Discussions By Condition: I cannot get a diagnosis.

All these issues started after my first child was born.

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: lilithacacia
  • July 27, 2010
  • 00:41 AM

This could get long, and I apologize but I will make it as short as possible.

First and foremost I have a multinodule goiter. They found this after after checking my TSH, deciding I had hypothyroidism, and then have my TSH drop into the hyperthyroid range after being on synthroid. I had heart palpitations, and irregular rhythm on synthroid so I was taken off of it. I never got rid of the heart issues. I was off of it for 4 months.

I have extreme fatigue as well, so my PCP decided it would be best to send me to an endocrinologist to get to the bottom of my issue. They did a bunch of tests, and said my cortisol and ACTH were slightly elevated but blew that off and said everything else was normal but my thyroid and decided to put me BACK on synthroid, knowing my past with it. I now am having serious heart issues, low blood pressure 92/78, and currently a weak, but rapid pulse.

I have irregular periods. I am almost always late, and not pregnant. I do have one child and have miscarried once back in May of 09. It is very easy for me to get pregnant so I am thinking of ruling out PCOS.

I cannot lose weight either. It's impossible. It doesn't matter what I do. I also have frequent urination. I did have a glucose tolerance test, but that supposedly came back normal as well.

I have severe insomnia. I can't fall asleep or stay asleep, and I can't seem to ever get enough sleep. I am ALWAYS exhausted. I have severely dry skin and a dry scalp as well.

Noone can seem to tell me what could be wrong and I am really sick of feeling this way. Any ideas?:confused:

Reply Flag this Discussion

7 Replies:

  • QUOTE=lilithacacia;236182]This could get long, and I apologize but I will make it as short as possible.First and foremost I have a multinodule goiter. They found this after after checking my TSH, deciding I had hypothyroidism, and then have my TSH drop into the hyperthyroid range after being on synthroid. I had heart palpitations, and irregular rhythm on synthroid so I was taken off of it. I never got rid of the heart issues. I was off of it for 4 months.I have extreme fatigue as well, so my PCP decided it would be best to send me to an endocrinologist to get to the bottom of my issue. They did a bunch of tests, and said my cortisol and ACTH were slightly elevated but blew that off and said everything else was normal but my thyroid and decided to put me BACK on synthroid, knowing my past with it. I now am having serious heart issues, low blood pressure 92/78, and currently a weak, but rapid pulse.I have irregular periods. I am almost always late, and not pregnant. I do have one child and have miscarried once back in May of 09. It is very easy for me to get pregnant so I am thinking of ruling out PCOS.I cannot lose weight either. It's impossible. It doesn't matter what I do. I also have frequent urination. I did have a glucose tolerance test, but that supposedly came back normal as well.I have severe insomnia. I can't fall asleep or stay asleep, and I can't seem to ever get enough sleep. I am ALWAYS exhausted. I have severely dry skin and a dry scalp as well. Noone can seem to tell me what could be wrong and I am really sick of feeling this way. Any ideas?:confused:Hello,I'm new here - just posted myself yesterday. Your message caught my eye because alot of my health problems started after I had my children as well. I also have Hashimoto's (and heart palpitations) but they haven't put me on medication yet. What jumped out at me is that you also have severe dry skin, dry scalp and insomnia. I have seen those symptoms while researching my own and many times information about Lupus is attached. Have any of your MD's considering testing you? I've read that alot of people with Lupus have thyroid issues as well. I think there is a blood test called ANA that can definitely rule it in - though it doesn't definitely rule it out.Good Luck and I hope you feel better - I know how those long nights and tired days can be, especially with children. :)Regards,ddb
    Anonymous 42789 Replies Flag this Response
  • This could get long, and I apologize but I will make it as short as possible.First and foremost I have a multinodule goiter. They found this after after checking my TSH, deciding I had hypothyroidism, and then have my TSH drop into the hyperthyroid range after being on synthroid. I had heart palpitations, and irregular rhythm on synthroid so I was taken off of it. I never got rid of the heart issues. I was off of it for 4 months.I have extreme fatigue as well, so my PCP decided it would be best to send me to an endocrinologist to get to the bottom of my issue. They did a bunch of tests, and said my cortisol and ACTH were slightly elevated but blew that off and said everything else was normal but my thyroid and decided to put me BACK on synthroid, knowing my past with it. I now am having serious heart issues, low blood pressure 92/78, and currently a weak, but rapid pulse.I have irregular periods. I am almost always late, and not pregnant. I do have one child and have miscarried once back in May of 09. It is very easy for me to get pregnant so I am thinking of ruling out PCOS.I cannot lose weight either. It's impossible. It doesn't matter what I do. I also have frequent urination. I did have a glucose tolerance test, but that supposedly came back normal as well.I have severe insomnia. I can't fall asleep or stay asleep, and I can't seem to ever get enough sleep. I am ALWAYS exhausted. I have severely dry skin and a dry scalp as well. Noone can seem to tell me what could be wrong and I am really sick of feeling this way. Any ideas?:confused:You have Hashimoto thyroiditis (Hypothyroidism)...Now you suffer from Hyperthyroidism caused by synthroid...Do you have positive Anti-TPO antibodies?Solution is to reduce the dose of synthroid...I'm not a doctor but I think it's right .
    Anonymous 42789 Replies Flag this Response
  • I would want to rule out Cushings Disease. Your elevated ACTC and Cortisol shouldn't be so easily dismissed in light of your symptoms. It sounds like the thyroid issues are overshadowing or perhaps complicating the issue. I wonder is seeking a second opinion from a different endocrinologist would be warranted. It may only be a thyroid issue, but I would want to be sure. What is your weight? Is your weight distribute in your midsection and upper back? Do you have a fatty hump between your shoulder blades? Do you have stretch marks anywhere? Do you have a rounded face? All of these can be signs of Cushings, but they don't have to be present. I would get a second opinion.
    Harmonium 322 Replies Flag this Response
  • I would want to rule out Cushings Disease. Your elevated ACTC and Cortisol shouldn't be so easily dismissed in light of your symptoms. It sounds like the thyroid issues are overshadowing or perhaps complicating the issue. I wonder is seeking a second opinion from a different endocrinologist would be warranted. It may only be a thyroid issue, but I would want to be sure. What is your weight? Is your weight distribute in your midsection and upper back? Do you have a fatty hump between your shoulder blades? Do you have stretch marks anywhere? Do you have a rounded face? All of these can be signs of Cushings, but they don't have to be present. I would get a second opinion.They can't catch my cortisol above 28 so everyone is basically ignoring it. As for the poster above, Hashimotos has already been ruled out as they have checked for antibodies.I do however, have all the symptoms of Cushing's disease. It is extremely difficult to diagnose. My doctor is going to rule out PCOS next. Then, I don't know what he will do. I am 99% positive it is NOT PCOS as it is very easy for me to get pregnant. It is just getting so frustrating as I am so tired all the time I can't focus on anything.And with my heart racing, it is starting to make me dizzy and lightheaded. I had an EKG done yesterday in which the tech told me the rhythm was fine the rate was just elevated.
    lilithacacia 2 Replies Flag this Response
  • I would want to rule out Cushings Disease. Your elevated ACTC and Cortisol shouldn't be so easily dismissed in light of your symptoms. It sounds like the thyroid issues are overshadowing or perhaps complicating the issue. I wonder is seeking a second opinion from a different endocrinologist would be warranted. It may only be a thyroid issue, but I would want to be sure. What is your weight? Is your weight distribute in your midsection and upper back? Do you have a fatty hump between your shoulder blades? Do you have stretch marks anywhere? Do you have a rounded face? All of these can be signs of Cushings, but they don't have to be present. I would get a second opinion.Synthroid would raise the level of ACTH...But everything is possible..
    Anonymous 42789 Replies Flag this Response
  • They can't catch my cortisol above 28 so everyone is basically ignoring it. As for the poster above, Hashimotos has already been ruled out as they have checked for antibodies.I do however, have all the symptoms of Cushing's disease. It is extremely difficult to diagnose. My doctor is going to rule out PCOS next. Then, I don't know what he will do. I am 99% positive it is NOT PCOS as it is very easy for me to get pregnant. It is just getting so frustrating as I am so tired all the time I can't focus on anything.And with my heart racing, it is starting to make me dizzy and lightheaded. I had an EKG done yesterday in which the tech told me the rhythm was fine the rate was just elevated.And what Pheochromocytoma? What are your catecholamines?
    Anonymous 42789 Replies Flag this Response
  • And what Pheochromocytoma? What are your catecholamines?Honestly I haven't had any of those tested, and I have no idea why, logically, that wouldn't have been included in the all the blood work they have already done. I'm extremely frustrated at this point.
    lilithacacia 2 Replies
    • August 11, 2010
    • 11:39 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.