Discussions By Condition: I cannot get a diagnosis.

7 years still no Diagnosis

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: captwife38
  • October 30, 2006
  • 04:25 PM

I have been sick for over 7 years & have had little help getting answers. I have even been to the Mayo Clinic. I have been so sick that I had a rash all over my body, blister up, fever and nobody knew how to help me. I get rashes, fever, joint pain, migraines, mouth sores, hot flashes, have had to have several surgries--- hyrestectomy, gallbladder, appendix. I'm only 33 years old. I have been diagnosed with lupus, scalet fever, bechets. They are grasping at straws. They finally told me that they know I have an autoimmune disease they just don'e know what, they are just treating the symptoms! I guess at least they are being honest!!! If anyone has any help I'd appreciate it.

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3 Replies:

  • My sister has Lupus, and apperently the disease is really hard to tack down and treat. She developed thyroid issues ontop of that, have you ever had yours checked? It helps with her hot flashes and other stuff to take synthroid. From what I have read in books at her doctors office, basically all they can do with Lupus is just make you feel more comfortable. I hope you get some answers soon.
    Anonymous 42789 Replies
    • October 30, 2006
    • 05:58 PM
    • 0
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  • I have had similar symptoms and somewhat of the same diagnosis. I have received many diagnosis such as scarlet fever, etc... There are several things I have been tested for that you do not mention that might be beneficial. Somethings you might want to check for is Lyme disease, ana antibodies this will rule out if you have lupus, MRI for MS or other neurological, sleep apnea, dysautonomia, and spotted mountain fever if you live in an area for this. Hope this might help you shorten your list. I am in the process of trying to solve this myself. If I have any luck I will let you know. By the way I have also been diagnosed with most of the above I told you and then told not. Since you have a rash I might check into the lyme disease or spotted fever.
    Anonymous 42789 Replies
    • October 30, 2006
    • 09:09 PM
    • 0
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  • I have been sick for over 7 years & have had little help getting answers. I have even been to the Mayo Clinic. I have been so sick that I had a rash all over my body, blister up, fever and nobody knew how to help me. I get rashes, fever, joint pain, migraines, mouth sores, hot flashes, have had to have several surgries--- hyrestectomy, gallbladder, appendix. I'm only 33 years old. I have been diagnosed with lupus, scalet fever, bechets. They are grasping at straws. They finally told me that they know I have an autoimmune disease they just don'e know what, they are just treating the symptoms! I guess at least they are being honest!!! If anyone has any help I'd appreciate it. Splenda (also called sucralose) causes so many horrible symptoms, including many of yours. Type Splenda or sucralose in your browser and you will be surprised at all the horrible symptoms.
    b1940gwinn@aol.com 2 Replies
    • October 30, 2006
    • 09:20 PM
    • 0
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