Discussions By Condition: I cannot get a diagnosis.

8 Month old daughter with "popping" legs

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: icesse
  • April 5, 2008
  • 09:59 PM

My daughter was born with a meningocele on the crown of her head. It was removed at 2 months and all seemed to be progressing well with her until a few weeks ago. She now wakes up in much discomfort and you can feel the bones in her legs (can't tell if it's ankles, knees or leg bones) making popping sounds and you can feel the bones moving. It is really hard to locate where it is coming from exactly. I took her to an urgent care facility (we were far from home when it began) and they felt it but had no clue what it was...and told me it wasn't an urgent care matter - see her pediatrician. We took her to the pediatrician and of course - it didn't happen while there. They also had no idea. We are going to see an osteopath in a few weeks, but in the meanwhile, has anyone ever heard of something like this?? Could this be yet another congenital issue, or just growing pains?? Anything would be helpful at this point.
Thanks in advance :)

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3 Replies:

  • My daughter was born with a meningocele on the crown of her head. It was removed at 2 months and all seemed to be progressing well with her until a few weeks ago. She now wakes up in much discomfort and you can feel the bones in her legs (can't tell if it's ankles, knees or leg bones) making popping sounds and you can feel the bones moving. It is really hard to locate where it is coming from exactly. I took her to an urgent care facility (we were far from home when it began) and they felt it but had no clue what it was...and told me it wasn't an urgent care matter - see her pediatrician. We took her to the pediatrician and of course - it didn't happen while there. They also had no idea. We are going to see an osteopath in a few weeks, but in the meanwhile, has anyone ever heard of something like this?? Could this be yet another congenital issue, or just growing pains?? Anything would be helpful at this point. Thanks in advance :) I would get an appointment with a genetic specialist.Is your osteopath a pediatric specialist? I would search for a naturopath or osteopath or homeopath or NAET practitioner who SPECIALIZES in pediatrics. I personally am not a fan of osteopaths, but that is my own experience... Does she have any other symptoms? Bruising or abnormal bleeding? Any trouble with her digestion/stools? How is her appetite? Is she thirsty and what does she drink? Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Thanks for getting back to me guys. For the first poster, we do have wireless cable and use a baby monitor. There are some towers nearby, but not nearly as many or as close as our last home. For the second poster, It is a pediatric osteopath. I am not sure what a NAET practitioner is...so not even sure what to look for when it comes to that. She really has no other symptoms, although just yesterday I noticed very small rash/skin discoloration (very light pink) on the inner area of her knees...not sure if this is related. No bruising or bleeding. She is really just drinking formula presently and she eats well...still mushed up baby foods, but nothing excessive. I will be looking into all suggestions you have both posted, so thank you very much for the help.
    icesse 1 Replies Flag this Response
  • There is something called hip dysplasia that happens with a genetic condition called Turner Syndrome. I think it would be a good idea to ask to see a geneticist along with a pedi orthopedist.
    aquila 1263 Replies Flag this Response
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