Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Crystalvoid
  • June 10, 2009
  • 04:46 PM

I'm a 25 year old female and was recently (within the last six months) diagnosed with hypothyroidism. Since then I've seen my doctor three times to follow up with blood tests and adjust my synthroid levels. The last test came back to state my levels are in the desireable range. It's my understanding that all of this is hormone related, so I automatically assumed that when I started spotting heavily 3 days following my last full-blown period (I get HEAVY periods regularly that last at least 7 days each month), it was relative to the hypothroidism. My doctor believes otherwise. It has now been 6 days straight that I have had this unusual bleeding, which means I've essentially been bleeding for a total of 13 days. I am not on the pill so I did take a pregnancy test which came back negative, but I think it might be too soon to tell as I have not actually missed a period yet.

My mother has always had problems with her period and had a hysterectomy at approximately age 40. She claims each year her cycles became more and more unbearable. She was often fatigued to the point of missing work and was diagnosed with slight anemia prior to her hysterectomy. She and I have shared many stories of fainting spells during this time.

I have no hope of this problem resolving itself and I am sick of spending money at the doctors only to be told they don't know what's causing these issues. I'm dejected and depressed at the thought of my cycles progressively getting worse over time. It's hard enough to keep my mind from wandering to terrible memories of having been raped whenever something goes awry in this area of my body. I'm worried I'll never have kids. I'm worried I may have an STD or cancer. (I had a previous case of wart-causing HPV when I was about 21-22 but my colposcopy came back negative for cancer cells). There is a history of cancer in my family and recently my cousin was diagnosed with Brugada's disease after succumbing to a uterine infection which caused her to have a hysterectomy at age 27. From my understanding this disease can also cause what is called Long QT, a heart condition which could lead a person to drop dead at anytime. Two of my aunts (one of whom was said cousin's mother) died in their sleep within a month of each for no apparent reason. Originally they thought it was mercury poisoning. They've since gone back to reevaluate. Back in December I had a severe fainting spell at work, where I was rushed to the hospital because not only did I nearly pass out but I was doubled over in lower abdominal pain. My manager mentioned I was pale and my lips had turned blue. Could this have been caused by simple dehydration (I was fine after I was injected with a Saline drip in the ambulance) or did I have an infection that disappeared without treatment? Getting back to the Long QT, I had a follow up with my doctor three days after this episode and she took an EKG of my heart, which lead her to believe I had this Long QT. I went to a heart specialist who ran tests but found nothing, other than a small area at the tip of my heart that was hard to see. He's convinced my heart is fine. I'm not so sure.

Does anyone have any advice on what things I should be asking/telling my doctor? Do I go to her with the full list of my fears? What tests should I take? What symptoms do I take seriously and which ones should I just "keep an eye on"? I'm driving myself nuts!

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