Discussions By Condition: I cannot get a diagnosis.

Abdominal pain and swelling. Help!!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Cleo66
  • January 22, 2008
  • 05:38 AM

I am a 41 yo female. I have had abdominal problems for several years now. My gallbladder was removed about 7 years ago. I have had uterine and ovarian problems since a teen and in 2000 had a complete hysterectomy. 2 years ago I had a barium enema and an EGD. The enema showed a couple of diverticula but my MD said there was no infection or inflammation. The EGD came back normal. Last year I had severe chest pain. I was taken to ER, full work-up and treadmill done and no problem. I am overweight. I am not diabetic, do not have high BP, and cholesterol is great. I was born with one full kidney on the right side. The left side is just an underdeveloped stub. I do show minimal protein in my urine but MD does not seem concerned with this. I have been tested for allergies and I do have allergies to chicken and shellfish. I have been staying away from those but when I do eat them, I never have these types of symptons. I was just seen in the ER Friday Jan 18. Starting Jan 12, the left hand side of my abdomen middle to upper area started having a severe cramping pain. It has felt like stabbing stinging pain. My bowels have been pretty normal. No diarrhea or constipation. I have noticed that my bm's have either been an extreme amount or a small amount and have the consitency of wet mud. When there is a large amount, it usually leaves residue in the toilet. I am also having severe swelling in the abdominal area. Although I am overweight, my weight has stayed consistent and I have never had this type of abdominal distention. My belly is swollen mostly from the middle area just under the breast bone to the left side. I am also feeling cramping pains that radiate around the left flank side and go down my leg and up my left shoulderblade. I have noticed severe skin sensitivity in the abdominal area and legs. The sensation reminds me of a kidney infection although none was found. The tests I received at the ER were an abdominal CT scan, full blood workup and urine ck. The Dr did inform me that a lump was incidently found in my right breast that I should have followed up but no diverticulitis, hernias, inflammation or infection was found. I am at a complete loss. There does not seem to be a correlation to eating. The symptoms seem to remain the same. It is to the point now that I cannot even sit up because my abominal area is hitting against my breastbone and causing excrusiating pain. I have had verry few episodes of very mild nausea but no vomiting. Over the last couple of days I have noticed some slight heartburn and mild chest discomfort. These are not usual symptoms for me. I have tried researching my symptoms but they don't seem to match anything. I'm sorry this is so long. I hope someone has some ideas. Thanks in advance.

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  • Insist your doctor do blood test & a 24 hour urine test for "Porpheria". It will take time for the results to come back, only one or two labs in the US are equiped to test for this. However, you can do an "informal 24 hr test" yourself. Collect a morning sample of urine. Place it in a indoor window in direct sunlight. Return 24 hrs later. When you check on it the next morning, if your urine has turned purple, light pink, or reddish, your almost certainly have Porpheria. If it does show you have it, then the lab tests will serve to confirm it. Go online, google Porpheria, and check out your symptoms and see what you think.Best of Luck.M&O
    MaddieOscar08 8 Replies
    • January 22, 2008
    • 06:23 AM
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  • Thank you so much. I certianly will do that.
    Cleo66 1 Replies
    • January 22, 2008
    • 06:24 AM
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  • No problem. If your "informal" home urine test does not change color, continue to follow up with your doctor anyway, just to be sure, requesting the blood & urine tests to be done. However, the only other possible thing that I can think of is looking into B12 absorbtion deficiency, or "Pernicious Anemia." People usually test negative for anemia with this disease, it's wierd. It's just a thought. It couldn't hurt. Go online, google it and see what you think. One person on here actually wrote a book about it titled, "Could It Be B12?" due the huge amount of patients being misdiagnosed, the author is an RN (no, it's not me:). It's amazing, but you can actually die from this. Apparently, once diagnosed, it's regarded as extremely serious. The author mentioned that the only true and reliable test for this is something called a "Methylmalonic acid test". This is not the norm, so it has to be requested, otherwise a false negative can be produced. I went on line and I am in the process of purchasing the book now from Amazon. Best of Luck.M&O
    MaddieOscar08 8 Replies
    • January 23, 2008
    • 02:49 AM
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