Discussions By Condition: I cannot get a diagnosis.

Abdominal pain with no diagnosis and other problems

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • September 3, 2010
  • 09:40 AM

Hi I am desperately seeking help it has been 3 years that I have been having problems, it all started after I had my gall bladder removed. I was doing ok for the first few days after the surgery then all of a sudden I started getting severe sharp stabbing pains in my lower right side of my stomach. Along with this I started getting nausea, vomitting, and constant diarrhea that presents with blood off and on. I have had every test imaginable from x-rays, catscans, mris, blood tests, nuclear imaging, octreotide scan, colonoscopys, endoscopys, stool tests and finally the pill cam test. All of which have come back not showing anything other then the blood tests showing increased gastrin and low potassium and the last colonoscopy showed increased lymphocytes in the duodenum. The pain increases with meals insanely and no matter what I eat it hurts really bad. I find myself using the bathroom 7-9 times a day with diarrhea and without anti-nausea medication I vomit a lot. I have lost a lot of weight and I am suffering from insomnia now and depression due to the fact I havnt had a life in the past 3 years. I have been all sorts of medications and seen 4 different doctors at 3 different hospitals. I was taking percocet for pain which only helped take the edge off but my primary docotor said no more and him and my current gastro sent me off to pain management. I was started on tramadol which is a joke for my pain, it does not help at all. I am currently on Zofran 4mg 3 times daily, lomotil 25 mg 4 times daily, neurontin 300mg 3 times daily, Prozac 25 mg once a day, trazadone 50 mg once a night, and aciphex 25mg once daily. I am lost to what to do now cause the pain management docotor wont do any procedures for my pain and will not change medications, I am also being refered to a pain management rehabilitation program. I have heard that this is pretty much therapy which is fine but I dont see how it will help my syptoms. I do not know what to do anymore, I am loosing my mind and I have started thinking about suicide because of the non stop pain and inability to eat, sleep or do anything. Any input would extremely helpful as to what I should do.

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  • Hi I am desperately seeking help it has been 3 years that I have been having problems, it all started after I had my gall bladder removed. I was doing ok for the first few days after the surgery then all of a sudden I started getting severe sharp stabbing pains in my lower right side of my stomach. Along with this I started getting nausea, vomitting, and constant diarrhea that presents with blood off and on. I have had every test imaginable from x-rays, catscans, mris, blood tests, nuclear imaging, octreotide scan, colonoscopys, endoscopys, stool tests and finally the pill cam test. All of which have come back not showing anything other then the blood tests showing increased gastrin and low potassium and the last colonoscopy showed increased lymphocytes in the duodenum. The pain increases with meals insanely and no matter what I eat it hurts really bad. I find myself using the bathroom 7-9 times a day with diarrhea and without anti-nausea medication I vomit a lot. I have lost a lot of weight and I am suffering from insomnia now and depression due to the fact I havnt had a life in the past 3 years. I have been all sorts of medications and seen 4 different doctors at 3 different hospitals. I was taking percocet for pain which only helped take the edge off but my primary docotor said no more and him and my current gastro sent me off to pain management. I was started on tramadol which is a joke for my pain, it does not help at all. I am currently on Zofran 4mg 3 times daily, lomotil 25 mg 4 times daily, neurontin 300mg 3 times daily, Prozac 25 mg once a day, trazadone 50 mg once a night, and aciphex 25mg once daily. I am lost to what to do now cause the pain management docotor wont do any procedures for my pain and will not change medications, I am also being refered to a pain management rehabilitation program. I have heard that this is pretty much therapy which is fine but I dont see how it will help my syptoms. I do not know what to do anymore, I am loosing my mind and I have started thinking about suicide because of the non stop pain and inability to eat, sleep or do anything. Any input would extremely helpful as to what I should do.any one have any ideas?
    Anonymous 42789 Replies
    • September 4, 2010
    • 02:29 PM
    • 0
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  • anyone ele have anything similar?
    Anonymous 42789 Replies
    • September 5, 2010
    • 01:06 PM
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  • anyone ele have anything similar?I completely know what you are going though. I have been sick since Feb.2002 It all started with abdominal pain to the E.R. 3X in 1 week took my gallbladder & I Spent 10 days in hospital.From then on all the tests you have had+++Same symptoms I honestly thought I was going to die & if I didn't I wanted to due to I was sooo sick & had NO LIFE.The worst was the first 16 months.I have seen 100 + DRS. between all the E.R. visits & specialty Drs.In the last 8 years so I totally get how you feel.They want to send you to pain management yet I couldn't even get up to function let alone go to a pain class. Then when I would cry & be very emotional I was then depressed ,it was all in my head & needed counseling.NO I just was sick of being sick EVERYDAY. Nobody would ever understand until they have been in this much pain & had ther life taken away as they knew it before.I had to try to keep going as I had a daughter.It was to the point that my dad had to come live with me to take care of her as I was in the hospital on & off for approx. 200 days in the first 2 yrs.I so many times didn't want to live & even at times now when the pain is really bad it is hard.I try to realize that I am still here for a reason & there are people worse than me with terminal illnesses.(yet at times it is still so very hard I'm not minimizing yours or my situation)I just have to try to keep going hoping one day I will have my life back.I really hope you too can try to find some hope to keep fighting. I sometimes think just for me to find out what is wrong so I can go back to some of the Drs. that were so cruel & say see I was sick & you were wrong.I have a post on here which tells my symptoms,procedures, & story which is way long to retype.If you can please read it & if I can help answer any of your questions I will.I have done some research on gallbladder removal & we are not alone.I haven't heard it being as bad as mine until your post.Mine was on page 10 under;PLEASE HELP MY DAUGHTER HAS BEEN SICK FOR ALMOST 9 YEARS.I think you may even be able to find it once you get this by clicking on my posts. I hope in some way I can help you as I know how bad this is & I keep saying it only takes one Dr./person/or story & maybe we will find out what is wrong.Best of luck & let me know if I can help.
    Anonymous 42789 Replies
    • September 7, 2010
    • 02:41 PM
    • 0
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  • I completely know what you are going though. I have been sick since Feb.2002 It all started with abdominal pain to the E.R. 3X in 1 week took my gallbladder & I Spent 10 days in hospital.From then on all the tests you have had+++Same symptoms I honestly thought I was going to die & if I didn't I wanted to due to I was sooo sick & had NO LIFE.The worst was the first 16 months.I have seen 100 + DRS. between all the E.R. visits & specialty Drs.In the last 8 years so I totally get how you feel.They want to send you to pain management yet I couldn't even get up to function let alone go to a pain class. Then when I would cry & be very emotional I was then depressed ,it was all in my head & needed counseling.NO I just was sick of being sick EVERYDAY. Nobody would ever understand until they have been in this much pain & had ther life taken away as they knew it before.I had to try to keep going as I had a daughter.It was to the point that my dad had to come live with me to take care of her as I was in the hospital on & off for approx. 200 days in the first 2 yrs.I so many times didn't want to live & even at times now when the pain is really bad it is hard.I try to realize that I am still here for a reason & there are people worse than me with terminal illnesses.(yet at times it is still so very hard I'm not minimizing yours or my situation)I just have to try to keep going hoping one day I will have my life back.I really hope you too can try to find some hope to keep fighting. I sometimes think just for me to find out what is wrong so I can go back to some of the Drs. that were so cruel & say see I was sick & you were wrong.I have a post on here which tells my symptoms,procedures, & story which is way long to retype.If you can please read it & if I can help answer any of your questions I will.I have done some research on gallbladder removal & we are not alone.I haven't heard it being as bad as mine until your post.Mine was on page 10 under;PLEASE HELP MY DAUGHTER HAS BEEN SICK FOR ALMOST 9 YEARS.I think you may even be able to find it once you get this by clicking on my posts. I hope in some way I can help you as I know how bad this is & I keep saying it only takes one Dr./person/or story & maybe we will find out what is wrong.Best of luck & let me know if I can help.thank you for the reply, it helps to know that I am not alone, have you gotten any anwers to you're problems? I was unable to find you're orginal post, I have stopped eating and and refuse to eat anything until I get some help. I am aware of the problems this can cause but I could not stand the pain being intensified by food. So day 4 with nothing to eat and its been a few weeks without sleep, I finally got another appointment with my pain mangement doctor coming up on monday, hopefully he will actually listen to me this time if not I don't know what else to do anymore. There has to be something someone can do , I am willing to try anything at this point. I just want my life back
    Anonymous 42789 Replies
    • September 10, 2010
    • 02:41 AM
    • 0
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  • I went in a seen my pain management doctor who put me back on vicodin 5/500 and told me to take 1 ever 12 hours, this is not helping at all, I was vicodin for months prior to that and it just isnt helping. I also have vomited the pill up and passed in my diarrhea before it even got to work thus making me take another one, the bad thing is Im almost out of my 30 day prescrip and its only been 17 days due to me taking more to try to get outta pain (stupid of me I know). Im not sure what to do, the pain has been horrible and idk what to tell the doctor. Still no clue on whats wrong with my stomach and my gastro doctor gave up, I honestly dont want to continue life if this is how it is going to be. Im 24 and stuck in bed most of the time, just wondering what to do.
    Anonymous 42789 Replies
    • September 29, 2010
    • 02:43 AM
    • 0
    Flag this Response
  • Hi I am desperately seeking help it has been 3 years that I have been having problems, it all started after I had my gall bladder removed. I was doing ok for the first few days after the surgery then all of a sudden I started getting severe sharp stabbing pains in my lower right side of my stomach. Along with this I started getting nausea, vomitting, and constant diarrhea that presents with blood off and on. I have had every test imaginable from x-rays, catscans, mris, blood tests, nuclear imaging, octreotide scan, colonoscopys, endoscopys, stool tests and finally the pill cam test. All of which have come back not showing anything other then the blood tests showing increased gastrin and low potassium and the last colonoscopy showed increased lymphocytes in the duodenum. The pain increases with meals insanely and no matter what I eat it hurts really bad. I find myself using the bathroom 7-9 times a day with diarrhea and without anti-nausea medication I vomit a lot. I have lost a lot of weight and I am suffering from insomnia now and depression due to the fact I havnt had a life in the past 3 years. I have been all sorts of medications and seen 4 different doctors at 3 different hospitals. I was taking percocet for pain which only helped take the edge off but my primary docotor said no more and him and my current gastro sent me off to pain management. I was started on tramadol which is a joke for my pain, it does not help at all. I am currently on Zofran 4mg 3 times daily, lomotil 25 mg 4 times daily, neurontin 300mg 3 times daily, Prozac 25 mg once a day, trazadone 50 mg once a night, and aciphex 25mg once daily. I am lost to what to do now cause the pain management docotor wont do any procedures for my pain and will not change medications, I am also being refered to a pain management rehabilitation program. I have heard that this is pretty much therapy which is fine but I dont see how it will help my syptoms. I do not know what to do anymore, I am loosing my mind and I have started thinking about suicide because of the non stop pain and inability to eat, sleep or do anything. Any input would extremely helpful as to what I should do.Have you been tested for Celiac Disease? Even the smallest amount of gluten can cause harm to your small intestines causing many of these symptoms. Symptoms don't cure up fully until you completely eliminate this from your diet for a few weeks to months so I would suggest being tested for this if you haven't already.A lot, if not all of your symptoms also sound like the the classic symptoms of Crohn's disease. Although your colonoscopy didn't show anything and this is considered to be the golden benchmark for testing crohn's..... however I would discuss this possibility with your doctor...
    Anonymous 42789 Replies
    • October 1, 2010
    • 02:52 AM
    • 0
    Flag this Response
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