold blood test came back negative.

I moved into a new apartment in the same complex, and it's been 3 months and I am getting sick again...HELP!

My neighbor told me she has a leak that is coming from her A/C and has been going on as long as 3 weeks. It's not in a shared wall, it's in closets in the middle of her apartment, but I am wondering if this could be causing it?

Symptoms from the first time I was sick:

-chronic fatigue
-chronic low grade fever
-burning lips and face
-weakness
-muscle aches
-malaise
-depression (I think this is a result of being sick for so long, not really a symptom)
-3 week long period (I had started a new birth control, but this had never happened before, and it happened right before the other things happened)
-more severe headahces than I had ever had in the past
-Swollen,tender,painful lymphnodes in neck

Current Symptoms:
-migraines
-sinus pain/re-curring sinus infections
-mild muscle aches (just starting up and getting worse)
-mild fatigue (also just starting, but getting worse)
-facial flushing/burning/lips burning
-sore throat at times (usually when sinus stuff acts up)
-swollen, painful, tender lymphnodes

PLEASE HELP! I have been tested for everything from cat scratch fever to lymphoma, to mono.

Ever since I got sick the first time, my immune system hasn't been working well. I have gotten every virus/cold/bug that has gone around and I dont want to go through that again.

ANY INFORMATION OR IDEAS WOULD BE HELPFUL!!!

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32 Replies:

  • Hi. You mentioned being tested for mono- was this just for a current infection or did you check for antibodies for the virus that causes mono, Epstien-Barr Virus? EBV is linked to something called Chronic Fatigue Syndrome (though it can occur without EBV infection) and IIRC some of the symptoms are similar to yours. Some other things to consider...did you buy any new clothing or furniture in the recent past that might coincide with your symptoms? It could be an allergy to a material or fabric or detergent or anything. Are you taking any medications? It is possible to develop allergies to medications even after being on them for a while (I had a massive bout of hives after being on an acne medication for an entire year).
    Anonymous 42789 Replies Flag this Response
  • This was my post, and the symptoms are getting worse. If anyone has ANY information, or has had similar symptoms or a similar experience, please let me know. I am really scared of getting sick again, and worried I will never have a definite answer!
    JetSkiChic 12 Replies Flag this Response
  • http://forums.wrongdiagnosis.com/showthread.php?t=7286Please read this link. I just evacuated my place a week ago, after 3 months having similar simptoms. I am here sanitizing my belongings from Toxic Mold.It has taken me 3 months to recover, but I am not completely cured yet. The thing is, without "Never Be Sick Again" and my Doctor of Oriental Medicine,NAET and JMT, I would have been totally disable.Best.
    Eatafruit78 960 Replies Flag this Response
  • Hello. I'm not sure if this will help at all, but have you asked for an allergy panel (not sure if this is the correct term)? If not mistaken, it consists of a doctor sticking your skin with a bunch of different allergy-producing substances and looking for any reaction. You could have an allergy to a type of food, a clothing material, etc. Or like you say, it could be dust.I was in an apartment with poor ventilation and, even after airing it out sufficently, it always stunk. Since then, I've had some trouble with mold and dust and so I bought an air purifier. They can cost a few hundred dollars, but if its truly mold that is the problem, then maybe it can help. Just be careful about running it all the time; I seem to recall that they can actually be problematic if left on constantly and used in a small space. You might also want to look into Chronic Fatigue Syndrome as many of your symptoms sound similar.
    Anonymous 42789 Replies Flag this Response
  • I had mono (Ebstien Barr) about a year an a half ago, so they considered Chronic Fatigue Syndrome, but it was a last resort. However, the only thing that seems to coinside with this is leaking water in these apartments..... No new anything.... When I moved I didn't sanitize eveyrthing for toxic mold, because I didn't test positive for toxic mold, and i have been fine for 3 months (by fine, I mean A TON BETTER, but not completely myself, my immune system has been really weak)..... I did an allergy panel a while ago and nothing that is common in my area, including dust, was reactive for me.... Can you tell me more about your toxic mold experience? Like, your story, symptoms, just some details???
    JetSkiChic 12 Replies Flag this Response
  • Hello again. With the EBV issue- did any of these symptoms occur in the months after the infection? Have you had a weakened immune system since that time? Someone I know had a bad case of mono and it basically wrecked his immune system for almost an entire decade- he would get sick constantly.As for my experience, I never bothered to have allergy testing or anything, but I found that I would frequently get lightheaded and have night sweats. It seemed to happen much more when I had the windows closed (like in the winter) and, after moving to a new building, the problem more or less went away. Though I also bought an air purifier so that might have been equally responsible.Perhaps another thing could be radon? Or the building itself? Are you in an old building? Maybe you want to have a qualified inspector-type person come over and test the apartment for any kind of health hazards. I recall, for example, back in high school when a teacher with lupis had a number of medical emergencies in direct connection with construction being done on the school (it was from the air). I hope that you can resolve this problem soon!
    Anonymous 42789 Replies Flag this Response
  • I have never felt the same after the mono, but nothing like this until about 1.5 years later. And my case of mono wasn't that bad compared to most I guess. I am thinking about an inspector, but I am really broke and I don't really have the money, so I guess that's like a last ditch effort.
    JetSkiChic 12 Replies Flag this Response
  • Hi again. I think that Radon testing kits are actually avalible in stores (probably a home maintaniance-type place like Lowes or Home Depot) so you might be able to save money there. Though I think Radon is linked to cancer/lung cancer and not the symptoms you are having, but its also possible that you could have an allergy. My guess is that an inspector would do far more than just test for radon.Another thing to try, if the air purifier is also out of budget, is to air out your apartment daily. From my experience, it works best if you have a fan on, and both the windows and doors open. Obviously if you are in a one room apartment or similar type space, this is much easier than in a house. Also, make sure to allow light to shine into the apartment daily so that mold and dust can't breed. You probably know this already though so my appoligies for not offering better advice. In terms of looking at this from a "disease" perspective rather than an allergy, have you had a complete blood test done recently? If something shows up elevated, that might be something to look into. Given that you were tested for lymphoma it would seem you already did this however. About the Cat Scratch Fever thing- I actually looked into this when I had mono (but before being diagnosed) because I had indeed been scratched by a cat shortly before the infection.
    Anonymous 42789 Replies Flag this Response
  • http://forums.wrongdiagnosis.com/showthread.php?t=7286Please read this link. I just evacuated my place a week ago, after 3 months having similar simptoms. I am here sanitizing my belongings from Toxic Mold.It has taken me 3 months to recover, but I am not completely cured yet. The thing is, without "Never Be Sick Again" and my Doctor of Oriental Medicine,NAET and JMT, I would have been totally disable.Best.What is NAET, JMT and "Never Be Sick Again"?? Did you sue?? I am really thinking about sueing. I didn't the first time, but now I have found out the leak that caused my pains the first time was there for not only the 3 months I lived there and tried to get them to fix it, but for MONTHS prior when the previous tenant lived there. I am so livid. How can you do that to another human being? AND DENY IT'S MOLD?!?!?!
    JetSkiChic 12 Replies Flag this Response
  • Oh a few other things. Last time the doctors found my ANA's slightly elevated, but I didn't have an autoimmune disease or mono. They found my liver function a little irregular at first, then the second test was ok. My spleen was enlarged and had a "cap". Now I feel the lymphnodes in my arms hurting as well as those in my neck and I feel as though my body is desperately trying to rid itself of toxins again. HELP! My doctor said if it IS mold, then leavign would make me all better. Is that true?Also, have you heard of anything like bacteria caused by leaks making ppl sick? As I said, my mold toxin test came back negative, but I KNOW IT HAD TO DO WITH THAT LEAK.
    JetSkiChic 12 Replies Flag this Response
  • http://forums.wrongdiagnosis.com/showthread.php?t=7286Please read this link. I just evacuated my place a week ago, after 3 months having similar simptoms. I am here sanitizing my belongings from Toxic Mold.It has taken me 3 months to recover, but I am not completely cured yet. The thing is, without "Never Be Sick Again" and my Doctor of Oriental Medicine,NAET and JMT, I would have been totally disable.Best.What is NAET, JMT, and "Never Be Sick Again'? I can't really afford an air purfier, but i WILL try to air my place out! Thanks, good idea. I think there is mold in the walls tho, so it might not stop that, but it will help the air move around. I have devised a plan. I have been feeling a little better the last few days b/c I have barely been at home and I will do a mold kit test. Therefore, I am going to stay at home all tongiht and tomorrow, and see if I feel worse. If I do, then I am going to leave and stay with friends for a night or to and see if the symptoms disappear. If the do, I will get another mold test and start trying to leave my place. Also, what's the deal with radon? never heard anything about it before....
    JetSkiChic 12 Replies Flag this Response
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  • The fact that your mold toxin test came back negative is meaningless. Mold makes many people extremely sick and it is never found in their blood. Trust me and google this. My wife was raised in a house that was saturated with toxic black mold. Her father died 9 years ago due COPD. Her mother died 5 years ago due to invasive aspergillosis that destroyed her lungs. We believe now that the chronic obstructive pulmonary disease (COPD) that her father had was totally related to the mold. The mold was found by a home inspector when the house was on the market to sell. My wife has had lung problems for 25 years. She had lung surgery 3 months ago to remove two nodules. The surgery morphed into being "lung reduction surgery" due to excessive scar tissue from recurring pneumonia. She is still no better. We plan to go to the National Jewish research & medical hospital in Denver, this June. Get out of the apartment and forget about testing for mold in the blood. My wife has had it in her lungs and sinuses and it did not show in her blood. Some pathogens are "intracellular" and do not circulate in the blood stream.
    Irradiated 23 Replies Flag this Response
  • The fact that your mold toxin test came back negative is meaningless. Mold makes many people extremely sick and it is never found in their blood. Trust me and google this. My wife was raised in a house that was saturated with toxic black mold. Her father died 9 years ago due COPD. Her mother died 5 years ago due to invasive aspergillosis that destroyed her lungs. We believe now that the chronic obstructive pulmonary disease (COPD) that her father had was totally related to the mold. The mold was found by a home inspector when the house was on the market to sell. My wife has had lung problems for 25 years. She had lung surgery 3 months ago to remove two nodules. The surgery morphed into being "lung reduction surgery" due to excessive scar tissue from recurring pneumonia. She is still no better. We plan to go to the National Jewish research & medical hospital in Denver, this June. Get out of the apartment and forget about testing for mold in the blood. My wife has had it in her lungs and sinuses and it did not show in her blood. Some pathogens are "intracellular" and do not circulate in the blood stream.Thank you so much for your information, I didn't know any of that was possible, and I am really glad you made me aware. Can I ask how long they lived in that house? I am so sorry to hear about all the health problems that mold has caused her, and I hope that they find something that will help her in Denver. Again, thank you! I think we are going to move ASAP, this is just too risky, I don't want to wait around and see if I get worse, I think the inital signs are enough to warrant a change.
    JetSkiChic 12 Replies Flag this Response
  • The fact that your mold toxin test came back negative is meaningless. Mold makes many people extremely sick and it is never found in their blood. Trust me and google this. My wife was raised in a house that was saturated with toxic black mold. Her father died 9 years ago due COPD. Her mother died 5 years ago due to invasive aspergillosis that destroyed her lungs. We believe now that the chronic obstructive pulmonary disease (COPD) that her father had was totally related to the mold. The mold was found by a home inspector when the house was on the market to sell. My wife has had lung problems for 25 years. She had lung surgery 3 months ago to remove two nodules. The surgery morphed into being "lung reduction surgery" due to excessive scar tissue from recurring pneumonia. She is still no better. We plan to go to the National Jewish research & medical hospital in Denver, this June. Get out of the apartment and forget about testing for mold in the blood. My wife has had it in her lungs and sinuses and it did not show in her blood. Some pathogens are "intracellular" and do not circulate in the blood stream.Hello-Please look into NAET- a Doctor of Oriental Medicine and Reiki. It is good to combine the effords of all these different disciplines in order to achieve better results. They won't conflict with the current treatment, just help to heal faster and better.I am so sorry about your wife- I wish you both the best.Hang in there, and keep looking for alternative healing treatments, they are out there.
    Eatafruit78 960 Replies Flag this Response
  • Irradiated makes an excellent case and it could definitely explain your symptoms as well. It could be that when you first moved into your new apartment, the mold didn't bother you as much because your lungs were clearer, but they have "clogged" back up with whatever is in the new apartment. You could have a severe allergy to ANY kind of mold and so potentially moving anywhere would cause the same problem. This is why I mentioned the air filter.Swollen lymph nodes might be a sign of a viral or bacterial infection, or of something else. Do they move when you press on them or are they fixed in place? As far as bacteria goes, yes there is definitely a possibility. Legionnaire's Disease presents itself in a similar manner as to what you are experiencing, and comes from inhaling microscopic water particles from tepid pools in things like air conditioner units. You may want to ask for a Legionella bacteria test (urine or blood or both). I think the symptoms would be progressively worse if you had this condition but it is possible, especially because you specifically mentioned your neighbor has a leak in her air conditioning unit. Good luck.
    Anonymous 42789 Replies Flag this Response
  • What is NAET, JMT, and "Never Be Sick Again'? I can't really afford an air purfier, but i WILL try to air my place out! Thanks, good idea. I think there is mold in the walls tho, so it might not stop that, but it will help the air move around. I have devised a plan. I have been feeling a little better the last few days b/c I have barely been at home and I will do a mold kit test. Therefore, I am going to stay at home all tongiht and tomorrow, and see if I feel worse. If I do, then I am going to leave and stay with friends for a night or to and see if the symptoms disappear. If the do, I will get another mold test and start trying to leave my place. Also, what's the deal with radon? never heard anything about it before....The air purifier alone is not going to help if the mold is still visible.Those mold stains shed thousands of microscopic fungus spores into the air. I personally wiped the whole mold out of the wall and used packing tape to isolate the area. I used white distilled vinegar,soap and water. Then I used a space heater to blow air to the wall and try to dry it a bit. Then I taped the wall with the packing tape, so nothing would come thru.My HVAC closet was so nasty- that only professional people should be doing that but they would not want to follow EPA and OSHA regulation or bring an inspector because they were afraid to get suit or something.Since I discovered the mold in the HVAC system, I stop running the heater and asked to be moved to a clean unit in the same community because running the heater was going to cripple me down even more.I told them about my lung capacity test and how it showed that I was totally crippled in the lungs.I moved out ASAP because my doctor confirmed that by removing the drywall, that was just going to spread more mold into the HVAC system, the ducts, furnace, every vent.My new place is like a freaking quarantine. Boxes and piles of things to be cleaned, plastic bags with the clean clothes, etc.They did not let me take pictures of my own HVAC closet (they had the key and it was locked), or a sample. I could have taken a sample from the bedroom wall but I felt like the real danger was in the HVAC closet.It was amazing to see the tiny spores get trapped in the tape after a few hours. *I wore a mask and gloves the entire time. It was not until I started to pack that I felt how everything in my place was saturated with mold.I could suit but I won't win a sixpence because this is a huge corporation. It is the McDonald's of the apartment complexes. They have big attorney's- plus they removed all the evidence once I told them that I was crippled down.They knew it all alone- just a month ago they were in the HVAC closet, doing the repairs. The ,mold was there, and they were hushed about it. There is no accountability- even if everyone who works there gets fired, I know darn well the corporation does not care for the tenants. They are just employees to the landlord.I cannot afford an attorney to run errands and write the complaints. I personally don't have the energy to suit right now. But I am telling everybody. My nervous system was so affected now I am allergic to formaldehyde, all chemicals, and newsprint. I know I was not allergic to them in the past. I never had problems reading books, besides I used to work for a fragrance shop with no problem.__NAET is Nambudripad's Allergy Elimination Technique-.JMT is Jaffe Mellor TechniqueReiki is energy healing."Never Be Sick Again" is Raymond Francis' book.All of this alternative methods are at least 20 years ahead of traditional medicine. There are a broad variety of practitioners who practice them and the great results come together with great compassion and great inside on self help.NAET reverses allergies and trains the body to use the nutrients one consumes and to heal in all dimensions. Ever since I am not feeling miserable 12 out of 24 hours, I feel I have the energy and the heart to love and care for others and be patient.Take Care you all.BestEatafruit78/
    Eatafruit78 960 Replies Flag this Response
  • Thank you so much for your information, I didn't know any of that was possible, and I am really glad you made me aware. Can I ask how long they lived in that house? I am so sorry to hear about all the health problems that mold has caused her, and I hope that they find something that will help her in Denver. Again, thank you! I think we are going to move ASAP, this is just too risky, I don't want to wait around and see if I get worse, I think the inital signs are enough to warrant a change. Thank you Ms. Jet Ski Chic :) You are so kind. Her parents built the house in the late fourties. It was built on the side of a hill and water run off was not directed properly from the beginning. So water seeped to the lowest point underneath the crawl space. Later on they added an addition to the house that did not have an adequate crawl space height. In other words the wood was way to close to the moist ground. Black toxic mold is deadly to many people if you are exposed to it long enough. Some people (male, early twenties or so) have very strong immune systems that can fight mold longer than others, but eventually it will get to them. I drove 100 miles every weekend to take my wife to be with her Mother, whom I thought the world of. We watched her die in spite of very good doctors using the latest antibiotics and other medicines. Invasive aspergillosis can invade any organ in the body and is usually fatal very quickly. My MIL lived about 5 weeks after the diagnosis. She was the strongest hardest working Lady that I have ever seen. Of course she always had problems with her lungs, but no one suspected mold. The people who bought the farm bulldozed the house. Kindest regards, Andy
    Irradiated 23 Replies Flag this Response
  • Hello-Please look into NAET- a Doctor of Oriental Medicine and Reiki. It is good to combine the effords of all these different disciplines in order to achieve better results. They won't conflict with the current treatment, just help to heal faster and better.I am so sorry about your wife- I wish you both the best.Hang in there, and keep looking for alternative healing treatments, they are out there. Thanks so much Eatafruit :) I am a firm believer in alternative medicine and will look into this information FOR SURE! I will try to give you some feedback on what I think about it Best of health to you, Andy
    Irradiated 23 Replies Flag this Response
  • What is NAEMT and JMT????? I am having similar problems and would like to get helped.
    Anonymous 42789 Replies
    • January 21, 2008
    • 02:49 PM
    • 0
    Flag this Response
  • HelloNAET is naet.com Nambudripad Allergy Elimination Technique...it seems to work wellto eliminate intolerances and negative reactions to virtually anything from Mold to Electricity.I used it and I was very happy. The treatment is basically acupressure and chiro combined. One only receives a light tapping- that's all- no machines are used. I only recommend NAET- strictly a person listed on that website. Naet.comNAET is a really good help- but it is not a miracle cure.There is a miracle cure that I endorse...I can tell you about it upon request.WARNING:Please make sure the practitioner does not use computer, radiation, radionics, or anything similar. Bioset is similar but it actually usesan external energy to try to zap the symptoms by modifying the bodies electromagnetic fields. Please do not use Bioset, Radionics, Reiki or Scientology...all of those try to modulate the body's energies by giving you radiation from a wave that goes through a crystal.These therapies only mask symptoms...it won't correct or resolve any disease. They mess up people's auras and will make you addicted to them.These treatments will produce really nasty adverse reactions specially for people who are Catholics- so be very careful with anything Radionics or similar to it. People who are imprinted with the Sign of the Cross (by Sacrament) should avoid Bioset, Reiki, Radionics, and Scientology as those 'therapies' oftenchannel energies and Living Persons (inmaterial) that are in opposition to *****t
    Eatafruit78 960 Replies
    • January 23, 2008
    • 08:57 PM
    • 0
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