Discussions By Condition: I cannot get a diagnosis.

8 year old is incontinent...HELP!!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Harmonium
  • February 2, 2009
  • 06:08 PM

I'm really worried about my niece. She is 8 years old.

Last year, she was diagnosed with ADD. This diagnosis was based on her not paying attention in school, not being able to concentrate. I don't agree with the diagnosis, but I have accepted it. She has been placed on Vyvanse to treat the ADD, but there have not been real lifestyle modifications. Her house, her room is always a total disaster. I would be scattered if I had to live like that too. She does pay more attention on the med, it does help her concentrate. But...taking stimulants helps me concentrate too, and I'm not ADD. I'm just not convinced the benefits of this diagnosis and treatment outweigh the side-effects. But, as she is not my child and I just offer the help of a caring Aunt...it's not up to me.

She is underweight and now has little or no appetite. Well, maybe not underweight, but she is the smallest girl in the grade. She is very fit; she is involved in many sports/recreational activities that keep her active. But she has trouble maintaining her weight. She is hyper now, where she was not before. She is also developing increased displays of anxiety. She's only 8!! She has always been a bit reserved and somewhat of a perfectionist, but now it's out of control. It seems all situations make her nervous and she's just not happy unless it's 'perfect'. She is very intelligent and a bit of a know-it-all at this age. Could this just be an expression of anxiety? Is the increased anxiety a side-effect of the ADD medication? How do we tell if it's a side-effect or just the way she is?

The real problem is now with incontinence. She has, within the last week, not been able to make it to the bathroom in time. She says she doesn't get the urge to go until it's too late. She has never before wet her pants (post potty-training, that is). It happens during the day, never at night while she sleeps. Could this be unrelated to the ADD and just be a bladder infection? She states that it does not burn or hurt to urinate. It also seems like she has a good output...as in, she is urinating a normal amount, not just a dribble or problems with not voiding completely. But, she is very much embarrassed by this problem, so it's entirely possible that she is hiding symptoms.

When it happened while I was baby-sitting yesterday (which I do often), she had a drink and immediately--within 2 minutes-- wet her pants. It was almost like the drink went straight through her. Before I gave her the drink I asked her if she had to go, she said no. Of course, I should have taken her to the bathroom anyway, but it had only been one hour since she had last voided. How can the urine build so much in one hour (without food or drink until mere minutes before the issue) that she just can't hold it?

My brother, her dad, thinks this is a sign of diabetes. We have absolutely no family history of diabetes and she has no other symptoms, so my thinking is that it's either anxiety or a UTI. What questions should he ask the doctor to rule diabetes in or out? What test need to be done, just a glucose? Does she have to fast for that test to be accurate?

They are not taking her to the doc until next week. What can they ask the doc to help her the most? What tests can be run? Any suggestions? We are a very close family...I can't stand to see her suffering. What can I do to help?

I really appreciate any and all replies. I would be happy to answer any questions I can to get to a solution for her. Thank you very much!

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3 Replies:

  • First of all, here is a list of side effects to the med she is taking, from www.drugs.com (a GREAT resource for medications and their side effects and possible interactions that every consumer should know about!):Possible side effects of Vyvanse :All medicines may cause side effects, but many people have no, or minor, side effects. Check with your doctor if any of these most COMMON side effects persist or become bothersome:Constipation; decreased appetite; diarrhea; dizziness; dry mouth; headache; increased sweating; mild irritability, nervousness, or restlessness; nausea; trouble sleeping; unpleasant taste; upper stomach pain; vomiting; weight loss.Seek medical attention right away if any of these SEVERE side effects occur: Severe allergic reactions (rash; hives; itching; difficulty breathing; tightness in the chest; swelling of the mouth, face, lips, or tongue); agitation; blurred vision or other vision changes; change in sexual ability or desire; chest pain; fainting; fast or irregular heartbeat; fever; hallucinations; new or worsening mental or mood changes; seizures; severe or persistent headache; severe or persistent irritability, nervousness, or restlessness; shortness of breath; tremor; uncontrolled speech or muscle movements (eg, tics); unusual weakness or tiredness.This is not a complete list of all side effects that may occur. If you have questions about side effects, contact your health care provider. Call your doctor for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088. You may also report side effects at http://www.fda.gov/medwatch. I don't see urinary issues on this list, or blood sugar issues listed. This drug does interfere with the growth rate of certain children, and causes the weight loss she is experiencing. IMO, ADD and ADHD can be very well helped by supplements and dietary changes...often medications are needed, but often they are too quickly prescribed. Essential Fatty Acids (fish oils, DHA) have been shown to improve cognitive function and are helpful for kids with ADD symptoms. There are chewable ones - you would need to shop around to find the least "fishy" tasting ones;). Also B complex is important. A good food based children's multiple may make a difference. Animal Parade is a very good quality children's supplement. Dietary changes are hard to do if the parents are not on board...cut out processed foods, sugar, sodas, and increase veggies, fruit, lean proteins. Your brother is right, frequent urination is a sign of diabetes. This should be ruled out, as well as UTI problems. She needs a urinalysis to check for infection, a fasting glucose blood test, and tests to check for nutritional deficiencies. Best wishesDOM
    acuann 3,080 Replies
    • February 2, 2009
    • 11:16 PM
    • 0
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  • I strongly urge you and anyone else who feels they or their loved ones have Asperger Syndrome, ADHD, ODD, CD, depression/anxiety, etc. to do some research on the RPAH Elimination (Failsafe) Diet. Researchers at the University of Sydney and the Royal Prince Alfred Hospital in Australia have been refining the Feingold Diet introduced in the US in the 70's. They have worked with over 20,000 patients in their allergy unit. They have found that 85% of the children with ADHD in one of their studies was actually suffering from food intolerance and was helped or "cured" by the elimination diet. Incontinence is a comorbid symptom with behaviors, etc. in conjunction with the food intolerances. Some drugs used to treat ADD actually have artificial coloring in them which exacerbates the food intolerance (perhaps why she just began dealing with the incontinence).The quickest understanding of the diet and the food and synthetic chemicals that people frequently have intolerances to can be found at http://www.plantpoisonsandrottenstuff.info/content/elimination-diet.aspx. It has saved our family. My daughter and I have the intolerances. Please, please see if it applies to your niece and give it a try for a month. You can also find info at http://www.fedupwithfoodadditives.info/, but the first link really spells out what you can and can't eat. Good luck!!!!AliciaPS We are getting over our food intolerances through AAT, so there's hope beyond a limited diet.
    AliciaJT 2 Replies
    • February 3, 2009
    • 06:31 AM
    • 0
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  • Thank you so very much for your reply! I also appreciate the link. I do think that some of this is the medication.....but her Dad refuses the possibility. How does someone tell if it's the med or just the person? They are not willing to trial the med to watch for effects. I very much agree with you about nutrition. She does have a fairly good diet (she actually prefers vegetables!), but she has the daily soda and there is much processed in her busy mother's kitchen. The world is not perfect. I convinced them a couple of months ago to start her on a quality multi-vitamin, but any other supplements are not going to happen unless the doc tells them to. She will go to the doctor and have a urinalysis and a fasting glucose. Hopefully, we will get a result on one of these test. Not that I wish any of this on her, just...it's easier if it's identifiable with a test like those. But, she won't get to go for another week. I think I'm just frustrated. I see all these things that they can do to help her with the ADD/ anxiety issues, but they just opt for meds. There is nothing wrong with meds, IMO, just.....it's not the whole answer. Lifestyle changes need to occur, and I feel like I'm butting in when I suggest so. She's my niece, not my daughter, and I find that I have to keep telling myself to butt out. Any advice when you see something that you know you can help with but you don't want to tell someone else how to raise their child? They really are very good parents, I just think they have lost their objectivity with this one. Also, Vyvanse....everything I have read suggests this is not for kids with a family history of anxiety/ mental issues. Her mother is diagnosed Bi-Polar, and we have a lot of anxiety on the father's side. Why is it okay to prescribe this for her?Thank you once again for the help!
    Harmonium 322 Replies
    • February 3, 2009
    • 03:17 PM
    • 0
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