I have a 7 year old boy with severe mental retardation, seizures, no impulse control, drooling, gait ataxia, no speech but can make lots of sound, no communication beyond walking me to what he wants, a fixation on items, and is at the developmental age of 9 months to 2 years depending on the skill. He has high and low muscle tone, can walk but does so on the balls of his feet - we refer to this as the drunken sailor walk as he can not hold still in one place without holding onto something. He is constantly into everything, and chews/bites on everything wearing down his teeth no nubs. Hearing and vision seem to be fine, but eye contact and getting his attention are a problem.
We've seen every doctor possible and still nothing...... Geneticists, Neurologists, PM&R, Behavioral Specialists, Pediatricians, Audiologists, Optamologists, etc... what I need is a "Dr. House"....
Any input would be greatly appreciated.
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