Discussions By Condition: I cannot get a diagnosis.

8 Specialist, Countless labs & No Dx

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • October 27, 2008
  • 03:59 PM

I am 38 year old female. I started getting sick in September 2006. It started out like the flu, less the chills. I have had weakness, severe abdominal pain, throat pain, stiff lower back, neck, legs, hips feet. Numbness comes and goes on left thigh, right leg below knee, and right arm. Achilles tendons and bottom of my feet hurt so bad I have a hard time walking and can not wear shoes. Illness flares. At one point, my throat was so weak, I could not eat or drink. Right right arm and right leg swell slightly. Labs are inconsistent. Hypersentivity to the cold weather/temps - my pain and stiffness increases significantly. Positive Speckled ANA, Sed 28 Westergreen (has been lower on other labs), RF Negative, Ferritin Serum Low, Creatine Kinase Low, WBC/RBC/Hematocrit Low, Monocytes Low, Lymphocytes High, MCH high, Creatinine Low. All other labs are normal. No STDs. TSH Normal Range. If I have a good day, I will be more active. The following day (s) I will feel horrible. No diagnosis, but family doc and orthopedic doc thinks it is some sort of automimmune or connective tissue problem ? It seems my symptoms so far are not validated by my labs. Before getting sick, I was an energetic, happy, and in great shape, life of the party type person. I am here because I do not know what to do or where to go anymore.

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4 Replies:

  • Have they checked you for pernicous anemia? Do you take iron. I just noticed your ferritin was low. Your ferritin level should be above 50 ideally. Low iron can cause some of your symptoms but not all. Low iron can cause muscle weakness and restless leg syndrome (cramping and "crawling" at night). Of course when one thing is out of order the rest follows. If you are on iron and not responding to it they should do a shillings test. Just a thought.
    ariel3 4 Replies
    • October 28, 2008
    • 03:45 AM
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  • No, he has not mentioned the term pernicous anemia, but I have been on suppliments for the low ferritin. I have also not heard of shillings. It sounds like I should have labs repeated - I will look in to the shillings. Thanks for your reply.
    Anonymous 42789 Replies
    • October 28, 2008
    • 01:33 PM
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  • Possibilities: Gout - deposition of monosodium urate crystals (hyperuricemia) Retrocalcaneal bursitis (Albert's Disease) - this is the formation and inflammation of a bursa at the back of the heel between the heel bone and Achilles tendon Rheumatoid arthritis Rheumatic Fever Septic Arthritis Sero-negative arthropathies such as Reiter's Syndrome Sever's Disease Try here:http://www.plantar-fasciitis.org/achilles_tendonitis.php
    aquila 1263 Replies
    • October 28, 2008
    • 07:10 PM
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  • Have virsues and bacterial infections been ruled out? Sounds alot like what many of us have been through with Lyme and Co infections. Many symptoms,and no dx. Try www.lymenet.org/ . Just go and read a bit there and see if you think that might be some of your problem.Best wishes, ~~JerseyLymie
    Anonymous 42789 Replies
    • October 29, 2008
    • 10:03 AM
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