Discussions By Condition: I cannot get a diagnosis.

7 years of stabbing pain, any ideas welcome

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: godsgirl
  • February 18, 2007
  • 06:24 AM

Here is my saga...38years--female
*Sept 1999- developed a "sleeping sickness", low grade fever, twitching, extreme fatigue, heavy arms and legs, lack of concentration, vertigo.
This lasted for 3 months. My husband and I made jokes about nerve gas crowd control before the millenium.:eek: Sounds like something out of the twilight zone.;)
*February 2000- all of the above plus stabbing (not shooting) pain, jumping from mid forearm to toes to fingers to middle of hand to middle thigh to center of foot, not in exact order. Pain sometimes debilitating. Continued through Christmas 2000.
*2001 and 2002 became a jumbled blur of pain and bouts of depression. I was diagnosed with depression -not sadness(brought on by pain) and took meds until my pregnancy in Dec. 2002.
* During pregnancy I was symptom free and felt healthy and vibrant,
except diagnosed with Reynauds. Baby born in August 2003.
* June 2004-all symptoms except depression returned intermittently.
* February 2006- symptoms flare up lasting 3 days to 2 months.
New symptoms-- abdomen swelling, headache,rash on chest, bright red across nose and on chin, extreme hair loss, insomnia-due to pain, and so many more. I do not have the depression. Fair ups are lasting longer and friends are starting to notice something wrong. I have gained 70 lbs in 5 years.
* My doctor wants me to go on antidep's. I need to know the underlying cause and not just treat the symptoms. Advice anyone?

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4 Replies:

  • GODSGIRL~ Have you seen a neurologist yet? IT looks as if you started outwith symptoms that make you shut down...sleepy, tired, fatigued...but thencame the pain & depression, now the symptoms sound like it's getting morephysical and damaging to the body. I would take the antidepressants as youlook for the cause, Cymbalta works great for me. I have chronic pain issues,like you it brought on the depression, Cymbalta also treats pain but you sound like you need more than THat will treat. You have friends noticing something iswrong...I can see you progressively getting worse...and all your doc offers areantidepressants? Surely he sees the weight gain...hair loss...rashes, please gosee the neuro...let him look at your wiring. Prayer never hurts either!
    Anonymous 42789 Replies
    • February 18, 2007
    • 11:20 AM
    • 0
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  • Hi GodsgirlMay I suggest going back to the GP and asking him to run some blood tests which have to be done fasting. Ask for your uric acid level to be checked, bilirubin levels to be checked as there is a condition called Gilberts Syndrome which gives you diverse aches and pains and also another condition called HAEMOCHROMATOSIS all these are manageable when you know that you have them also ask for full kidney function tests and Liver Function tests. if they come back normal then ask as to which end of the scale they are on and then in a few weeks time have them redone.So many doctors want to pass these symptoms off as "Hypochondria" because a diagnosis is not straightforward. get these checked out and take it from there Good Luck. I know it is distressing but hang in there.
    Anonymous 42789 Replies
    • February 18, 2007
    • 11:31 AM
    • 0
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  • Please get tested for thyroid , Lyme disease and its co infections. You may be depressed because you are in pain and no one is helping you. The docs thought I had Ms, but no.Then they said it was Fibro and I was on antidepressants to "help with that" for 6 yrs..they did nothing for me.They had to keep upping the doses and changing antid's. 8 months ago, after a second tick bite 18 yrs later, I finally tested pos for Lyme. Lyme moves through the whole body and dosen't stay in the blood. You are wise to want to fix the cause and not mask the symptoms. If Lyme goes undetected for a long time, it affects the thyroid, adrenals and much more. I too have raynauds very badly, its said that is caused by hypercoagulation, I tried two yrs of meds for that and din't get any better. So I am more inclined to believe its thyroid, since thats the bodys temp control. Go to this site, I'm sure you will find help and info there. www.lymenet.org Hope you can feel better soon.
    Anonymous 42789 Replies
    • February 18, 2007
    • 00:19 PM
    • 0
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  • Sounds like a bacterial infection from my personal experience. Everything you describe looks like you are reading it from a lyme or co-infection symptom list! EVERYTHING from the symptoms to the flare ups. Read more at lymenet.org or canlyme.com. Post this same question there and you will be amazed at people having the exact same thing as you.
    Anonymous 42789 Replies
    • February 18, 2007
    • 03:09 PM
    • 0
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