Discussions By Condition: I cannot get a diagnosis.

Adam's mom

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • October 25, 2006
  • 03:45 AM

My son Adam, is 20 years old and has been out of high school for 4 years. He has not been able to work or go to school. He has had 10 orthapedic surgeries; 6 on his left shoulder, 3 on his left knee and 1 last week on his right knee.

So far the orthapedic injuries he incurred have been alleviated with the surgeries. Our problem now is that his right knee has been hurting badly for approximately a year. Adam was seeing Dr. William Garth at Children's Hospital in Birmingham. Dr. Garth had gone through all the necessary steps before doing surgery on Adam's knee, such as physical therapy, prescribing a brace and having specially made shoe inserts. Dr. Garth had said Adam needed surgery on the patella tendon because his knee cap will roll all around on his knee. Right before the surgery was scheduled we received an EOB from our insurance company stating that Dr. Garth had been dropped from their list of participating physicians.

We had to find another doctor to do Adam's surgery. Adam called the referral line at Brookwood Hospital and was referred to Dr. Thomas Powell. Adam had surgery last Tuesday, October 17. Dr. Powell said there was nothing wrong at all with Adam's knee, that he did nothing because there was nothing for him to do. I guess considering all my son has been through this is good news.
The other doctor must have made a misdiagnosis. However, if the pain is not coming from within the knee cap where could it be coming from. Adam does have a varicose vein on the inside of his right knee. Dr. Powell sent us to see a nerologist today and she simply said she didn't think his pain was nerve related.

We are desparate. It is very hard to see him suffer. We dropped insurance on his car becuase he isn't able to drive and never goes anywhere. If he is not a full time student by January our insurance won't cover him anymore. His life is on hold and he suffers all the time.

His pain is above and below the knee cap and in the back of the knee where the ham string is. His whole leg swells, and if he's up very much a huge knot will come upon the top of his foot.

If anyone has any suggestions or ideas please respond. Thanks

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