Discussions By Condition: I cannot get a diagnosis.

A ton of symptoms. Please help me out!

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: beej40
  • November 8, 2008
  • 09:06 PM

Hi, everyone! I’m a Newbie, here. I’d like to ask for your input, in hopes that someone out there can help. I’ll try to keep it as short and sweet as possible, but I apologize in advance if it seems I’m elaborating too much. I just want to be thorough……
I’m a 40 yo white female. About a year ago, I started having repeated episodes of lightheadedness. I have not fainted, but have come close many times. It’s not a spinning sensation, just to be clear. I experience this almost on a daily basis. It isn’t due to movement. I can sit up, lie down, etc., without incident. There is nothing I can purposely do to bring on the symptom, and nothing I can do to stop it. In the past year, I have developed an overactive bladder, hypothyroidism, heel spurs, irregular and heavy menstrual cycles, and was more recently diagnosed with TMJ and Epstein – Barr.
About two years ago, I had vnus closure performed on my varicose veins. I had no symptoms at that time. I mention this only on the outside chance it’s relevant.
About 18 months ago, I had LapBand surgery. Prior to the surgery, a plethora of tests were run – all normal. I have had no issues with the surgery. I have lost approximately 40 pounds. I take daily vitamin supplements. I am still able to eat a decent amount of food. I drink plenty of fluids. This is not a malnourishment or dehydration issue.
In addition to constant lethargy, a “pressure” in my face (especially when I’m feeling lightheaded), and a strange “fullness” in the roof of my mouth – it kind of feels like there’s not enough skin to cover it, at times, - I also have developed a pounding heartbeat. It’s not necessarily rapid or irregular…..just pounding really hard. This usually occurs when I’m at rest. I can be sitting on the sofa, or laying in bed, reading. It doesn’t occur when I’m on the treadmill, etc.
My primary doc discovered the hypothyroidism after my complaints of lethargy and lightheadedness. This was about 9 months ago. I was started on Synthroid. I have had repeated blood tests since and am within normal range now, and have been for many months. My doc then ran add’l tests to include everything from Epstein – Barr to Lyme Disease.
In the past month, I have started to develop a mild tingling in both of my arms and hands. It comes and goes, and is only slight.
Because of my varying symptoms, I have seen several doctors. I have been to two ENTs, my gynecologist, a TMJ specialist, a Urologist, a Podiatrist, and an Ophthalmologist.
Over the past year, I have had a sinus X-Ray, a sinus CT, a brain MRI, a 24 hour holter monitor, a plethora of bloodwork, a pap smear, an internal vaginal sonogram, a TMJ mouth guard, a cervical biopsy, and an EKG.
The overactive bladder is under control with an Oxytrol patch.
Now, I am sure there are several of you reading this who think I’m a hypochondriac. I assure you, I am not. I want to be well. I am finally at the point in my life where most people want to be. I am comfortable with who I am. I have a great life, and I want to be able to enjoy it.
But, a new symptom every minute I turn around is making me nuts! (ESPECIALLY the lightheadedness and the pounding heartbeat. It’s pretty scary.)
So, in advance, thanks for any input anyone has. My apologies for the blubbering.

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15 Replies:

  • Hi,Have you been checked for autoimmune disease?I know personally anxiety attacks also give racing heart and dizziness.And you had the heart monitor but what about an echo- or stress test. ENT ruled out anything with ears? and checked for Vitamin deficiencies not the regular b12 def test theres 2...hope this gives you more to look into.MAE
    mae3057 50 Replies
    • November 9, 2008
    • 02:55 AM
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  • Have you had your potassium levels checked? My daughter had these symptoms and found out she was very low but only after being admitted into the emergency room. Her recovery took a week. Have you had you hormones checked too?
    Anonymous 42789 Replies
    • November 9, 2008
    • 07:48 PM
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  • Thanks for your responses! I have had my hormone levels checked. They were normal. I have also had my potassium levels checked. I am on Paxil and Xanax. They are not stopping the symptoms. I forgot to mention that I also occasionally feel swelling in the underside of both my arms, between my elbow and my armpit....but, not in my armpit. It's noticable when I put my arm against my side, but, not if I feel for it. It's all so weird!
    beej40 1 Replies
    • November 10, 2008
    • 04:28 PM
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  • Have you had your sinuses looked at?
    aquila 1263 Replies
    • November 10, 2008
    • 08:28 PM
    • 0
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  • hmmm what about fibromyalagia? or b12 deficiency along with foliate test? Search them...so many symptoms when doctors can't find whats wrong it sometimes leads to something simple. Good luck keep us posted MAE
    mae3057 50 Replies
    • November 11, 2008
    • 03:41 AM
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  • A question to UNREGISTERED13 . What type of hormone tests are available besides thyroid and medipausal tests? If you by chance know??? very curious ?thanks MAE
    mae3057 50 Replies
    • November 11, 2008
    • 03:45 AM
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  • irregular and heavy menstrual cycles Im thinking you could have polycystic ovulation syndrome (PCOS) along with your other issues. That is probably the most common cause of irregular, heavy periods and if you have this.. it also puts one at risk of some other issues.. so if you have it.. it's important to know. Obesity is also a common PCOS symptom as it affects ones metabolism. I myself have PCOS thou my hormones are in normal range, they are in reversed rations so hence most GPs wouldnt have picked it up. I had to go to a doctor who specialised in female issues (gyno) who noticed my ratios were wrong. Then an ultrasound was used to confirm the issue. I suggest for you to ask for a referal to a gyno over the period issues.
    taniaaust1 2267 Replies
    • November 11, 2008
    • 06:16 AM
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  • I reread your post. Get checked for celiac disease. Contrary to what many physicians believe, you *do not* need to be thin to have celiac. It can occur in obese people as well, and the theory behnd that is that some people may overeat to compensate for nutritional deficiency. http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm Also: http://www.bmj.com/cgi/content/full/330/7494/773
    aquila 1263 Replies
    • November 12, 2008
    • 08:37 PM
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  • Sounds like auto immune to me I'm also hypothyroid and have auto antibodies. Symptoms can be anything from swelling around the jaw, burning sensations in the throat, dizzy/lightheaded, joint pain, fatigue, headaches numerous symptoms. Auto antibodies (self against self) basically means your immune system fails to recognise normal cells and attacks them which is when you get the symptoms. Tends to come in phases and can last for weeks or months then goes and you can feel fine for weeks/months then it starts up again and the symptoms return - and not always the same symptoms. Get your doctor to do a blood test for auto antibodies and take it from there.
    maggiemay 68 Replies
    • November 12, 2008
    • 11:32 PM
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  • Gastric banding surgery probably removed the parietal cells that make intrinsic factor. Intrinsic factor is absolutely essential for absorbtion of B12. It doesn't matter if you are taking B12 supplements , they won't be absorbed without Intrinsic Factor. The B12 deficiency would give you anaemia (weakness and lightheadedness) and it would also give you the tingling sensations.This is called pernicious anaemia.
    gungwane 62 Replies
    • November 13, 2008
    • 11:56 AM
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  • while reading your post, all i kept thinking is " this is me ". I have so many of the same symptoms!!! I too have seen numerous doctors, Have had so many tests, but not really any diagnosis. They've tried migraine meds, and told me to try paxil, but nothing works. I have lost total control of my life. Not even able to drive, dr. pulled license because i feel faint everyday, almost all day. I'm down to 118 lbs and i'm 5'7. Sorry i have no answers, but just thought i'd let you know you are not alone. I believe what you're feeling...and i don't think you're a hypochondriac or losing your mind.
    Anonymous 42789 Replies
    • November 13, 2008
    • 07:28 PM
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  • It is very difficult to sort through such a multitude of symptoms. Look at the most common scenarios first.1. Vitamin deficiency. Even though not present initially, very common after obesity surgery whether lap band but esp. with by pass types. Need to make sure B6, B12, Vitamin D levels OK. Numbness can be caused by many dfferent things. Commonly seen with obesity from fluid retention. Try a good diuretic for several weeks like Aldactazide or Aldactone 50-100mg. Once fingers feel less tight where rings fit normally again symptoms will improve if this is sole cause.2. Light-headness could be due to some low blood sugars. Maybe only sometimes causing some of your symptoms. this will typically happen between meals. Watch foods with a lot of carbs. May patients have reflux after lap-band which can cause many chest symptoms and stimulate palptations. Trial of prilosec would be helpful. Palpitations can come as well the more you think about why you are having such a multitude of symptoms. Wath the caffeine as well. make sure drinking enough water.3. Sleep apnea is very common and causes a multitude of symptoms
    Anonymous 42789 Replies
    • November 14, 2008
    • 05:02 AM
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  • maybe lyme disease, any rash at all or joint pain?
    Anonymous 42789 Replies
    • November 14, 2008
    • 07:00 AM
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  • Why does everyone on this site seem to think lyme disease is the solution to all problems ? I'm guessing (cause I'm a med student and have never heard of it) that it has a whole whack of symptoms that could apply to just about anyone at any time. such as - tiredness, headaches, muscle aches, depression. Am I right ?
    gungwane 62 Replies
    • November 15, 2008
    • 05:41 PM
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  • I have a lot of the same symptoms. I have been round and round to doctors who don't seem to know their butt from a hole in the ground. I have some sort of autoimmune issue, but my doctor has never said what other than fibromyalgia. My body is in a state of inflamation. I have high antibodies. I have been tested for lupus and ms due to a long list of symptoms one of which is bladder and bowel dysfunction. I have tried all of the medicines just about for overactive bladder. They all made me feel lightheaded, dizzy and made my heart pound. Do you still have the symptoms if you go off the oxytrol patch? I have given up on the medicine because I can't deal with all the side effects. I am still trying to figure out why my nervous system is out of whack and I'm pretty sure the doctors think I am a hypochondriac. :(
    selfhelp74 3 Replies
    • November 16, 2008
    • 05:08 AM
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