Discussions By Condition: I cannot get a diagnosis.

adrenal glands

Posted In: I cannot get a diagnosis. 16 Replies
  • Posted By: fabie2t
  • November 22, 2008
  • 01:08 AM

When I was 5 years old, I contracted rheumatic fever and was treated with cortisone injections and penicillin long term. Could this have affected the growth of my adrenal glands?:eek:

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16 Replies:

  • When I was 5 years old, I contracted rheumatic fever and was treated with cortisone injections and penicillin long term. Could this have affected the growth of my adrenal glands? I am now having all sorts of endocrine problems including type 1 diabetes and had Graves disease but have had a total thyroidectomy. Are my adrenal glands cooked?
    fabie2t 18 Replies
    • November 22, 2008
    • 01:10 AM
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  • Cortisone injections can stuff up ones adrenal glands and give one Addison's disease (where they stop working). "Risk factors for the autoimmune type of Addison's disease include other autoimmune diseases:Chronic thyroiditisDermatis herpetiformisGraves' disease " So you well could have adrenal issues... probably best to get that tested.
    taniaaust1 2267 Replies
    • November 22, 2008
    • 01:50 AM
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  • Cortisone injections can stuff up ones adrenal glands and give one Addison's disease (where they stop working). "Risk factors for the autoimmune type of Addison's disease include other autoimmune diseases:Chronic thyroiditisDermatis herpetiformisGraves' disease " So you well could have adrenal issues... probably best to get that tested.thank you I am at the moment being tested for Addison´s but my question really is because I was of such a young age, could it have stopped proper development of the adrenal glands? thanks
    fabie2t 18 Replies
    • November 23, 2008
    • 03:40 AM
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  • thanks guys, but my question is a little bit more specific. My question is that because I was exposed to large amounts of cortisone at such a young age, could I have had my adrenal glands not grow properly? I am now being tested for Addison´s disease and should have an answer within 3-4 days. When I was diagnosed with type 1 diabetes, my sodium was always low in my blood, and my blood pressure was around my ankles and I had my pulse fluctuating from 90 to uncountable. I still need to check my potassium levels at the time as I did not look at that as I was looking for my thyroid function tests to prove that I had Grave´s. thanks.
    fabie2t 18 Replies
    • November 23, 2008
    • 03:46 AM
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  • thanks to everyone. I will get the tests results back on Thursday. I also have type 1 diabetes and I am aware of all the pathology, when I was diagnosed with this so called type 1 diabetes. My blood pressure was low, my sodium was around my ankles. I did not check my potassium levels as when I was reading all the notes and pathology, I was looking for Graves, which was finally diagnosed. I have had a total thyroidectomy as I did not respond to Neo-Mercazole. I was on 55mg daily, which did not work, I might as well have drank a glass of water as it did not touch me. The maintaining dose is 20-25 mg daily. 60mg being the highest you can take. Anyway although I did feel better for some weeks, my bloods sugars are once again out for no reason what so ever. I am still having hypos ++++++ and I have brown patches on my face and neck. The CT revealed nothing but I will see what happens with the bloods. I know that I have another condition, either Addison´s or WHAT? I am currently checking every gland in my body to try and work this out and am having loads of tests done. I have no doubt in my mind that I did not have type 1 diabetes when so diagnosed. I told the endocrinologist everything, about the cortisone, the diarrhea etc and she told me to go and see a psychiatrist. All the time that woman had in front of her nose, that there was a problem although only slight with my thyroid but did nothing. At no time did she check my adrenal glands to see why my BP was so low and my sodium. She even knew that I had a goiter but did not tell me nor did she follow it up. And all the meanwhile I am unable to stabilize my blood sugars. Graves was well and truly positive. All I can say is total negligence and I will prove it in court, once I have all the pathology back and have seen the expert witness. And the best part of everything is that I went in that diabetic centre to do some tests. There were 2 endocrinology students there who had read my file and asked me if I was type 2 diabetic. I told them that I had been put on insulin from day 1 and they seemed extremely puzzled as to why that was. At no time was anything ever followed up by this endocrinologist, she kept on referring me to psychiatrists and I was telling her that I had something else wrong with me. I want to thank you all again for your support. Fabie
    fabie2t 18 Replies
    • November 25, 2008
    • 04:22 AM
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  • thanks to everyone, it is pretty well positive. I have had the last test today and I was a mess. I got a hold of some cortisone and florinef from work and took some after the test. Within 45 minutes I started to feel normal again and my vision cleared up. I was shaking like a leaf and was in extreme pain, it all disappeared after 45 minutes of taking the medications bit by bit and my blood sugars are coming down. I know that idiot of an endocrinologist got it wrong with this type 1 diabetes as I have read some of my pathology and my salt was always low and so was my blood pressure. However I did not check my potassium, which I will do when I get to my lawyers. At no time did that woman even check me for Addison´s nor did she listen to what I was telling her. I have had diarrhea for some 25 years. When I told her about it some 16 years ago, she replied ¨oh please stop it¨ and walked out of the room. She told me to go and see a psychiatrist that I was under stress (another symptom of Addison´s). All through my notes, they are describing the symptoms of Addison´s and Graves and did nothing, nor did they tell me I had a goiter, nor did they follow it up. Back home we have a saying that says:vengeance is dish that we eat cold, literally translated from French. once again thanks for your assistance.:p
    fabie2t 18 Replies
    • December 1, 2008
    • 07:47 AM
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  • Cortisone injections can stuff up ones adrenal glands and give one Addison's disease (where they stop working). "Risk factors for the autoimmune type of Addison's disease include other autoimmune diseases:Chronic thyroiditisDermatis herpetiformisGraves' disease " So you well could have adrenal issues... probably best to get that tested.thanks I have posted something that you might want to read. fabie2t
    fabie2t 18 Replies
    • December 1, 2008
    • 07:49 AM
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  • let us know when your Addison's test result comes back positive. Seems it is certainly the case but i'd love to hear that you've got positive test result back.
    taniaaust1 2267 Replies
    • December 1, 2008
    • 07:55 AM
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  • Cortisone injections can stuff up ones adrenal glands and give one Addison's disease (where they stop working). "Risk factors for the autoimmune type of Addison's disease include other autoimmune diseases:Chronic thyroiditisDermatis herpetiformisGraves' disease " So you well could have adrenal issues... probably best to get that tested.I have had dermatitis herpetiformis since age 17, which comes and goes with time. I sometimes have massive blisters on my hands and it itches like mad. How is this related to Addison´s? fabie2t
    fabie2t 18 Replies
    • December 1, 2008
    • 07:56 AM
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  • Dermatitis herpetiformis is an autoimmune condition. Autoimmune conditions can mistakenly attack the adrenal gland causing damage.
    taniaaust1 2267 Replies
    • December 2, 2008
    • 04:58 AM
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  • let us know when your Addison's test result comes back positive. Seems it is certainly the case but i'd love to hear that you've got positive test result back.well I will have some of the results tonight but have commenced on florinef anyway and guess what happened? I have being having hypos and more hypos. First of all I tried it with cortisone and florinef and I felt better but then upon movement my blood sugars went up, so I stopped the cortisone and stayed on the florinef and now my insulin requirement is going down and down and I am still hypoing. I know that there is something in the original pathology that does not add up as some 3 years ago I went to be fitted with a monitor for blood glucose. There were 2 endocrine students present who kept on asking me are you sure you are a diabetic and are you sure you are not a type 2 diabetic. All the meanwhile, the diabetic educator was trying to divert the conversation to something else. These 2 doctors were extremely puzzled. I know that I did not have type 1 diabetes when so diagnosed. I remember seeing some very low sodium on my test results but did not pay attention to the rest and I was very hypotensive. I will have another look at this pathology and send it to my doctor to see what it is they picked up and did not tell me. I strongly suspect that I had Addison´s disease all along and not type 1 diabetes. I will keep you posted.
    fabie2t 18 Replies
    • December 4, 2008
    • 02:09 AM
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  • let us know when your Addison's test result comes back positive. Seems it is certainly the case but i'd love to hear that you've got positive test result back.well you not going to believe this but they did not do the test properly, they simply measured the ACTH without injecting me with anything. However my GP has commenced me on florinef and to my shock, it is working. My blood sugars have all the sudden come down and so has my insulin requirements. I am seeing her on Monday and we will see what is the best cause of action to try and sort this out. All I know is that I have had low sodium since day 1 of this so called diabetes but if I continue to go down as I am, I doubt I will be using insulin for much longer. It has had a surprising effect, is all I can say. My insulin requirement were up to 85 units of humalog a day a week ago and now I am having 15 units a day, in 6 days and all blood sugars are normal?????? fabie:confused:
    fabie2t 18 Replies
    • December 6, 2008
    • 04:53 AM
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  • ive ended up confused too now.. originally for some reason i was thinking your sugar problem was low not high.. and that is one of the reasons why i suggested Addison's as people with Addisons often have low glucose. Now im just confused thou at your posts as you had high. Typical for them to stuff up Addison's disease test..
    taniaaust1 2267 Replies
    • December 6, 2008
    • 05:47 AM
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  • ive ended up confused too now.. originally for some reason i was thinking your sugar problem was low not high.. and that is one of the reasons why i suggested Addison's as people with Addisons often have low glucose. Now im just confused thou at your posts as you had high. Typical for them to stuff up Addison's disease test..actually I was hypoglycaemic for years prior to this weird diagnosis of diabetes, which I reviewed some of the pathology yesterday and frankly there was no reason to put me on insulin in the first place. It also showed very low sodium and an abnormality with my thyroid gland, which was revealed about 18 months ago to be Grave´s disease. So is it Addison´s that has caused that or what. I also had very low blood pressure, which has now risen 0 to the ???diabetes. I know one thing nothing was followed up and I told them everything about the diarrhea, the hypos and the cortisone but to no avail, they simply did not listen. when i was commenced on insulin, i was averaging 40 hypos a week. fabie:(
    fabie2t 18 Replies
    • December 6, 2008
    • 06:16 AM
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  • actually I was hypoglycaemic for years prior to this weird diagnosis of diabetes, which I reviewed some of the pathology yesterday and frankly there was no reason to put me on insulin in the first place. It also showed very low sodium and an abnormality with my thyroid gland, which was revealed about 18 months ago to be Grave´s disease. So is it Addison´s that has caused that or what. I also had very low blood pressure, which has now risen 0 to the ???diabetes. I know one thing nothing was followed up and I told them everything about the diarrhea, the hypos and the cortisone but to no avail, they simply did not listen. when i was commenced on insulin, i was averaging 40 hypos a week. fabie:(Do you want to hear another good one, I have brown patches on my face and neck, which are now fading after nearly one week of treatment?????? If I don´t have Addison´s with the medication I am on and the patches disappearing then I don´t know what it is. I find it extremely strange that I start on the treatment and things settle and I feel a ***l of a lot better. Do you have any other ideas of what it could be. I have looked at Cushing´s but it does not fit the symptoms. What gets me is the hypos prior to this so called diagnoses of diabetes and then the up to 40 hypos a week on insulin. It was irrelevant what dose of insulin I took, it all remained the same. Is it possible that my pancreas over produced glucagon to try and regulate the hypos? fabie:confused:
    fabie2t 18 Replies
    • December 6, 2008
    • 11:10 AM
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  • ive ended up confused too now.. originally for some reason i was thinking your sugar problem was low not high.. and that is one of the reasons why i suggested Addison's as people with Addisons often have low glucose. Now im just confused thou at your posts as you had high. Typical for them to stuff up Addison's disease test..could you contact me at fmjnt@yahoo.fr as I would like to talk to you alone and I just don´t want to post everything on the forum. fabienne
    fabie2t 18 Replies
    • December 6, 2008
    • 09:51 PM
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