Discussions By Condition: I cannot get a diagnosis.

abdominal pain in 9 year old. please help!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • May 21, 2008
  • 04:10 AM

My daughter just turned 9 years old and for 7 months she has had on going stomache pain. It is severe. She has missed a lot of school due to this illness. She gets a bad stomache ache or abdominal pain right around her belly button, then she has to have a bowel movement, during the bowel movement her pain is very intense, she cries. She does not have constipation at all and never has had. We have been to a general Dr. the dr. has tried three different things with her and now is finally referring her to a gi dr. She tried a med that coats the stomache and intestines in case of sores inside. this did not work at all. She tried the stool softners, seemed to help for about 2 weeks, then and now my daughter is on Miralax. This helped for about 1 month, then all of a sudden on her
Birthday weekend she had a flare up. This time her stool is a lot looser, she has to go poop about 2 a day. Each time she is in extreme pain. She does not go to the gi until June 4. I am so frustrated with these doctors. they were going to do a Ct scan or the scan where it lights up the inside but my doc and the specialist said that it would make my daughter constipated so they want her to stay on the miralax????????????? This makes no sense, should the not look and see if they can find something? To top it off where I am located there is only 1 pediatric GI in town. Why are they so concerned about her and constipation, this has never been an issue, but every time I take her to the doc, she asks the same dumb questions. Its like she is not hearing us. i feel like taking a video of my poor little daughter on the potty crying out in pain, and then showing the poop and yes see it is normal, no pebbles. These drs think they know everything. I need real help here. Her life is shattering before her. She loves life, people and she loves school and her friends. she has to miss out on sleepovers because she might get a bad stomache. It is truly awful. And to top it off I can't do a ***n thing to help her, just be there for her. She does not have a good appetite because she is in pain and can't eat. Then we both get afraid of what she does eat, because we want to try and avoid the pain. She has cut sugar out almost completely. She has been a very picky eater her whole life, so she is not the greatest eater. She takes a good supplement, it is a whole food supplement. She does eat fruit and veges, just not a lot of meats. She likes shrimp sauteed, beef jerkey, bacon, salamie, chicken nuggets(not from MC D's) she does not get these meats on a regular basis because I know they are not a good choice, only occasionaly does she get them. I am at a loss as to what is wrong with her. She is very active, but now in her sports this is running into it. The dr. is trying to tell me that right now she has a virus(Gastroneteritis) and to continue on the miralax. I know when my daughter is sick sick with a virus or cold or strep or whatever, this is not that. This is the same pain that she has had , just now she is having looser stools. She has not had to throw up, felt nauseated or had a fever, she has not been achy or weak, noting except for the pain. If anyone knows anything please repond. I know I rambled on but I really don't know what to do. They have not

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  • Hi hun, I know as a mom how frustrating it can be to stand by and watch. You feel so helpless, but I think you are on the right track. There are a few conditions that are chronic that this doctor knows she might have, but since this seems to be a new problem (only had it once before) then they alway think viruses first. You dont mention anything about blood tests. Have they done any? Her white blood cell count and SED rate might be elevated as well as her CRP rate. All are indicative of inflammation or infection. Ok.. before I go into the chronic conditions I mentioned, I want you to know that the barrium can cause bad constipation and I would listen to the doctor and keep her on the meds. Also you should make her drink as much water as you can 24 hours after the scan. With that said these scans are not the best test, a colonscopy would be better, but since she is so young I guess a CT is the first step. Ulcerative Colitis and Crohns disease are the two most common of the chronic disorders I mentioned. They can take years to diagnose. I have one of them myself, but no diagnosis yet (and they found the ulceration in my colon too). Anyhow what I am trying to say is that there are many childhood cases that are never diagnosed. I know people that have had this disease since childhood and are diagnosed in their 20's and 30's. Both can present themself with diarreah or constipation although diarreah is most common. The pain near the bellybutton is also typical. It might even be a pointer toward Crohns disease since Crohns usually manifests itself where the small intestine joins the large. (on the right side of the belly button). The pain is also what is called rebound. If you press on her stomach when she is having problems she will have more pain as you release pressure. I hope I am not scaring you with all this info. I want you to know that although both conditions are not curable they are treatable and people with both diseases have a normal life. Here are the symptoms, but note that the bold ones are common, but not everyone gets them. Abdominal pain and cramping Recurring diarrhea, not related to flu or other viral illness Unexplained low grade fever Anemia Joint pain Eye inflammation, (if left untreated may lead to blindness) Abdominal swelling, accompanied by pain Sudden severe constipationFissures Loss of appetite Bleeding While you are waiting you might want to do some reading on both conditons. Best wishes, Kiera
    Anonymous 42789 Replies Flag this Response
  • I am very sorry for what you are going through. I know how you must feel. This might not cure your daughter, but may be help a little. Could you try to give your daughter yoghurt or other probiotic drink every day? At least it will prevent bad bacteria from growing. Best of luck!
    Felsen 510 Replies Flag this Response
  • Food allergies or intollerances immediately popped into my mind: test for celiacs (basically gluten (wheat) ) type allergies...even the tinest bit of offending food can cause problems days later....get her tested On you own think about a bland diet devoid of the usual trigger foods that cause reaction/allergies and cut them out....bland diet with doctors approval and see what happens...she may not like it, bit it may be well worth it....will be ******n you too as she is only 9 and may want to cheat...hang in there and talk to the doctor about food sensitivities and or allergies. No shrimp My daughter had a hard stool problem at her age and we found that a daily does of prune juice or dried prunes helped a lot! You will have to experiment with how much as there (in our case anyway) seems to be a fine line between too much and too little! The too much worked but gave her a bit of stomach cramps with the stool movement.....but t works within a day in her case...eat the night before...also for constipation watch out for dairy products, bananas and anything that might be binding...prunes are good because of the fiber...and seems to work rather quickly. My daughter still has this problem at age 15 and tend to come with her periods...I know your daughter is too young for that, but she may be experience a bit of pre-period hormonal adjustments with it. It is good that she is active, liquids in form of water (stay away from the juices!!! )...also look at the ingredients on her supplement...does it have wheat in it or other "strange" binders? Joan
    Joan5555 316 Replies Flag this Response
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