Discussions By Condition: I cannot get a diagnosis.

7 months of misery.. undiagnosed! HELP!

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • November 24, 2009
  • 10:48 PM

I am a 19yo female ive had this going on for a little over 7 months and no help from any doctor...
About two months before this started I went off of lexapro and blamed all of my symptoms that i had on the lexapro when months passed and no changes I am not so sure...
I have had an MRI a CT scan spine x rays and some blood work...everything has came back normal...
Symptoms:
head tingling (creeping sensation) on the left side
dizziness
occasional nausea
left eye feels heavy
left side of nose feels pressure
pressure on my back kinda like sumone is pushing it on the left side
pressure on the left side of my chest
arms and legs go to sleep when in the same position pretty quickly
my head almost feels like i cant hold it up for example when im sittin or standing somewhere i feel like i need to put my hand on my head to keep it up its like it feels wobbly..i know this sounds stupid but its the best way i can describe it
sometimes my hands have a tingling sensation and feel like i can really control the movements although i am
sometimes my head feels like a balloon being blown up with air and having some of the air let out and then blown up again..also sometimes it seems like chewing makes the weird head feelings get worse...
theres no pain..some of these symptoms im having are very hard to describe.
Its a daily thing and its gettin reallly old!
Ive been to 5 different regular doctors, a neurologist, eye doctor, and a physical therapist
The neurologist said i could have myofascial pain syndrome..ive done quite a bit of research on myofascial and i dont seem to have any of the symptoms (no pain is present) the eye doctor said i could be having migraines without the actual headache which doesnt make much since to me because of the pressure in my back and chest
Im just totally fed up with doctors and sick of being sick every day of my life
the doctors ive been to dont take me serious and dont even take the time to listen to everything thats going on with me...=/
hopefully someone has had similar symptoms and knows whats going on or can tell me what i need to do next at this point i feel hopeless and that im gunna have to live with these symptoms the rest of my life...
I've made a doctors appointment with yet another doctor this week and hopefully they will refer me to a different neurologist..

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2 Replies:

  • Did you go off of lexapro via doctor's direction, or was it your choice?
    Croatiamedstudent 32 Replies
    • November 25, 2009
    • 07:11 AM
    • 0
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  • I am a 19yo female ive had this going on for a little over 7 months and no help from any doctor...About two months before this started I went off of lexapro and blamed all of my symptoms that i had on the lexapro when months passed and no changes I am not so sure...I have had an MRI a CT scan spine x rays and some blood work...everything has came back normal...Symptoms:head tingling (creeping sensation) on the left sidedizzinessoccasional nausealeft eye feels heavyleft side of nose feels pressurepressure on my back kinda like sumone is pushing it on the left sidepressure on the left side of my chestarms and legs go to sleep when in the same position pretty quicklymy head almost feels like i cant hold it up for example when im sittin or standing somewhere i feel like i need to put my hand on my head to keep it up its like it feels wobbly..i know this sounds stupid but its the best way i can describe it sometimes my hands have a tingling sensation and feel like i can really control the movements although i amsometimes my head feels like a balloon being blown up with air and having some of the air let out and then blown up again..also sometimes it seems like chewing makes the weird head feelings get worse...theres no pain..some of these symptoms im having are very hard to describe.Its a daily thing and its gettin reallly old!Ive been to 5 different regular doctors, a neurologist, eye doctor, and a physical therapistThe neurologist said i could have myofascial pain syndrome..ive done quite a bit of research on myofascial and i dont seem to have any of the symptoms (no pain is present) the eye doctor said i could be having migraines without the actual headache which doesnt make much since to me because of the pressure in my back and chestIm just totally fed up with doctors and sick of being sick every day of my lifethe doctors ive been to dont take me serious and dont even take the time to listen to everything thats going on with me...=/hopefully someone has had similar symptoms and knows whats going on or can tell me what i need to do next at this point i feel hopeless and that im gunna have to live with these symptoms the rest of my life...I've made a doctors appointment with yet another doctor this week and hopefully they will refer me to a different neurologist..I feel so bad for you! I too have experienced serious side effects from taking medication. Pressure in the head, pressure in my spine, stomach pain, hot/cold mix up sensation, facial pain, nausea, vomiting, loss of arm pulse, head and upper body heaviness, crawling scalp sensation, vascular problems, peripheral neuropathy, and so on... You need to do research on the side effects of the drug you were taking. Try the National Insitute of Healths website. Have they ruled out Benign Intracranial Hypertension? I can say the earlier you get that ruled in or out the sooner you will know if the medicine caused it. Unfortunately for me I waited too long because I was living in Japan when I got sick. I can tell you that you have to push and demand to know what is going on. I have been suffering for 11 months now and have seen about 20 doctors to no avail. Do not feell hopeless, do not get depressed and do not give up! You are young and have everything in the world to look forward to. This is just a season in your life and you are having a bit of bad weather. If I can handle this crap at 45 you can do it at 19! Keep plugging and don't give up and don't give in to the pressure of being told you are depressed. Journal everything in case you find it is the medicine. Good luck!
    Anonymous 42789 Replies
    • November 26, 2009
    • 00:48 PM
    • 0
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