Discussions By Condition: I cannot get a diagnosis.

abdomianl pain for 2yrs no dx

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: danifrani
  • February 18, 2007
  • 06:27 AM

I have also posted under gastrointestinal...This all started June 2005 with dizziness all labs came back normal and was referred to ENT who did CT and adv that I had labrythnitis and that I would be fine in a week 8 weeks and still not fine. Saw Neuro who did EMG, CT, MRI all normal and adv BPV benign positional vertigo. Along with being dizzy I was nausous and vomiting. Aug 2005 I had extreme lower left abdominal pain went to er and was adv that I had the stomach flu and was dehydrated all tests were normal. GP referref to GYN who thought possible endomitriosis. Many forms of birth control tried with little releif and had laprascopy Nov 2006 which showed everything was normal and was referrred to GI. GI did colonoscopy which came back nornal and was adv that its nothing gastro and is not IBS and will not due endoscopy. I am constantly nausous and have no appetite. I vomit at least once a week especially after eating. Things are just getting worse I have no desire to eat because when I do the pain will either increase or I will vomit. So for the most part I dont eat. I go thru boughts of loosing and gaining as much as 15 lbs in a week. The pain is pretty constant and percocet was my only releif..now taking ultram because I cant work on narcotics. My GI has dismissed me and will not test for anything else and my GP feels I am depressed. I feel that no one is concerned but me and I have given up on local drs and am now traveling to NYC to see a new GI who was highly recommended. He is planning an endoscopy and we have tried a few IBS meds with no relief. It is severly affesting my dailey life including work. If anyone has any suggestions or ideas they would be greatly appreciated.

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9 Replies:

  • is it vomiting and diarrhea or just vomiting?? does it help if you eat small teeny meals more snacks really... not even meals... have your hormone levels been checked?Sounds like me... I'm on year 10
    prettyprettypumpkin 47 Replies
    • February 18, 2007
    • 08:00 AM
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  • Sorry you are having to go through all this. I think every woman gets the depression dx , like a slap on the wrist and gets sent home to suffer in silence. HAve you been tested for Lyme and its co infections?? Parasites?? Its not tested unless it is suspected. MAny have been bitten by ticks and never have the rash, so they don't know they have it....All the other tests come back normal. How abt food allergies, like gluten or dairy? Or too much yeast? A few more thoughts for you..I hope something I said helps, you to feel better.
    Anonymous 42789 Replies
    • February 18, 2007
    • 00:32 PM
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  • The above poster is absolutely right about Lyme and co-infections. But beware of tests because they are very unreliable and the CDC says that Lyme is a clinical diagnosis based on symptoms because of the poor testing.My daughter has suffered with a very similar problem to you and we spent almost 3 years trying to find out the problem. It turned out to be bartonella (also known as cat scratch disease) and it manifested in her stomach. We had many many doctors tell us that it couldn't be that because a) the test was negative and b) she didn't get the typical rash.
    Anonymous 42789 Replies
    • February 18, 2007
    • 02:54 PM
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  • There are a lot of digestive conditions the doctors know how to look for, but there is a whole group of them that appears statistically common and grossly mis-diagnosed:Without a doubt, the most common curable cause of these types of symptoms in chronic presentation is an IgG food allergy, usually termed "intolerance." I think this term is a gross understatement, as the condition results in multiple system disorders from nerves to psychology to cancer and a whole list of auto-immune disorders involving chronic pain and fatigue.Most allergy tests are looking for quick response allergies driven by the IgE catalyst and the only commonly used IgG test is looking for wheat/gluten-specific antibodies. These IgE reactions are easy to find because they usually involve so much sneezing hacking and choking that allergy is visibly detectable by completely untrained people.However! A large group of people who have tested positive for IgG gluten tests present anecdotal evidence that they also have IgG style allergies to non-gluten foods, typically: corn, milk, soy, potato, tomato, and any of the other hundreds of foods that create more easily recognizable IgE reactions. Blood testing is extremely lacking in this realm of allergy. Many people who do not have an IgG reaction to gluten are turned away, only to later find out on their own they have an IgG style reaction to corn or milk or something more rare.It is extremely difficult to follow an allergy-free diet in the modern food production situation before you know which specific allergies (if any) affect you. Small amounts of unseasoned chicken, rice, certain fruits, and plain vegetables is usually a good allergy-free base diet to build on. Vitamins and medications ironically contain commonly known allergens: usually corn, milk, and soy. New foods must be added slowly because the IgG reaction can take up to 24 hours to begin and 7 days to finish from the time the offending food is eaten. In successful cases, some people may feel better immediately, or it may take a month or up to three months on an allergy-free diet to feel a difference for several reasons:The kidneys store offending amino acids for 26-28 weeksWithdrawl to morphine-like chemicals identified in commonly allergic foods can last 2-6 weeksCommon mistakes with additive ingredients in flavorings, spices, preservatives, and cross-contamination (some statistics from IgG gluten patients annual follow-up blood testing suggests about 1 in 3 people attempting a gluten-free diet are still consuming enough gluten to make immune system reactions persist. The problem surely exists for other food types too)Abdominal discomfort from chronic inflammation can persist for 6 months to 2 years, but should show some improvement before then unless serious complications have set in (commonly mis-diagnosed as lymph node inflamation or gallbladder, kidney, and/or liver dysfunction).Related skin conditions can take up to 10 years to fully resolve (the IgA skin reaction is the slowest of all, but it has been linked to reduced internal organ damage).Other medications can mask symptoms and make changes seem less significantA food diary can be useful, but you have to keep in mind that these types of allergic reactions begin at some time frame ranging from 1 hour after ingestion to 24 hours after ingestion and resolve 3 to 7 days after ingestion - this is why the condition seems like it's always present if the offending food is a common ingredient.
    Azaral 152 Replies
    • February 18, 2007
    • 05:19 PM
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  • I was told by a doc that bartonella may be what i have. Nausea has been more unbearably horrible lately. Feel like will vomit but never do -wish i would. Have to eat bcse hypoglycemic and insulin resistent. IGF-1 test shows very low i.e. like an anorexic, but I don't look the part. Did treatment clear your daughter up? Is she better. I have been sick for 12 years now....The above poster is absolutely right about Lyme and co-infections. But beware of tests because they are very unreliable and the CDC says that Lyme is a clinical diagnosis based on symptoms because of the poor testing.My daughter has suffered with a very similar problem to you and we spent almost 3 years trying to find out the problem. It turned out to be bartonella (also known as cat scratch disease) and it manifested in her stomach. We had many many doctors tell us that it couldn't be that because a) the test was negative and b) she didn't get the typical rash.
    Anonymous 42789 Replies
    • February 19, 2007
    • 04:20 AM
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  • Have they tested you for Crohn's Disease? Your symptoms sound consistent with that. Go see a nutritionist and or acupuncturist. That is the only thing that cleared up my unresolved, undiagnosed gastro symptoms. Change in diet and acupuncture helped immensely. If Tx is too expensive acupuncture schools offer very discounted rates through clinics, ie the Oriental School of Medicine in NYC.
    Anonymous 42789 Replies
    • February 19, 2007
    • 06:39 PM
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  • It's just vomitting and it doesnt matter if its small meals or no meals. I have been tested for lyme and others that have all come back negative and they will not do any retests. The last set was in April 2006. It hasnt been any specific food that trigers it and we have not thought about food allergies and the doctors probally wouldnt look into that because they think it is nothing. My new GI put me on Librax which helps with the nausea so I can eat but about an hr later I feel like vomitting. I basically eat one meal a day but have not lost much weight. Cat scratch could be very likely as my cat and I have had several disagreements which have ended with severe bites and scratches. Hadnt thought of that. I see the new doc 2/22/07 and I know he is doing an endoscopy not sure about HIDA it was a possibilty. My computer is down so I might not get back to for a while. Thanks for the thoughts and I will keep you posted.
    danifrani 3 Replies
    • February 20, 2007
    • 00:58 AM
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  • Clearly, you have become allergic to a certain food item and it could be milk. try not taking milk for a few days (at least a week). Also please note, milk (or which ever the food), even in trace quantities will give you trouble. Often it is the whey that causes trouble. Also, at a later date, if you want to drink milk in small quanitities, like say in tea or something, you could do so in between meals. And, if it is indeed milk, you'll have to aviod it althgether in the future.
    Anonymous 42789 Replies
    • February 20, 2007
    • 03:57 AM
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  • It seems that the problem is my gallbladder I had the HIDA scan it came back at 6% there are no stomes its just not function so I am having it removed 3/27/07 and hopefully this will end all or most of my problems...as for a milk allergy I never drink as a baby I was on soy formula and never drank it as a kid because I was allergic but these symptoms dont match the what happens when I drink milk.
    danifrani 3 Replies Flag this Response
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