Discussions By Condition: I cannot get a diagnosis.

8 yr old hypothyroid but overheats

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: klclaussen
  • March 9, 2009
  • 07:32 PM

Help! My now 8 yr old was born hypocalcemic. She was in NICU for 11 days when they told me she was ok now and they did not know the reason for her to have a low calcium count. She was hitting all her mildstones on time but she was very delayed in getting her teeth and hair. When she was 1, she started waking up in the middle of the night saying her stomach hurt. The doctors kept telling me that nothing was wrong and that she was looking for attention. I knew better than that and found another doctor. The new DR found a trace amount of blood in her urine but nothing else. As luck would have it, we had to change Dr's again. This time, this doctor suspected she was passing kidney stones and had a CT done. No kidney stones but had a stone in her appendix. Had that removed when she was 18 months old. Still pain, but not as much, but was told that now she had hypercalcuria. Fast forward to age 5. Had severe swollen glands in neck. Had Mono. Spent whole summer in the AC because she was drained all the time. Had the appearance that she was getting heat stroke. I thought it was an after effect of Mono. When we went to the Dr for a sore throat, I mentioned the episodes that she was having and was told that is not related. (I'm trying to make this short). Dr suspected hyperthyroidism but was surprised to find out she has hypothyroidism. Been on Synthroid for over a year now and still trying to get the levels regulated. My problem is that she still overheats. We had our first 80 degree day here and when she came home from school, she went right to bed because she had gotten too hot during recess. I've been to the Dr about this so many times that I feel like they don't care anymore. She does sweat a little, but no doctor is that concerned. I don't know where to turn. We moved out of state and now have another doctor. I feel so sorry for my daughter. She has a bunch of little symptoms that is causing havic in her life. Does anyone have any suggestions? What other test can I ask them to do? Everyone wants to sit and wait except us. Thanks!

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2 Replies:

  • Have they checked her PTH levels? I was thinking since she has hypercalcuria, that she could have hyperparathyroidism. It causes so many horrible symptoms. Try googling in if you are not familiar with it. There is alot on the net about it.
    Anonymous 42789 Replies Flag this Response
  • Her PTH levels were 29 and the calcium for PTH was9.6. This was taken last April. Is it possible to have hypothyroidism AND hyperparathyroidism?
    klclaussen 2 Replies Flag this Response
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