I have suffered with severe endometriosis for several years and six months ago underwent an exploratory laparotomy. Two weeks post-laparotomy I started to have a copious vaginal discharge which is milky yellow in colour of liquid consistency (maybe pus?). This is sometimes tinged with blood content. The discharge/leakage is worse on physical activity and during the night. It is quite usual to capture up to two cupfuls of discharge within two hours.
I have had numerous swabs of which results are normal, antibiotics which did not help, a cysto-urethrogram, urodynamics, cystoscopy, retrograde pyelogrography (for suspected traumatic fistula) all of which were also reported normal. Two months ago an MRI scan reported a new 9cm x 9cm multi-loculated cyst on my right ovary. This was not on the ultrasound at the time of my laparotomy four months earlier which suggests this is a rapidly growing cyst.
I have visited a Gynaecologist, Uro-Gynaecologist, Urologist, Colorectal Surgeon who are unable to diagnose and keep telling me I am an unusual case and that there is no magic cure. I have been told removal of the cyst will be an extremely hazardous operation due to my frozen pelvis from the endo.
After six months I am getting no answers and this continual 'severe' leakage is seriously impairing my life. I am now unable to work, struggle to do simple tasks like supermarket shopping, and basically need to be within arms reach of a toilet constantly.
Does anyone have any suggestions what this could be please?
I am at my tether end trying to sort this out.
The cyst is getting bigger and the discharge is getting worse yet no-one can tell me what is wrong.