Warning...this is somewhat long & as thorough I could be with anything I thought might be relevant with my situation. I truly appreciate ANYTHING anyone could offer me!!!
In January of this year, I awoke with an "annoying" lower abdominal pain that became progressively worse over the day. (the pain was mostly concentrated in my lower-left pelvis). In less than 24 hours, the pain was so bad, it brought me to tears, and I was rushed to my doctor, who thought it might be appendicitis and rushed me to the hospital.
The ER doctor immediately did not suspect appendicitis. Blood was drawn and an abdominal CT scan was ordered. The blood tests indicated that I had elevated white blood cells, and diverticulitis was suspected.
I was put on intravenous antibiotics (levaquin? and cipro?), an all-liquid diet, and I was admitted for 4 days.
The CT Scan picked up a "liver lesion"--about 1.5cm. It was suspected to be a hemangioma, but more tests were ordered, which began my ordeal.
I was refered to a gastrointerologist and a Colonoscopy and additional CT Scan was ordered.
The gastrointerologist I was referred to believed I did not have diverticulitis (my colonoscopy was normal...no diverticula to remark of) and he believed I actually had a "freak, unknown infection".
Since this ordeal began, I have bounced from doctor-to-doctor...test-to-test.
The tests and their results are as follows:
1. CT Abdomen with contrast
CT Pelvis with contrast
Segmental wall thickening at sigmoid colon...pericolonic inflammatory changes...mildly enlarged uterus...small low-density focus in left lobe of liver....small simple renal cysts...
2. CT Abdomen W/O & W/CONTRAST
CT Abdomen Pelvis with contrast
1.5cm lesion in left lobe...not typical of hemangioma
all surrounding organs normal in appearance
4. Abdominal MRI
Well-circumscribed round 1.5cm lesion unchanged fom previous CT. Representative of hemangioma, though not diagnostic
5. Nuclear Medicine Spect Hemangioma Scan
Appearance is not consistant with a hemangioma
6. Nuclear Medicine Liver Spleen Scan (99m-sulfa colloid)
No focal tracer abnormality seen at left lobe of liver which would correspond with lesion demonstrated on CT and MRI exams
7. Abdominal Ultrasound Study
appearance compatible with hemangioma though diagnosis not confirmed...other possibilities: hepatoma, hemochromatosis, fatty infiltration, metastasis, adenoma, or lipoma.
8. Alpha Fetoprotein (AFP) Tumor Marker, Serum blood test
result: 2.0 units: ng/mL reference range: 0-6.0
I have since been referred to a Liver Surgeon at Lahey Clinic in Massachusetts. I am scheduled for blood tests and an MRI next week, and an appointment with the surgeon the week following.
I feel good. The only strange symptom I'm experiencing is slightly pale stools. I'm not fatigued, jaundiced, or otherwise "ill".
I guess I'm just REALLY nervous. I've repeatedly asked my doctors what it COULD be, and they say honestly don't know. I've been told to "expect" surgery...but no diagnosis...I've been told nothing other than "We don't know"...
I am a 33 year old female. I am 5'4" and 121lbs. I've NEVER smoked a cigarette, done an illegal drug, and I've barely even taken prescribed pain-killers. I rarely drink alcoholic beverages...and haven't been intoxicated since I was 16 years old. I am relatively fit...not an athlete, but I can easily do 8 miles on my rollerblades without getting tired. I take pride in taking good care of my health. I ONLY drink water---all day every day (except for the rare alcoholic bev.). I've had 3 sexual partners my whole life---and their sexual histories passed my vigorous screening requirements...LOL
I have a tattoo and a naval piercing...both professionally done by reputable establishments---they took the instruments out of sealed packages infront of me, and then sterilized them in alcohol.
I have 2 healthy children.
I have a history of gynecological problems...a hysterectomy is scheduled for next month. I've had ovarian cysts and Adenomiosis of the uterus. I've had a history of "abdominal pains" with no diagnosis---since I was a child. (The pain often, but not always, accompanied either mild constipation or loose stools)
I've had the following surgeries:
Bilateral inguinal hernia repair
cryoblation of the uterus
I have the following questions:
1. What could this "liver lesion" be, or be caused from?
2. How possible is it that I can have my hysterectomy and liver surgery done at the same time?
3. What can I expect the recovery (time and restrictions) to be like?
If you've gotten this far without giving up on me, you are awesome, and I sincerely appreciate ANYTHING you can offer me!
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