Discussions By Condition: I cannot get a diagnosis.

5 yr old sick, too many symptoms! HELP!

Posted In: I cannot get a diagnosis. 20 Replies
  • Posted By: Anonymous
  • February 3, 2007
  • 06:47 AM

My 5 yr old daughter was sick in 8/05 with abdominal pain,diahrea,nausea,tiredness,vomiting that got so bad that she was throwing up green bile, and skin rashes. She would also get fevers, some as high as 103. The doctors kept putting her on laxatives, since they thought it may be constipation, or an obstruction. After months of this, she felt better and I keep an eye on her bowel movements to make sure she doesn't get constipated. Last November she started throwing up again. No complaint of feeling sick, just after eating, she'd throw up, then she'd be better within one to three hours. The abdominal pain, and nausea came back too, and she itches her skin so bad that she gets raised welts. Drs stumped, sent to gastroenterologist, who put her on medicine for acid reflux, and possible ulcer. Now, she's been on the meds for approx 3 wks, and she still has abdominal pain and she actually stops what she's doing to clutch her stomach, and turns a little white. The abdominal pain has always been just in the area around her belly button. Last week, she started to complain of pain just under her jaw bone, and the next day, I noticed it was swollen. Took her to the dr, who also brought in the dentist to check out the spot because the lump was large, and they think its either the salivary gland or her lymph node. It's painful, no sore throat, cold, teeth problems and even though she's been on antibiotics for 5 days now, the lump has gotten larger. Called the dr who wants to wait to see her after the weekend since she has an appt with the gastrenterologist on Monday. Another weird thing I noticed a week ago was she is starting to grow pubic hair!! Could all of this be related? Please help me ! With 2 different drs, will they be able to diagnose her ? What do you think it is?

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  • just a thought but maybe she has a digestive disease like crohn's disease
    Anonymous 42789 Replies
    • February 3, 2007
    • 11:17 AM
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  • hi i wrote the previous post but i thought i would write a bit more.crohn's disease is an inflammotory bowel disease.it can affect anywhere from the mouth to the anus.normally diagnosed in late teens but can be diagnosed in children as early as 5 yrs old.most of the symptoms of crohns is what you described.u said that u took her to a gastro dr so i guess if he thought it as crohns he would of investigated it but then some drs may think a 5 yr old is too young for that disease.the symptoms your daughter has are the same as what i have pretty much on a daily basis.it can be pretty depressing illness.there is no cure but it is manageable.maybe u should go to another doctor and suggest the possibility that it could be a digestive system problem more than constipation or acid reflux(which both symptoms i get too time from time)well i hope i was a little help to you.please feel free to email me back and please keep your daughter's progress on this site. i hope you get a diagnosis shortly.it took me a few months of constant tests and hospital visits before i was diagnosed.keep your chin up and keep at it otherwise u will never know whats wrong(if it wasnt for my mum nagging the drs and constantly taking me to every dr and hospital in town and begging for me to be looked at i dont think i would ever be diagnosed.she just knew something was wrong with me)my thoughts are with you and your daughter
    trisha-joy 1 Replies
    • February 3, 2007
    • 00:15 PM
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  • Thank you! In 2005, when it first started, they tried to do a GI series but as soon as she tasted the "milkshake", she cried and refused to drink it. We were sent to the Children's Center, but when it looked like the laxatives helped, they decided not to proceed with any other tests. This time, the first time she threw up, I thought she had the flu, then the next week, again, it must be the stomach flu, but then about five days later, she throws up again. I called the doctor, but they said it was the flu and common for kids to throw up like that. We went home, and a few days later it happened again. Then on Christmas morning, I made eggs and bacon for my 2 girls, and started to make myself an omelet. My older daughter started yelling and I turned around as my little one proceeded to throw up everything she just ate. The next day, I called the doctor to say this was almost an emergency situation and we got an appt that day. They were going to send us home, saying it must be a bug and to come back in a couple weeks if she still has it. I made the doctor look up everything from 2005, and she referred us to the gastroenterologist. He did an EGD, which is the scope down the throat, and gave us prescriptions for prevacid and metoclopramide, with the follow up appt this coming monday. The medicine doesn't make the stomachache go away for her but has stopped the vomiting. She still has everything else and it kills me to see her like this. Her kindergarten teacher has Crohn's, and wanted me to make sure to tell the dr that the lump is bigger, and when she plays with the other kids, she'll stop, grab her stomach and her face gets pale or white. In 2005, they did a urinalysis, which said she had moderate leukocytes, moderate blood, and large amounts of ketones, but without the GI series, they couldn't tell anything. Is this what happened to you?
    Anonymous 42789 Replies
    • February 3, 2007
    • 01:43 PM
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  • Hi. I agree with Trisha-Joy, it could well be an IBD, Crohns or Colitis. They can be difficult to diagnose, it took 6 weeks in hospital to get my diagnosis of Ulcerative Colitis. I would advise trying to feed you daughter food that is easily absorbed, plain rice, pasta, some soup or chicken. It may also be a Coeliacs disease, where gluten has to be excluded from the diet. It may be none of them! But it's good that you are going to be seeing a gastro, as they should do some further investigations, and hopefully get it sorted. Not very pleasant for one so young I know! best wishes, and hope it gets resolved.
    blondie-25 11 Replies
    • February 3, 2007
    • 05:33 PM
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  • I'm sorry to sound harsh, but these docs sound like idiots! Did they ever do a full stool test? Did they check for parasites, giardia, e coli, candida and such? Parasites can cause pain around the navel, vomiting, and skin rash - candida too... Do you live near a children's hospital or teaching hospital? They would be better bets I think... I recommend you try to find a naturopath, acupuncturist or other complimentary medical practitioner to help your daughter. Throwing meds like prevacid and metoclopramide to a five year old is just irresponsible - these medications aren't ever tested on children and they have NO idea of safety parameters for a five year old. As for the early pubic hair, this is very troubling. She should see an endocrinologist and check her hormone levels. Cow's milk,dairy, chicken, and other meats, unless they are ORGANIC AND PESTICIDE FREE, will contain growth hormones and this is causing a greater number of young children to experience very early prepubescent signs (yes, it is rare, but even at 5 yrs old!) Please cut out all of these foods from your daughters diet. There is a very good rice porridge you can make to help her digestion heal:1 cup organic short grain brown rice4-5 cups fresh watercook over low heat 3-5 HOURS, it will make an easily digested porridge. Please get her a good quality childrens' chewable acidopholus to help her intestinal flora. A good kinesiologist or naturopath can test her for Chron's and IBS and parasites. I can't recommend this highly enough! Best of luck to you.DOM
    acuann 3080 Replies
    • February 3, 2007
    • 05:37 PM
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  • I never thought to think about the food, and the doctors never asked for a stool sample. I really hate giving her the medicine because it isn't working. I will go to the store to get more natural products. I have never heard of the growth hormones in milk and dairy. I always try to eat healthy but even that seems wrong now. I'm worried anyway because she doesn't eat that much anymore. I'll let you know what happens at the doctors.
    Anonymous 42789 Replies
    • February 3, 2007
    • 09:18 PM
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  • Perhaps a food allergy (or more than one)? Just throwing it into the mix, tho it certainly seems like a GI issue. Don't take no for an answer!! If Doc #1 can't figure it out, keep on going to the next and the next. Your daughter deserves to be treated for her condition, and you deserve to sleep well at night. Best of luck to you, I'll be thinking healing thoughts for your little one.
    inchhighpe 5 Replies
    • February 3, 2007
    • 11:05 PM
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  • Specifically ask for an Elisa food allergy test and a celiac antibody panel. My daughter went thru something similar and the gastro never really did anything when I mentioned she might have an allergy. I've since learned a lot more and will know to ask for one when we go in next. The docs are much to happy to throw nexxium at you. Another thing I would ask for is an Abdominal CT scan...my daughter's problems were in her jejeunum which they were unable to get to thru endoscopy or colonoscopy. I had to demand the CT scan which showed the erosions on her jejunum! It amazes me now that I know more that they were able to dismiss us with nexxium without going the next step further to try to find the cause of the problem in the first place. I hate doctors lately.
    Anonymous 42789 Replies
    • February 3, 2007
    • 11:55 PM
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  • You might want to check to see if she's allergic to MSG. Lots of pre-packaged foods are loaded with it. My step daughter was allergic to it. Some of the same symptoms, vomiting, pale color. Some people cannot tolerate these chemicals.
    Anonymous 42789 Replies
    • February 5, 2007
    • 11:43 PM
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  • Since nobody else seemed to address it, have you looked further into the jaw swelling? It sounds strange, but it's possible to get salivary "stones" that need to be extracted if they don't break down. And the misc. hair growth sounds like a hormonal problem, which could just be a symptom of a wider disorder. Sorry I can't be of much more help. Best of luck!
    deadlysauce 67 Replies
    • February 6, 2007
    • 04:07 AM
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  • There is another thread about simular symptoms on here, I think the title is Severe Abdominal Pain. There are about 20 people all experiencing the same symptoms as your daughter. I had symptoms as a child but they were more sporatic then. I have had almost every GI test available and still no diagnosis. Multiple hospitalizations due to pain and symptoms. Chronic vomitting. No patterns. The swelling under her jaw may be a goiter, a swelling caused by thyroid problems also causing pubic hair growth. I was recently diagnosed with hypothyroidism. While thyroid meds did make me feel some better all around, it has not stopped my abdominal/colonic symptoms. I wish you and your daughter the best. I will contact you if I get a clear diagnosis.
    Anonymous 42789 Replies
    • February 7, 2007
    • 08:00 PM
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  • Hi,Had to put in my 2 cents. I do not know about the Gi problems but last summer my daughter ( 7 then ) had a lump on her neck the size of a pea. She said it didn't hurt and was off to an amusement park with my mother in law. About 4 hours later, my m-i-law called and said she was laying on a blanket sleeping and the lump got bigger! Well, I know my child and if she is on a blanket at an amuzement park then somethoing is wrong. I went picked her up and she looked terrible. Was crying and said it didn't hurt but was uncomfortable. Went to Children's Hospital and at first they though strep. Did the fast strep test and was neg. Another 3 Dr.'s came in and came to the conclusion that she had an infection in her lymph node!!! I never heard of this. Your lymph nodes hold your white blood cells and release them to go and fight infection. However, the infection was in her lymph node so the sells were multiplying to fight. It could have gotten very sever. Sometimes don't grow as fast as hers. I sat up all night as they said if meds didn't work it could grow to point of blocking her airway! Two days later she was back to normal.. I cannot remember the med they gave her. I hope this helps. Good Luck
    miserableMOE 52 Replies
    • February 8, 2007
    • 00:50 AM
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  • Thank you to everyone for your replies! She has now gone to the gastro dr, who ordered an upper GI with small bowel follow through, and an abdomen ultrasound, which we had done today. I'm really proud of my girl because she didn't put up a big fuss over the barium and drank it( took sips for awhile). We don't have another appt with the dr till next month, but I'll be calling next week to get the results. She had a really bad episode 2 nights ago where she was crying and holding her stomach(the worst she's ever complained), and wanted her temperature taken because she thought her head was hot. No temp. Two hours later, sleeping, checked her and she was boiling, got her up, more meds and cool cloth. As to the lump, went back to the primary dr, had them check the lump that had grown and asked them for another med for her since the one they gave her wasn't working. They changed from amoxicillin to augmentin, and got me an appt in 4 days with an ENT dr, and another appt with her primary the next day for the early hair. We have changed our diet here too. I forgot to ask her primary for the celiac test and the other test but will tell them on the next appt. I'll keep you all posted on the results, and anyone with any more suggestions, concerns, or ideas, please post it. All the posts have been great.
    Anonymous 42789 Replies
    • February 8, 2007
    • 07:52 PM
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  • My son at age 5 had several of the symptoms as yours. However it was running fever, swollen glands, feet, legs, hands, and a rash everywhere. (the rash started slow but progresses rapidly) Luckly the pediatrician caught our problem before it was too late. The diagnosis was Kawawaski Syndrome. The skin peels from head to toe.And he had to be seen by a cardiologist to make sure that his heart was damaged. This can damage the major organs in there body.Luckly our son had no damage to any organs due to it being caught early.Just a thought!
    momofthreeboys 2 Replies
    • February 8, 2007
    • 08:30 PM
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  • sorry just thought of something else. Our son about 4 years ago started getting real sick and holding his stomach and vomiting. He would have a bad burping and about 5 hours later he was deathly ill. We took him to the doctor and they could not find anything wrong. A Virus. We started watching a pattern of when this would start happening and it was like eating ice cream and dairy products. Went back to the doctor and tested him for lactose intolerance but according to them he was not. So we took it upon our self and bought him lactaid and now before he eats ice cream or heavy dairy product he takes his lactaid and has not had a problem since. Just a thought KL
    momofthreeboys 2 Replies
    • February 8, 2007
    • 08:41 PM
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  • more often than not, parents know their kids better than the doctors.... kudos for going with your gut
    Anonymous 42789 Replies
    • February 8, 2007
    • 10:35 PM
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  • Food allergies sound like the best possibility. You mention eggs? How often does she eat these? Some people are very allergic to eggs and can respond violently when fed them. The intestines may not contain the enzymes needed to break certain foods down in Chinese Medicine, eggs are considered a PHLEGM producing food. The skin rashes further sound like allergy-type reactions to some type of irritant for her system. I'm sure an Acupuncture Physician could help to unravel what's going on and not with extremely toxic drugs!!! When my son was young, he had food allergies and noone believed me. When he drank milk, about 15 minutes afterwards, he would get very angry or start to cry and didn't "know why". I finally figured out his patterns. Sugar was another big NO No for him, but his father's house believed in letting the kids eat/drink whatever they pleased and it was a constant battle for me. Now he an adult, he has bad stomach problems like diarrhea in the middle of the night or early AM. Pain after eating, bloating, sometimes constipation. We suspect he has either IBS, Crohns Disease, Celiac's, or God forbid-colon cancer!!! He eats alot healthier now- but unfortunately the damage is done!!! Hopefully, we can get him back on track before it's too late. Handle this while it's small and containable before it becomes something CHRONIC or IRREVERSIBLE. Best wishes!!! Keep us posted. Peace~~
    1111healer 106 Replies
    • February 9, 2007
    • 05:11 AM
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  • Dear EMK,I am so sorry for you and your daughter. When I read all that your daughter had been threw I thought that there is no mercy in this world. I have a six year old daughter and could not imagine for a moment what you are feeling. I hope you find out what is making her so sick. I am praying for her and hoping for a quick diagnosis....SD
    Anonymous 42789 Replies
    • February 10, 2007
    • 05:42 AM
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  • Hello everyone,I have an update on my daughter but I have to tell you, I'm beginning to think most doctors are just interested in the money. Ultrasound and Upper Gi showed up as all normal, and I have taken her off the metoclopramide. She still takes the prevacid. The ENT doctor had us in the exam room for five- ten minutes. He looked at her jaw, told us it was the salivary, and asked if the other dr had taken a throat culture. I kept trying to explain to him that there was nothing to cause the infection in the throat, tonsils or ears, so they didn't take a culture and that is why they referred her. Then, when he felt her jaw, my daughter told him no, its not there, and had to put his fingers on the lump. Then, he said, yes it was the lymph node and since its gone down, its an infection and he won't do a throat culture because the medicine helped. I kept trying to tell him her symptoms and tell him it wasn't from the ear, nose, throat or tonsils, which is why we were there but he just brushed me aside, talking in his dictating machine, handing me the sheet for the sign out desk, saying that he wants to see her in a month to make sure its all gone. He will get paid $170.00 from my insurance for this!! Next day, we saw her primary for the pubic hair. I also told her she still has abdominal pain, and that she had thrown up two more times in the past couple days, and this is with a diet change. When the doctor saw the hair, she told me she was going to refer her to the Children's Hospital because she thinks there may be a tumor pressing on her pituitary gland that is causing the precocious puberty. So now we have another doctors appt set up next month. When I mentioned the allergy possibility and celiac, she wants me to wait till this doctors appt. So, no blood work done, no stool culture, no allergy testing, and I have a child who has stomach aches near her belly button almost daily with nausea and vomiting at least once a week. Two days ago her teacher told me she wasn't eating again at lunchtime so the teacher said to her, "you need to eat", and my daughter looked sad so the teacher asked her what was the matter and my daughter said," My stomach tells me not to eat and you tell me I have to eat and I don't know who to listen to",. The teacher told her not to eat if she doesn't want to. Does anyone think the abdominal pain is causing the puberty or vise versa?
    Anonymous 42789 Replies
    • February 18, 2007
    • 04:13 PM
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  • I understand your insurance covers your doc visits (pathetic they may seem) but can you please look into an alternative doc to help you as well? Use the insurance for testing and such, and use the alternative doc to give your poor child some relief! DOM
    acuann 3080 Replies
    • February 18, 2007
    • 07:53 PM
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