I was an OR RN before I became severely ill with late stage neurologic lyme disease. I was dx late and even later was dx with several other tickborne diseases. I have suffered a great deal with suicidal level nerve pain, am 40% weaker on left side and have many other sx. I've been on IV antibiotic treatment several times and tx for the many other tickborne diseases I have. About 5 years ago I relapsed so severely I was bedridden for over 4 years. I developed a daily fever and profuse sweats upon any exertion at all. I do have babesiosis, a tick disease that is like malaria but have been aggressively tx. It is true that even the most literate lyme MD doesn't really know how long to treat these diseases but I can tell you that when I hear about so many MDs who say "4 weeks of antibiotics is enough for anybody" I am so saddened by their ignorance. If not for very aggrssive tx I would not be here today. Anyway, I see a GREAT lyme literate MD who is known all over the country. He still feels I may be treatment resistant to babesiosis but even just did tests for parasites (babesiosis is a parasite-it goes into red blood cells and kills them-it is very much like malaria) It is SO disabling to get SO hot and drip all over even just wiping off the kitchen counters etc. Has anyone ever heard of a 5 year fever? Just hoping somebody has any more ideas.
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