Discussions By Condition: I cannot get a diagnosis.

Abdominal Pain (broom handle poking in ULQ), Loose Stools, Etc

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: sonicbmx
  • January 5, 2007
  • 00:43 PM

My symptoms include all of the following in no particular order: diarrhea (soft stools), bloating, abdominal pains/cramps, loss of appetite, physical weakness (no energy and feeling tired), restless days & nights, constant stomach gurgling noises, nausea, feverish, and I have difficulty concentrating.

I’ve had diarrhea since April 06. The problem began after eating cafeteria food. I had the same meal 2 days in a row (turkey in sauce). The food was warm not hot. My body began reacting the day after the first meal. I became weak, had aches/pains, loose stools and the chills but I never vomited. It felt like early stages of the flu and that’s how I treated it.

I went to see my doctor after 10 days of diarrhea, stomach discomfort and feeling tired. He said I had IBS and it would clear up. Two weeks later I went back complaining about the same symptoms and I was prescribed Clidinium - it did nothing. Also tried Metamucil – nothing. I went about 4-7 days without a bowel movement during this time. My stools appeared to have traces of blood or mucus, and were dark green or tan colored at times. I turned to my holistic health professional after that.

I feel full when I wake-up and go to sleep. My stomach constantly aches - like a broom handle is poking me in the side (upper left at rib). I find myself protecting that area too (I cover the area with my elbow and apply pressure). I have no appetite after I finish 14 mile cycling workout. I have difficulty sleeping and sometimes I wake-up sweating. I feel dizzy when I stand up or while bending over (my equilibrium is off). I often feel like vomiting but have not. I feel awful most of the time.

I’m a professional cyclist and talented athlete. My entire life revolves around physical activity. I have been unable to perform under these conditions. I’ve always been a slow eater, now I’m super slow. I don’t look forward to eating because it takes forever. My holistic doctor tells me I have a sluggish liver and my body is digesting itself (based on a comprehensive urine test). Vitamin & mineral levels: very low (isocitrates), low (vanilmandelates, sulfates), and high (a-ketoisovalate, a-keto-b-methylvalerate, b-hydroxyisovalerate). I’ve been taking supplements for this since SEP but my condition has not improved.

I’ve seen 2 GI doctors and an Infectious Disease doctor. Had the following tests and they were normal (besides ulcers): blood, stools, upper GI series, ct scan, colonoscopy, endoscopy (3 small ulcers found), capsule endosocopy (2 small ulcers found). I’m taking Glutagenics and Zinlori, Prilosec and Zantac for the ulcers. One GI doctor is treating as if I have Crohn’s disease and put me on Pentasa for 30 days (no changes after 2.5 weeks). My body is telling me something is definitely wrong regardless of what these test say.

What to do now.. Any suggestions?

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6 Replies:

  • What you are describing sounds very much like what it has taken 3 yrs and many trips to many different drs. to diagnose is possibly early chronic pancreatitis (other than being able to continue with exercise which puzzles me) because I never had the ability to exercise after getting sick even though prior to getting sick I exercised five days per week. And although I'm not a dr so this is strictly my opinion not to be construed as medical advice - but chronic pancreatitis is a little understood and much misunderstood disease which is in its infancy as compared to other illnesses often misdiagnosed as IBS and a host of other illnesses because though acute pancreatitis can be measured by the production of digestive enzymes called amylase and lipase as well as other "measurable" signs and symptoms - chronic pancreatitis (cp) sufferers often do not produce amylase/lipase which is well documented (go to Johns Hopkins web site) but most ER drs, family drs, and a large percentage of gastroenterologists (which was shocking to me as they are supposed to be specialists) but they are not specialized enough as pancreatologists are, hence the lack of a firm diagnosis for me for 3 years! Anyway, I just wanted to give my thoughts on this and if you'd like to know more and have a great support system online then go to Pancreatitis Association International and you will find a wealth of information as well as a great group of people with whom you can commiserate as well as learning more than any dr can tell you about the condition. I sincerely hope that you don't have cp as I wouldn't wish it on my worst enemy. So good luck and hope this helps you a bit in figuring out what your symptoms may mean.
    Anonymous 42789 Replies
    • January 5, 2007
    • 06:18 PM
    • 0
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  • i saw an endocrinologist yesterday and he was no help. he suggested i stick with my GI doc. He took blood to run multiple tests but thinks there's no life threatening symptoms based on my previous labs. all my docs figure my condition is depression/stress related because my labs are normal. i asked why they haven't referred me to a therapist if depression/stress was the case - i get no response or the referral. the endo doc minimzed my symptoms and there were tons of people with IBD who wished they had what i have (meaning there problems were far worse). i'm not willing to settle as long as my body is telling something is wrong and docs don't see anything outstanding on paper. at least they should be treating these ulcers! i dont get it... how do you get these doctors to think outside the box?i am 37 and never had any major health problems. i'm in very good shape and doctors are not used to dealing with people who are (in other words... things will not affect a fit person as much as they would an unfit person). i have a resting heart rate of 46 and i have a heart murmur. doctors flip out every time they hear it (had to undergo all sorts of tests on 3 seperate occasions). most athletes in cardio sports have murmurs (cyclists/runners). when we get sick, docs don't know what to do. we obviously have different tolerance levels and my experience might have had a less fit person in the hospital already. i really think treatment has to do with insurance.BTW.. this all started in April 2006 not 2005. what other symptoms did you have and what actually happened for you to get diagnosed? was there a specific test you took? i partied hard for 15-20 yrs (lots of beer, some alcohol/wine, smoked pot/cigs occasionally).. in conjunction with a lot of training. i had a couple glasses of wine on thanksgiving and felt like crap the next day. were you also a partier?
    sonicbmx 44 Replies
    • January 6, 2007
    • 11:28 PM
    • 0
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  • Did you figure out what the issue was. I have exactly the same symptoms. All the MD's keep writing it off as nothing serious and should pass. please help if you can I am not able to function like this!E-mail me at tyler@oriolelandscaping.com
    Anonymous 42789 Replies Flag this Response
  • My symptoms include all of the following in no particular order: diarrhea (soft stools), bloating, abdominal pains/cramps, loss of appetite, physical weakness (no energy and feeling tired), restless days & nights, constant stomach gurgling noises, nausea, feverish, and I have difficulty concentrating.I’ve had diarrhea since April 06. The problem began after eating cafeteria food. I had the same meal 2 days in a row (turkey in sauce). The food was warm not hot. My body began reacting the day after the first meal. I became weak, had aches/pains, loose stools and the chills but I never vomited. It felt like early stages of the flu and that’s how I treated it.I went to see my doctor after 10 days of diarrhea, stomach discomfort and feeling tired. He said I had IBS and it would clear up. Two weeks later I went back complaining about the same symptoms and I was prescribed Clidinium - it did nothing. Also tried Metamucil – nothing. I went about 4-7 days without a bowel movement during this time. My stools appeared to have traces of blood or mucus, and were dark green or tan colored at times. I turned to my holistic health professional after that.I feel full when I wake-up and go to sleep. My stomach constantly aches - like a broom handle is poking me in the side (upper left at rib). I find myself protecting that area too (I cover the area with my elbow and apply pressure). I have no appetite after I finish 14 mile cycling workout. I have difficulty sleeping and sometimes I wake-up sweating. I feel dizzy when I stand up or while bending over (my equilibrium is off). I often feel like vomiting but have not. I feel awful most of the time.I’m a professional cyclist and talented athlete. My entire life revolves around physical activity. I have been unable to perform under these conditions. I’ve always been a slow eater, now I’m super slow. I don’t look forward to eating because it takes forever. My holistic doctor tells me I have a sluggish liver and my body is digesting itself (based on a comprehensive urine test). Vitamin & mineral levels: very low (isocitrates), low (vanilmandelates, sulfates), and high (a-ketoisovalate, a-keto-b-methylvalerate, b-hydroxyisovalerate). I’ve been taking supplements for this since SEP but my condition has not improved.I’ve seen 2 GI doctors and an Infectious Disease doctor. Had the following tests and they were normal (besides ulcers): blood, stools, upper GI series, ct scan, colonoscopy, endoscopy (3 small ulcers found), capsule endosocopy (2 small ulcers found). I’m taking Glutagenics and Zinlori, Prilosec and Zantac for the ulcers. One GI doctor is treating as if I have Crohn’s disease and put me on Pentasa for 30 days (no changes after 2.5 weeks). My body is telling me something is definitely wrong regardless of what these test say.What to do now.. Any suggestions?I Just had an endoscope and they found ulcers and I'm being treated with protonix. I will say that I feel worse than when I went in for the endoscope and I still have the "broom handle" in my upper right abdomen. I still feel dizzy, exhausted, dazed and just plain weird. If you find out what your problem is, please do share. I'm tired of going to doctors.
    Anonymous 42789 Replies
    • September 11, 2009
    • 09:59 PM
    • 0
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  • all of my issues were caused by Tick-Borne diseases (Borrelia, Babesia, Rickettsia, Mycoplasma). Borreliosis is also know as Lyme disease.the "broom handle" pain at left rib cage in my abdomen (ULQ) was due to an enlarged spleen. it was not detected by MRI, CT, PET or Endoscopy b/c it was not enlarged "enough" to cause any concern. i no longer have this symptom.i am self-diagnosed based on research, background, symptoms and lab results. my experience getting properly diagnose with Lyme and other Tick-Borne diseases is posted at the following link:http://forums.wrongdiagnosis.com/showthread.php?t=16210i am symptom-free and doing MUCH better these days, however, i am still in treatment. i am slowly getting my life back after 4 years of ***l. it's taken 21 months of extensive antibiotic treatment, supplements & herbs, strict diet, rest and light exercise to get where i am today. Lyme treatment (Tx) is no fun. FACT: you will (and do) get worse BEFORE for you get better. if you back off Tx too soon you will relapse and head right back to the start and will most likely get worse. backing off Tx too soon will increase your chances of symptoms becoming permanent down the road.i was incapacitated when my condition peaked. the misery i suffered leading up to diagnosis and treatment was unbearable at times. antibiotic Tx will cause similar flashbacks but you must stay the course and trust that it's part of the road to recovery.. no matter how difficult it may seem. i am slowly cutting back on antibiotics in hopes to be medication free in the near future. be your own advocate and never give up searching for the cause of your unusual medical symptoms/issues.. best wishes to you all.--sonicbmx
    sonicbmx 44 Replies
    • September 12, 2009
    • 01:56 AM
    • 0
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  • I just wanted to thank you for posting your findings after so long. we all thank you for your dilligence!
    Anonymous 42789 Replies
    • February 9, 2010
    • 10:47 PM
    • 0
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