Discussions By Condition: I cannot get a diagnosis.

7 months post-op and still problems. . .now DRs say it may be Staph

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • May 25, 2010
  • 04:00 PM

I had an abdominal lap surgery 7 months ago and i have been sick ever since. I went back to the er on day 2 & day 3 post op with severe pain in my right side/back area. They told me nothing was wrong with me that it was post op pain (even though the pain was nowhere near my surgical site). I continued to call my doctor (ob/gyn - performed the surgery) about the pain. . .I was told that it was gas. I went back in to see the doctor because the pain was no better - I was told that the dermoid cyst that he removed busted inside of me and that he had to "flush" me out with saline and that the pain that I was feeling was due to irritation from the flushing of saline. The pain got worse and I was having a hard time breathing I also had lumps that were hurting me that was deep down in my abdomen. I called my family doctor and set up an appt (almost 2 weeks after surgery) because I felt that my ob/gyn was brushing me off. My family doctor did a chest x-ray and was concerned that I either had a blood clot in the lung or pneumonia. Back to the ER I went and had a csat. After hours of being there I was told that it was pneumonia and pleurisy. I followed up with my family doctor. (I still 7 months later have pain in my right side).
The lumps in my abdomen were getting bigger and more painful and they were draining yellow stuff. Each time that one of these lumps would surface and drain yellow stuff (no odor), I would also have other symptoms too such as my stool was a yellow color and odd consistency, I would have severe pain in my right side, and I would bloat up like I was 6-7 mths pregnant. I set up another appt with my family doctor (saw another physician in the practice). She was concerned and thought that i had a hernia. After sending me to the hospital again for an ultrasound, I went back to her and she ruled out a hernia and told me to followup with ob/gyn doctor. At this time the lump near my surgical site was draining thick yellow stuff - it did not have any odor.
My Ob/Gyn moved out of state and my records was sent to a new Ob-gyn. I "followed-up" with the new ob-gyn and on the first visit to him he said that it was liquified scar tissue and that I needed to be cut back open and let it drain. He cut the incision back open and left it open for a week with me packing it twice a day. It was the worst thing that I ever saw. . . After a week he stitched me back up. . .even though there were two other lumps about to "surface". . .you could feel them under the skin and they were very painful. I went back to him to get my stitches removed and by this time one of the lumps had surfaced and popped (like a zit... sorry don't know of any other way to describe it). and the incision was still draining some stuff. You can now feel a "link" between all the lumps. He said that they will get better now that the incision was drained but it may take a while. I continuously went back to him (for hormone therapy) and each visit I would point out more lumps and explain to him about the many lumps that had come and gone (by popping like a zit) and the yellow stuff that came out of each one of them. I call it yellow stuff because it does not remind me of "pus" it is a thick airy substance (kinda like thick cake frosting) and it has no oder. When I think of pus I think that it has a foul oder. Again he informed me that it will get better and that with the right hormones the lumps should go away as now he thinks that it might be endometriosis in the incision scar tissue.

Well they haven't gone away and one grew very large (my mom said it looked like a boil or carbuncle). I went back to him because this lump was causing severe pain and the looks of it was horrible. I also had another one about to "surface". He changed my HRT again and said that if the lump burst just let it drain, he said to come back to him in 3 months and if it still was not better then we may have to look at cutting me back open (yeah cause that worked so well the last time).

Well two to three day after that visit it did burst. . . the drainage included the thick yellow stuff but it also had this mucusy/bloody stuff come out that kinda looked like blood clots but more mucusy. It left a very deep hole in the middle of it . . . this happened on this past sat morning. the other lump surfaced and also popped draining the thick yellow stuff. Then there was the third lump that was deeper in my naval. It was about to pop as you could see the yellow "head". I called my Family doctor (because I now am second guessing my ob/gyn) and told them that I had a hole in my abdomen and wanted to see my doctor. My doctor looked at it and said that it needed to be cleaned (even though he said that I did a very good job of keeping it clean over the weekend). He said that he needed to get some drainage to send off for a culture. . . as this had not been done over the 7 months that the lumps had been appearing. I told him to "pop" the one in my navel and get that yellow stuff to send off too. It was going to pop soon anyways and I would rather him figure out what it was than it pop at home and get thrown away. He told me that he did not think that it was liquified scar tissue. . . he said that he thinks that it may be a staph infection and that he would know more after the test come back. I asked about if it was infection why didn't it smell bad.. .most infections smell bad. He said something about a sterile infection (I have no idea what that is). He gave me Cipro and some cream to put in my wounds (Silver something) and said that the test results should be back Wed or Thurs.
Of course I came home and did the worst thing possible and looked up staph infections on the internet. And my "lumps" look just like staff and in some cases MRSA. This has been going on since I had my surgery. I still have the pain in my right side and a lingering "choking" type of cough. . . like I am choking on my saliva. Is it possible to have staph/Mrsa that long? Is it possible that staph and mrsa caused my pneumonia? Is it possible that staph/mrsa would make me be continuously ill (couph/cold type of symptoms). Can staph/mrsa cause yellow stool? Is it possible to spread this to my family members as they have also been sick (cold type symptoms) with unexplained rashes? How do I fix this? I am a full time student fixing to complete my final semester student-teaching at an elementary school.. . should I even be around children if this is staph/mrsa? Help?!?!?!

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  • Any comments or help??? Thanks.Update: I called DR back to see if they had the results from the culture. They said that the results were back but the DR had not signed off on it yet, so they could not tell me what the results were. They said that it may be today. Maybe I am reading too much into it but if it came back staph or mrsa, I would have thought that I would know by now. The fact that they are pushing me off a day makes me wonder if it came back negative, and if it did come back neg then that puts me back at square one. . .not knowing what is wrong with me.I will let you know what the results are as soon as I find out. . .hopefully today. Thanks again.:)
    Anonymous 42789 Replies Flag this Response
  • Any comments or help??? Thanks.Update: I called DR back to see if they had the results from the culture. They said that the results were back but the DR had not signed off on it yet, so they could not tell me what the results were. They said that it may be today. Maybe I am reading too much into it but if it came back staph or mrsa, I would have thought that I would know by now. The fact that they are pushing me off a day makes me wonder if it came back negative, and if it did come back neg then that puts me back at square one. . .not knowing what is wrong with me.I will let you know what the results are as soon as I find out. . .hopefully today. Thanks again.:)Hi My daughter had a pneumonia caused by Staphylococcus aureus. It is called aureus because it is yellow colored (as is your pus) MRSA is the antibiotic resistant form of this bacteria and it is white colored.I am a microbiologist and I cultured a specimen of my daughters sputum and found Staphylococcus aureus. I told the doctor , who told me I was talking rubbish and he was the doctor and he knew best and it was not a staphylococcal pneumonia as they are very rare.Well he was wrong and Staphylococcus can spread around the body (as I think you are finding) In my daughters case it went into her mastoid bone which swelled up and constricted the veins that take blood from the brain. She was terribly close to death and was admitted to hospital as an emergency.I think your initial infection was from the surgery (they will deny this of course) The staph then moved to your lungs. As I said Staph DOES cause pneumonia.The boils and spots and abcesses sound like those typically caused by Staph. aureus. They are finding it easier to colonise tissue damaged during the operation.Hopefully you have a type of Staphylococcus aureus that is easily treatable.The organism does not smell unlike some other organisms that cause pus.I hope this helps and you get this sorted out.
    chrismia 159 Replies Flag this Response
  • Hi My daughter had a pneumonia caused by Staphylococcus aureus. It is called aureus because it is yellow colored (as is your pus) MRSA is the antibiotic resistant form of this bacteria and it is white colored.I am a microbiologist and I cultured a specimen of my daughters sputum and found Staphylococcus aureus. I told the doctor , who told me I was talking rubbish and he was the doctor and he knew best and it was not a staphylococcal pneumonia as they are very rare.Well he was wrong and Staphylococcus can spread around the body (as I think you are finding) In my daughters case it went into her mastoid bone which swelled up and constricted the veins that take blood from the brain. She was terribly close to death and was admitted to hospital as an emergency.I think your initial infection was from the surgery (they will deny this of course) The staph then moved to your lungs. As I said Staph DOES cause pneumonia.The boils and spots and abcesses sound like those typically caused by Staph. aureus. They are finding it easier to colonise tissue damaged during the operation.Hopefully you have a type of Staphylococcus aureus that is easily treatable.The organism does not smell unlike some other organisms that cause pus.I hope this helps and you get this sorted out.Thanks for your reply. I hope your daughter got better. I am glad that you gave me this info. One of the things that I mentioned to my previous doctors (I didn't mention it my family doctor. . .just forgot to) was that the phlegm that came out when I coughed was white "airy" phlegm. Which was weird to me because I am a smoker (I know, I know,I need to quit) and usually when I cough up stuff it has some color. But this choking cough only produces white airy phlegm. THe doctors just told me that it was a good sign and that it meant that there was no infection. This is the weirdest cough ever and I have been sick since my surgery. THe cough is as if I either am "choking on my on spit" or as if I swallowed something wrong . . .like it "went down the wrong tube". I have also noticed that although the cough occurs at any time, it is worse right after I eat. . .weird huh.Do you think I should stay away from people??? Can I pass it to my family or friends?Thanks again and I will let you know what the test results come back.
    Anonymous 42789 Replies Flag this Response
  • Thanks for your reply. I hope your daughter got better. I am glad that you gave me this info. One of the things that I mentioned to my previous doctors (I didn't mention it my family doctor. . .just forgot to) was that the phlegm that came out when I coughed was white "airy" phlegm. Which was weird to me because I am a smoker (I know, I know,I need to quit) and usually when I cough up stuff it has some color. But this choking cough only produces white airy phlegm. THe doctors just told me that it was a good sign and that it meant that there was no infection. This is the weirdest cough ever and I have been sick since my surgery. THe cough is as if I either am "choking on my on spit" or as if I swallowed something wrong . . .like it "went down the wrong tube". I have also noticed that although the cough occurs at any time, it is worse right after I eat. . .weird huh.Do you think I should stay away from people??? Can I pass it to my family or friends? HiThe pus could be contagious so do not share towels but there is no need to keep away from people. They can not catch it from breath.I dont really know about the airy phlem, my daughters phlem was yellow.She spent two weeks in hospital with introvenous antibiotics and is now well except her vena cava leading from the brain is permanently blocked but as she was young when this happened (8 years old) the blood now leaves the brain through smaller vessels. They wanted to investigate further but it would have meant lots of tests and although free because we live in the UK, I felt she had been through enough and we did not have them done.Best wishes for getting better
    chrismia 159 Replies Flag this Response
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