Sorry this is really long I am just so frustrated and constantly scared another attach of stomach pain will hit me!
My entire life I have had stomach problems and more. I missed a lot of school and was in and out of the doctor's office, although once I was off of my parent health insurance I rarely ever went; until now.
I recently went to the doctors because one of the problems I have been having my entire life is getting more frequent and more sever. I get sever abdominal pains that I believe are in the lower abdomen but cannot exactly be sure because when I come out of the pain all I really remember is the pain. My boyfriend always tries to get me to go to the hospital when I get them but I cannot afford it and I know that I always get better and it is just a matter of time before the pain stops. It gets so bad that I writhe in pain and moan. I can get fevers of around 103 which my body temp usually reads 96.7. My skin gets even paler that it normally is and my veins are highly visible. Even though my boyfriends say that I am burning up I feel like someone had thrown me out in the snow and I shake uncontrollably and breathe very heavily. Sometimes this is all accompanied by nausea and diarrhea but most often with constipation. Lately it has seemed to come more frequently. I used to get it once every 1-2 months or so but this last month I got it 3 time.
There had never been a correlation with my menstrual cycle and never has it had a pattern. I thought maybe it was dairy but I still got it once that was cut out, nothing has seemed to work.
When I was a baby my mother said that I was very colicky all the time but the doctors said that some babies are like that. When I was 1 yrs old I had an unexplained seizure, I stopped breathing and had turned blue, they never figured out what caused it, again the doctors said that some children get them at this age.
All through elementary school I was in and out of the doctors for sever coughs and upper respiratory infections later the doctor said that I actually have asthmatic bronchitis. I also had and still have eyes that are very sensitive to light, the eye doctor my mother brought me to at age 8 said that I just had enlarged pupils and that I would eventually grow out of it. I cannot wear any type of sunglasses that always make me feel very dizzy. When I was 10 I had a haltergram test for my heart because i would have intermittent chest pain that got worse when I breathed in. I still get this every once in a while but it usually last only about a minute
I have been very sensitive to the sun all of my life if I am out in the sun too much I get very rundown and fatigued feeling with nausea and headaches. To this day I work the night shift in order to stay out of the sun as much as possible. My arms legs and back hurt all of the time it feels like a deep ache, it usually feels like my joints and other times it feels like I am having growing pains all over again. Occasionally my hands will tingle very similar to the feeling of when it "falls asleep". My right shoulder and hip occasionally can pop out of socket and my fingers have crazy range of motion.
At age 18 I was diagnosed with polycystic ovarian syndrome and put on oral contraceptives I stopped taking them about 1 year ago. My periods are pretty regular but are still accompanied by very large mood swings and bad cramps.
I sometimes struggle with extreme mood swings and forget what i was saying in the middle of a sentence. I am very well known for putting things in safe places and then never remembering where that was.
Now for the results from the doctor, I have never been in when I am having symptoms.
-Blood tests done came back negative for lupus and Lyme disease with no abnormalities
-Urinalysis came back normal.
-24 hour urine collection was dropped off yesterday and I am still waiting for the results.
-This is the odd thing, the abdominal pelvic CT scan: "Lung bases are clear. The liver, gallbladder, pancreas, adrenal glands, kidneys and spleen are normal. Incidental note is made of a splenule. Abdominal aorta is normal in caliber and pattern of contrast enhancement without intimal flap. Retroverted uterus is identified. Right ovary is associated with a 2cm simple cyst. Left ovary and urinary bladder are intact. Soft tissues and bones are normal. Moderately enlarged lymph nodes are scattered throughout the mesentery (largest measures 1cm) The small intestine occupies the right side of the abdomen and the large intestine occupies the left side of the abdomen. There does not appear to be normal position of the ligament of Treitz and the superior mesenteric artery-superior mesenteric vein relationship is reversed. (This may represent congenital malrotation of the intestines or a large right internal hernia)" This was the results report given to me by the doctor.
The doctor says that congenital malrotation of the intestines or a large right internal hernia may explain the abdominal pain but not the other symptoms. He said that I have "funky intestines...never seen before" What is causing my other pain, why are my eyes so sensitive to light and why does the sun make me feel sick. My family nicknamed me "the vampire of the family" and all I want to do is be able to swim in their pool IN THE SUN!!!
What the heck is going on with me?
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