Discussions By Condition: I cannot get a diagnosis.

A Doctor can't figure it out

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: NancyF515
  • May 14, 2008
  • 05:52 PM

I am a 25 year old stay at home mom and for the past two years I have been to countless doctors trying to figure out what is going on. I have had dizziness, light headedness, headaches, fatigue, low blood pressure, weight loss and many other symptoms. My personality has now changed and I can not find the energy to do anything. I don't sleep well, I have alot of bruises and I don't know where they came from. I have had 4 EEG's, I have been checked for anemia multiple times, I have had my thyroid checked, I have had an MRI and countless other procedures. I am an insulin dependant diabetic and am being treated for "epilepsy" because they don't know what else to call it. I have memory loss, confusion, blackouts, vision changes and palpatations. I desperately want to know what is going on. My CBC's have all come back normal and they credit all of this to me exaggerating my illnesses. I have been taking Zoloft for 8 years and have never had any problems with that. Please someone read this and help me to figure out what is going on.

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5 Replies:

  • I am so sorry to hear about what all you are going through physically and I'm especially sorry that you are having to deal with physicians thinking that you are exaggerating! That is absolutely horrible... The initial thought that came to mind in regards to your symptoms is dehydration. Have you been tested for this? (And I am not referring to simply not drinking enough water!) Dehydration can cause all of your symptoms ("dizziness, light headedness, headaches, fatigue, low blood pressure, weight loss"). (Also, I would assume if you are not hydrated enough it would make the healing process of sores and bruises that much more difficult). Dehydration can be a systemic illness with several underlying causes. First of all, the fact that you are diabetic right away points to adequate hydration complications. Diabetics tend to be more prone to dehydration. In addition, if you are dehydrated, the SSRI can potentially make it worse (in addition to the consumption of any caffeine or alcohol). There are also several other factors (such as bacterial/viral infections of the gastrointestinal tract that can cause it. I would recommend speaking to your physician about trying to test of the levels of water in your body, or see if their is a way in which they can test how well your cells are absorbing water. I truly hope you are able to figure out what is going on soon! Best of luck!
    GD2005 61 Replies Flag this Response
  • Have they checked your adrenals. You have alot of symptoms that could be cause by something like Addisons. Hope you are able to get some help soon. I know what if feels like to be sick and not know what the cause is... Good luck...
    Anonymous 42789 Replies Flag this Response
  • Thank you both so much for your reply. I was diagnosed a few months ago with a very light case of dehydration and I had typed in my symptoms to Wrongdiagnosis and Addison's was one that caught my eye. I am just so tired of feeling like whatever is wrong with me is going to be my demise and that they won't figure it out until it is to late... Anyway, thank you again!! I welcome ANY INPUT ANYONE HAS!! I think I am going to call a new PCP and ask for a complete work up and mention dehydration and Addison's. Thanks again!
    NancyF515 2 Replies Flag this Response
  • Adrenal burnout is commonly misdiagnosed...you should have your cortisol levels checked - I believe it is a 24 hour urine collection... Also, docs check for anemia all the time but they are not thorough in their testing. You should have your b12 levels checked as well. B12 deficiency can cause a host of problems. Are you taking any good multivitamins? Vit C is a must, with citrus bioflavenoids to help with the bruising. A good multi that is FOOD based may be very helpful. When allopathic medicine offers you no answers - look to a holistic approach. A good naturopath, Oriental Medical doc, or other holistic practitioner may help you get your life back! I cannot tell you how many of my patients with chronic, undiagnosed (and some diagnosed) illnesses who come to see me for acupuncture...it is often the only real help they get!Best wishesDOM
    acuann 3080 Replies Flag this Response
  • I have had dizziness, light headedness, headaches, fatigue, low blood pressure, weight loss and many other symptoms. My personality has now changed and I can not find the energy to do anything. I don't sleep well, I have alot of bruises and I don't know where they came from. and am being treated for "epilepsy" because they don't know what else to call it. I have memory loss, confusion, blackouts, vision changes and palpatations. You have very classical chronic fatigue syndrome symptoms (also called chronic fatigue immunity dysfunction syndrome CFIDS). I suggest checking out http://wwcoco.com/cfids/bernesx.html eg 86% of CFIDS patients get low blood pressure, seizure like eposides occur in 70% of people with this and personality changes occur in 55-75% of CFIDS patients. Sounds like you have enough CFIDS symptoms to get a fairly easy CFIDS diagnoses. Most doctors thou (95%) are not at all up to date with this illness and most have never diagnosed a patient with this.. ..so studies have shown that 90% of CFIDS patients are undiagnosed and trying to seek a diagnoses. The average time it takes for diagnoses with this is 7 yrs! (thou it's getting better). (in my own case..it took 10-15 doctors before i got CFIDS diagnoses). You need to find a doctor who specialises in CFIDS (also called chronic fatigue syndrome). .. A third of CFIDS patients have abnormal cortisol issue (often just below the normal ranges.. but can be jumping from high to low.. adrenal dysfunction). So i like the others also advise you to get your cortisol tested. In CFIDS patients it's usually the morning cortisol which is found to be low. (thou sometimes the cortisol abnormality is picked up in 24 hr urine sample). The dizziness of CFIDS.. is said to be caused by low blood volume.. so one is often advised to up ones salt intake. Things like POTS and postural intollerance (get more dizzy when standing still) are very common thou the dizziness can be affecting at any time. A good CFIDS website is www.immunesupport.com
    taniaaust1 2267 Replies Flag this Response
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