Discussions By Condition: I cannot get a diagnosis.

A whole family illness undiagnosed...

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: voodoopunchie
  • September 1, 2009
  • 05:48 PM

I am a 27 year old female, my aunt is 52, and my mother is 45. I have two other aunts who experience symptoms as well, but not with the same sort of severity as the three of us. My mother, and my aunt and now myself all seem to have the symptoms listed below, although individually we don't each have every single same symptom. We believe that it is a single illness causing these problems, but because of the variety and randomness of symptoms they have been diagnosed as single illnesses. The symptoms seem to come and go for me from the time I first noticed them (specifically the first two categories and the numbness) but they are getting more frequent bordering on constant. The fatigue is the worst for me at this point. There are days and sometimes whole weeks where I struggle to do the simplest things like showering, cooking, and cleaning because I'm so exhausted and weak. My mother is homebound, and my aunt is now bedridden. I don't want that to be me in ten years, but I can't get anyone to take me seriously. We've been told that it's the weight, that it's depression, that there's nothing at all wrong. My aunt has lost all the weight, and is still sick, and no matter what my life situation is or how I feel I'm not getting better either and the anti-depressants didn't help. I've tried researching connective tissue and autoimmune disorders, but I'm not having a lot of luck, and I can't afford to go be an human pincushion just to be told that I'm fat and depressed. If anyone has any ideas I would be so grateful.

From Birth:


Beginning in early teens especially after illness with mono, Scarlet Fever etc:

Knee, Ankle And/Or Hip Dysfunction And Pain
Muscle spasm, Especially In The Back
Clumsiness, Easily Injured
Depth Perception issues
Muscle Fatigue, Weakness, Shakiness
GI Problems (reflux, spastic colon, IBS)
Extreme Weight Gain
Skin conditions Like Boils, Acne, and Eczema

In Mid Twenties:

Brain fog
Trouble remembering (especially short term and words)

In Adulthood (30+):

Spinal Problems (lack of cervical curve, calcium spurs, scoliosis, and compressed disks)
Joint Pain Everywhere
Elevated White Count
Masses (Thyroid, Kidney, Shoulder, Wrist, Ovary, Uterus)
Nerve Pain That Feels Like Frostbite (slow progression from fingers and toes upward)

Ambiguous Pain Everywhere

Specifically my symptoms:
Numbness over my whole body and face that is incomplete… I can feel the sensations, but barely and they feel like they’re coming from the wrong place.
Slightly slurred speech when having an headache

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3 Replies:

  • You may want to see my comment at http://forums.wrongdiagnosis.com/showthread.php?t=63296 - not related to your problems, but I explained there how a Chinese Traditional Medicine (TCM) doctor has helped us. I believe this is what you need.
    Curly Stooge 319 Replies
    • September 1, 2009
    • 11:23 PM
    • 0
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  • Were you living together when this all happened? Did you share living quarters, food, water? Has the house been checked for toxic house syndrome? What is your water supply? Well or municipal water?
    LINENUP 122 Replies
    • September 2, 2009
    • 03:06 AM
    • 0
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  • If it seems to run in the family have you ever considered seeing a genetics specialist ? I hope you find some answersxxxSamanthahttp://www.undiagnosedillness.org
    Anonymous 42789 Replies
    • September 2, 2009
    • 07:33 AM
    • 0
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