I was diagnosed with acute disseminated encaphalomyelitis in February of this year. My symptoms started in late January. ( I am only 23 years old.) I wonder if anyone else has or knows some one who has battled this disease, and would like to share their story?? I was treated with high dose steroids. It started with me just feeling off balance, my handwriting changed, had left-sided numbness, and my motor skills were bad. I was initially diangnosed with MS, but it was later changed to ADEM, after spinal tap and further MRI's. I became very lethergic, sleeping about 20 hours a day. It got worse to the point that I couldn't walk unassisted (i used a walker with help), some one helped me bathe, dress, and other daily tasks. I still cannot drive. My speech was very slurred and barely anyone could understand me. I either laughed hysterically most the time or cried just as hard. I could not control my emotions. The disease comes on suddenly. Mine was started by the Epstein-Barr virus. I am now walking, with some balance problems. I still do PT. I still have coordination problems and headaches. Fatigue is still an issue. As is occassional involuntary or jerky muscle movements, but I have gotten much better from where I came from. I am interested in any stories that anyone may have or if Dr. Cottle has seen this disease process and what prognosis he has seen. Thanks all!!Reply Follow This Thread Stop Following This Thread Flag this Discussion
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