Discussions By Condition: I cannot get a diagnosis.

8 Years of arm pain HELP!!!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: cliplove
  • March 17, 2009
  • 03:52 AM

I am a 24 year old female. I have been having trouble with my left arm for about 8 years off and on. My left arm starts with real strong shooting pain between my shoulder and elbow. My hand starts feeling numb tingly and turns blue. I have had a venus doppler I think is what it was called that turned up nothing, xrays and a mri that all came back fine. I was tested for a pinched nerve that was fine. I had a Ekg (i think) that was normal also. (None of these while my arm was actually in pain) My dr. told me his best guess was Raynaud's but it just doesn't fit the same coloring and my arm doesnt do it in only when its cold actaully the summer is when it first started happening. Anyways I also Have been having Ocular migraines as of lately and I didnt know if that has any connection. I hope that someone can help me. I have been going through this for a long time and want an answer.

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3 Replies:

  • cliplove,Please take a look at this site. Does it sound like what you are experiencing?http://www.arthritis-treatment-and-relief.com/shooting-pain-in-joints.html
    Beth56 272 Replies Flag this Response
  • cliplove,Please take a look at this site. Does it sound like what you are experiencing? I looked at them but none of them sound like what is wrong. But Thanks for the help. If you have anymore leads i would appreicate it.
    cliplove 1 Replies Flag this Response
  • Does your hand ever hurt first, then shoot up your arm into your elbow? Do you have pain in your wrist? You sound so much like what I went through. I had arm pain (extreme),for years. I got to where I couldn't even hold a glass of water. I had so many test done. I even had rotater cuff surgery on my shoulder but the pain got even worse. Couldn't do physcial therpy because from my elbow down the pain was insane. I ,after 6 years of test.,was diagnosed with a bone disease called Madelung's Bone Deformity. As years have passed my hands are looking bad but the pain is so unreal I could cut my arms off just to rid myself of this pain. You can type in under google and bring up alot of info on this. Have you had a tomography? This is a very rare disease, won't kill you but the pain makes me wish it would. Good luck, and maybe you will want to check out the site.www.Madelung's Bone Deformity.com p.s. after typing today I will not be able to use my hands for a few days.
    greenleaf 9 Replies Flag this Response
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