Discussions By Condition: I cannot get a diagnosis.

5 yr old w/cronic stomach pain & vomiting since birth

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: meljc222
  • February 17, 2010
  • 06:38 AM

My daughter will be 5 next week. She has been vomiting just about every night & day since birth... more severe at night & consistant stomach pain. The 1st yr she was born, she was in the hosp every week for this & vomiting atleast 10xs a day. She was diagnosed with GERD at that time. She was put on meds, which seemed to work....the vomiting slowed to 2-5 times a day. Over the years, the vomiting has calmed down. But she still vomits atleast 3+ times a wk. She is always complaining about her stomach hurting. She has had so many tests done, & all neg. Along the way, she has had other problems (to name a few)... 1 yrs old-- RSV & cocksackie virus.... 1yr - 3yrs-- several ear infections (resolved w/tubes in both ears).... several chest infections & upper resp infections.. last yr-- urinary reflux... right now, she has scarlet fever & last wk she vomited blood 2xs. The 1st set of blood work showed low bwhite cells... 2 days later, they were back to normal (just on the low side).

She runs a fever from 101- 104 every so often... she gets hives that come & go... shes slightly anemic... vomiting almost every day again & always in pain.

Any ideas what this could be? Shes been in pain every day & night. Since birth.... shes prob slept thru the night not more than 20 times (in almost 5yrs), because of the pain.

She goes back to her specalist next month to discuss what to do next (he cant do nothing till her body gets thru the scarlet fever). We will also be taking her to the Childrens Hosp in Penn this summer, if we cant figure it out by then.

Thankyou.

Reply Flag this Discussion

14 Replies:

  • Please, does anyone have any ideas or thoughts of what could be causing my daughters stomach pain & vomiting? Shes 5 today.... & spends most of her days & nights curled up in a ball, because of the pain... instead of running around like a normal 5yr old & is sometimes afraid to eat because of pain & the fear of vomiting. Thanks
    meljc222 12 Replies
    • February 23, 2010
    • 07:42 AM
    • 0
    Flag this Response
  • Please, does anyone have any ideas or thoughts of what could be causing my daughters stomach pain & vomiting? Shes 5 today.... & spends most of her days & nights curled up in a ball, because of the pain... instead of running around like a normal 5yr old & is sometimes afraid to eat because of pain & the fear of vomiting. ThanksHello meljcSounds very terrible for your daughter...When I read this it sounds like celiacs disease for me.Have they ruled it out?Good luck and health for your daughter!
    Anonymous 42789 Replies
    • February 23, 2010
    • 09:17 AM
    • 0
    Flag this Response
  • My daughter will be 5 next week. She has been vomiting just about every night & day since birth... more severe at night & consistant stomach pain. The 1st yr she was born, she was in the hosp every week for this & vomiting atleast 10xs a day. She was diagnosed with GERD at that time. She was put on meds, which seemed to work....the vomiting slowed to 2-5 times a day. Over the years, the vomiting has calmed down. But she still vomits atleast 3+ times a wk. She is always complaining about her stomach hurting. She has had so many tests done, & all neg. Along the way, she has had other problems (to name a few)... 1 yrs old-- RSV & cocksackie virus.... 1yr - 3yrs-- several ear infections (resolved w/tubes in both ears).... several chest infections & upper resp infections.. last yr-- urinary reflux... right now, she has scarlet fever & last wk she vomited blood 2xs. The 1st set of blood work showed low bwhite cells... 2 days later, they were back to normal (just on the low side). She runs a fever from 101- 104 every so often... she gets hives that come & go... shes slightly anemic... vomiting almost every day again & always in pain. Any ideas what this could be? Shes been in pain every day & night. Since birth.... shes prob slept thru the night not more than 20 times (in almost 5yrs), because of the pain. She goes back to her specalist next month to discuss what to do next (he cant do nothing till her body gets thru the scarlet fever). We will also be taking her to the Childrens Hosp in Penn this summer, if we cant figure it out by then. Thankyou. Was she breast or bottle fed? DOM
    acuann 3080 Replies
    • February 23, 2010
    • 09:31 AM
    • 0
    Flag this Response
  • She had to be bottle fed because of her medical problems & she's allergic to milk protein, so shes on Allimentum formula. & I had bad toxemia when I was preg., so they had to take her 2 1/2 wks early.
    meljc222 12 Replies
    • February 23, 2010
    • 05:53 PM
    • 0
    Flag this Response
  • She had to be bottle fed because of her medical problems & she's allergic to milk protein, so shes on Allimentum formula. & I had bad toxemia when I was preg., so they had to take her 2 1/2 wks early. She may also have allergies to soy, milk, wheat and others. This problem sounds like it stems from food intolerances to me. Allopathic allergy testing is very inaccurate. It may be helpful for you to do a detailed food diary to determine if there is a food trigger causing this. What is her diet like? Fresh Ginger root is excellent to help control nausea and vomiting. You can make it into a tea. I recommend something called Pill Curing tablets - this is a Chinese Patent remedy very effective for vomiting due to a variety of causes. Please consider a more naturopathic approach to your daughters illness. I would recommend a good acupuncturist/Herbalist/homeopath/NAET practitioner to get your daughter back on track. Best wishesDOM
    acuann 3080 Replies
    • February 23, 2010
    • 10:27 PM
    • 0
    Flag this Response
  • my son has had the same problem here are some things you may want to look upH-pylori (helicobacter pylori)cyclic vomiting and cyclic feversvesicourethra reflux (not to be confused with acid reflux)I had a lot of the same problems you have described the fevers and vomiting went hand and hand he was diagnosed as a probably h plori without even been tested they just went away around the age of 6 I figured it was cyclic because that is the age they usually grow out of it. He is 8 and still complains of stomach ache and recently pain when urinating with a negative UA a neighbor told me her daughter had the vesicourethra reflux and I reacserched it and his doc ordered a renal ultra sound. It does sound a lot like what you are describing contact me jessicarobles23@yahoo.com for questions or let me know what happens. good luck
    Anonymous 42789 Replies
    • February 24, 2010
    • 03:45 AM
    • 0
    Flag this Response
  • Hello meljc Sounds very terrible for your daughter...When I read this it sounds like celiacs disease for me.Have they ruled it out? Good luck and health for your daughter! Hi, thanks. Yes, they tested her for that last year.
    meljc222 12 Replies
    • February 24, 2010
    • 04:12 AM
    • 0
    Flag this Response
  • She may also have allergies to soy, milk, wheat and others. This problem sounds like it stems from food intolerances to me. Allopathic allergy testing is very inaccurate. It may be helpful for you to do a detailed food diary to determine if there is a food trigger causing this. What is her diet like? Fresh Ginger root is excellent to help control nausea and vomiting. You can make it into a tea. I recommend something called Pill Curing tablets - this is a Chinese Patent remedy very effective for vomiting due to a variety of causes. Please consider a more naturopathic approach to your daughters illness. I would recommend a good acupuncturist/Herbalist/homeopath/NAET practitioner to get your daughter back on track. Best wishesDOM Hi, thanks. I'll check all that out this week. & Ya, shes allergic to all milk products, incl soy, whey, goats, lactaid, ect.. She was tested for wheat & that came back neg. She doesnt eat much, maybe once a day & she has her formula 2-4 times a day.
    meljc222 12 Replies
    • February 24, 2010
    • 04:22 AM
    • 0
    Flag this Response
  • Hi, thanks. I'll check all that out this week. & Ya, shes allergic to all milk products, incl soy, whey, goats, lactaid, ect.. She was tested for wheat & that came back neg. She doesnt eat much, maybe once a day & she has her formula 2-4 times a day.Have you ever looked into systemic mastocytosis? It's rare, but not unheard of. I remember watching a television show with a little girl who had it and had similar symptoms. Mystery Diagnosis was the name of the show.http://en.wikipedia.org/wiki/MastocytosisI hope you find an answer soon. She deserves to feel good and have fun being a kid.
    Anonymous 42789 Replies
    • February 24, 2010
    • 03:14 PM
    • 0
    Flag this Response
  • my son has had the same problem here are some things you may want to look up H-pylori (helicobacter pylori) cyclic vomiting and cyclic fevers vesicourethra reflux (not to be confused with acid reflux) I had a lot of the same problems you have described the fevers and vomiting went hand and hand he was diagnosed as a probably h plori without even been tested they just went away around the age of 6 I figured it was cyclic because that is the age they usually grow out of it. He is 8 and still complains of stomach ache and recently pain when urinating with a negative UA a neighbor told me her daughter had the vesicourethra reflux and I reacserched it and his doc ordered a renal ultra sound. It does sound a lot like what you are describing contact me jessicarobles23@yahoo.com for questions or let me know what happens. good luck Thanks. I'll look thses up tonight. Shes running another 101 fever all day today. She had the vesicourethra reflux last yr.... & it damaged 3/4 her right kidney. 2 months ago, she had the test again & it came back neg for that reflux & they said her kidney is "looking better".
    meljc222 12 Replies
    • February 25, 2010
    • 01:55 AM
    • 0
    Flag this Response
  • I would look into systemic mastocytosis, pyloric stenosis, H-pylori, and celiac's/other food allergies. Don't give up, there are numerous diseases some of which are pretty rare. Medicine is not a perfect science and the patient and patient's family are the best advocates for the health of the patient. Flood doctors with questions and keep searching the internet at mayoclinic.com, http://www.hon.ch/HONselect/RareDiseaseAB.html, discoveryhealth.com, and other medical sites. Get opinions from lots of doctors don't stop even if you find a diagnosis that sounds comparable.
    ackerman 3 Replies
    • February 25, 2010
    • 05:15 AM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Thanks everyone. I will deff be looking all this up. I started to the other night & ruled out a couple things shes already been tested for. I am up very late every night between trying to soothe her & looking up things in books & online. Her specialist has been with her since birth & doesnt mind me going in with ideas & having her tested for things. She has been tested for several things since she was 1 yrs old. Last wk, he said they were holding a staff meeting & he was gonna discuss her problems w/them to see what to do next. Right now, we're still waiting for her to get over this scarlet fever. If we cant figure anything out by the summer, her doc is going to help us get her admitted into the Childrens Hosp in Philadelphia, Penn. Thanks
    meljc222 12 Replies
    • February 26, 2010
    • 04:22 AM
    • 0
    Flag this Response
  • Extremely like Celiacs disease or possibly Disease of Crohn. But most likely an allergic reaction to something. Have you had her tested for allergies? A special clinic can do this. Strangely allergies is something they rarely look for, I dont understand why.If you still have no answer then try homeopathy, it has worked twice for our kids when the specilaists couold no longer help, and the cure lasted they are now in late teens.Good luck, my thougts are with you.My daughter will be 5 next week. She has been vomiting just about every night & day since birth... more severe at night & consistant stomach pain. The 1st yr she was born, she was in the hosp every week for this & vomiting atleast 10xs a day. She was diagnosed with GERD at that time. She was put on meds, which seemed to work....the vomiting slowed to 2-5 times a day. Over the years, the vomiting has calmed down. But she still vomits atleast 3+ times a wk. She is always complaining about her stomach hurting. She has had so many tests done, & all neg. Along the way, she has had other problems (to name a few)... 1 yrs old-- RSV & cocksackie virus.... 1yr - 3yrs-- several ear infections (resolved w/tubes in both ears).... several chest infections & upper resp infections.. last yr-- urinary reflux... right now, she has scarlet fever & last wk she vomited blood 2xs. The 1st set of blood work showed low bwhite cells... 2 days later, they were back to normal (just on the low side). She runs a fever from 101- 104 every so often... she gets hives that come & go... shes slightly anemic... vomiting almost every day again & always in pain. Any ideas what this could be? Shes been in pain every day & night. Since birth.... shes prob slept thru the night not more than 20 times (in almost 5yrs), because of the pain. She goes back to her specalist next month to discuss what to do next (he cant do nothing till her body gets thru the scarlet fever). We will also be taking her to the Childrens Hosp in Penn this summer, if we cant figure it out by then. Thankyou.
    Anonymous 42789 Replies
    • February 26, 2010
    • 00:58 PM
    • 0
    Flag this Response
  • Extremely like Celiacs disease or possibly Disease of Crohn. But most likely an allergic reaction to something. Have you had her tested for allergies? A special clinic can do this. Strangely allergies is something they rarely look for, I dont understand why.If you still have no answer then try homeopathy, it has worked twice for our kids when the specilaists couold no longer help, and the cure lasted they are now in late teens.Good luck, my thougts are with you.Take a look at thishttp://well.ca/products/swiss-natural-sources-digestive_7014.html?ref=relprod&related_product=5363
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.