Please help with any suggestions that you can. We have an 8 month old boy who has been in hospital for a couple of months, has had a feeding tube and special formula to try to get him to put on weight (not working), he has failure to thrive, doesn't sit, doesn't hold his head up properly, has poor muscle tone. Cried a lot when he was very young but that has subsided, he has had so many blood tests done all negative, MRI's CT scans - the doctors are struggling. Please if anyone has heard of anyone else with these symptoms please let me know. He is a happy little boy who can see and hear well and can drink from his bottle. He doesn't make any attempt to push out any waste (poo) but cries after a few days so needs medical intervention to clear. He has with help from a physio started to roll over onto his tummy but does not put any weight on his legs at all.
Any help would be greatly appreicated.