Discussions By Condition: I cannot get a diagnosis.

4 yr old w/unexplained bloodwork

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: dawns6
  • June 26, 2007
  • 03:14 PM

My daughter has had blood work ups done 2 yrs ago and they keep coming back Positive ana. High platelets and low mvp.
Just this mo. her platelet count went up even higher and her mpv went lower her ana titers are all positive.
Does anyone know what this might mean ? Thanks:(

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9 Replies:

  • What does your doctor say? The Internet says some type of connective tissue disease such as lupus. If that doctor is not helping you, find another one.
    Monsterlove 2921 Replies Flag this Response
  • What does your doctor say? The Internet says some type of connective tissue disease such as lupus. If that doctor is not helping you, find another one. Her Dr says its time to play Sherlock Holmes.In other words he cant figure out whats wrong.He's Head Proffesor of Rhuematology at La Rabidas childrens hospital in Chicago.You would think he would know whats going on with her so yes it is time to look for a new Rhuemy.We just have to travel 2 hrs for a chidrens rhuemy.:mad:
    dawns6 29 Replies Flag this Response
  • Is she healthy otherwise? Unusual lab results are NOT unusual in children. Sometimes things are idiopathic (which means unexplained). Is she growing normally? La Rabidas is an excellent children's hospital, but if you are still worried, contact a rheumatologist at Michael Reese in Chicago for a second opinion.
    rad-skw 1605 Replies Flag this Response
  • Is she healthy otherwise? Unusual lab results are NOT unusual in children. Sometimes things are idiopathic (which means unexplained). Is she growing normally? La Rabidas is an excellent children's hospital, but if you are still worried, contact a rheumatologist at Michael Reese in Chicago for a second opinion. she has horrible allergies,the blood work said theres definately inflamation somewhere,and she gets very lg, & painful tongue ulcers.wich they cant define.She also just had her adnoids out and plugs put in her ears,and for the last several mo's shes started to complain different parts of her joints hurt her. I just cant believe they cant figure out whats wrong.Thank you for your help
    dawns6 29 Replies Flag this Response
  • Her Dr says its time to play Sherlock Holmes.In other words he cant figure out whats wrong.He's Head Proffesor of Rhuematology at La Rabidas childrens hospital in Chicago.You would think he would know whats going on with her so yes it is time to look for a new Rhuemy.We just have to travel 2 hrs for a chidrens rhuemy.:mad:Sounds like Your Daughter may have Lupus. There is no real Test for it . Can take years to diagnose. The tongue sores is one clue for me as well as the ANA tilters. My daughter has what her Rhemo Calls low level Lupus and she has those symptoms. Also when your daughter gets in the sun does she feel sick after a bit? The Sun can trigger an Outbreak. Hope you find out soon. But your Doctor sounds like he is doing what needs to be done and he's right in "Playing" Sherlock Holmes. Problem is this. If she has an autoimmune Disease such as Lupus and another one also trying to present it's self at the same time. It will skew the results. Unfortunately it takes time for these diseases to present them selfs fully. I know because I had Hashimoto's Disease which went into full blown hypothyroidism , My weight just ballooned while I was preggers (Back in the 80 before thyroid testing was the gold standard) and it took years before they found out what was going on. I was sick as a dog. Years later I am under going other tests for other joint related problems and swelling and a SED rate that goes from 49 to as high as 119 ,Know what the Doctor said?.. It was Idiopathic in nature and some people just have SED rates that are High. Well two years after he said that I am now getting swelling and pain in my joins getting worse along with weakness, bruising, Chronic depression, Brain Fog..just a lovely array of stuff...I Know it's some sorta autoimmunity thing, He also said I had Fibro and Chronic Fatigue...I think thats just a catch all for "We don't know what the ***l it is fat women GO AWAY"...lol! JOY OF ALL JOY'S I am being sent back to the same doctor that couldn't find out what was up with me 2 years ago, as my dumb insurance will not pay for another one. GGURRRRR..Hope you get some answers soon sweetieCindy
    Anonymous 42789 Replies Flag this Response
  • Research Chronic Fatigue Syndrome. It is not a "catch all phrase" It is a real disease with real symptoms affecting real people of all ages in this coountry and world wide. Did she start with symptoms after a vaccine?research CFS/vaccines. There is a lot of information there.I wish you and your daughter health and happiness...mommy cat
    mommy cat 1654 Replies Flag this Response
  • Sounds like Your Daughter may have Lupus. There is no real Test for it . Can take years to diagnose. The tongue sores is one clue for me as well as the ANA tilters. My daughter has what her Rhemo Calls low level Lupus and she has those symptoms. Also when your daughter gets in the sun does she feel sick after a bit? The Sun can trigger an Outbreak. Hope you find out soon. But your Doctor sounds like he is doing what needs to be done and he's right in "Playing" Sherlock Holmes.Problem is this. If she has an autoimmune Disease such as Lupus and another one also trying to present it's self at the same time. It will skew the results. Unfortunately it takes time for these diseases to present them selfs fully. I know because I had Hashimoto's Disease which went into full blown hypothyroidism , My weight just ballooned while I was preggers (Back in the 80 before thyroid testing was the gold standard) and it took years before they found out what was going on. I was sick as a dog. Years later I am under going other tests for other joint related problems and swelling and a SED rate that goes from 49 to as high as 119 ,Know what the Doctor said?.. It was Idiopathic in nature and some people just have SED rates that are High. Well two years after he said that I am now getting swelling and pain in my joins getting worse along with weakness, bruising, Chronic depression, Brain Fog..just a lovely array of stuff...I Know it's some sorta autoimmunity thing, He also said I had Fibro and Chronic Fatigue...I think thats just a catch all for "We don't know what the ***l it is fat women GO AWAY"...lol!JOY OF ALL JOY'S I am being sent back to the same doctor that couldn't find out what was up with me 2 years ago, as my dumb insurance will not pay for another one. GGURRRRR..Hope you get some answers soon sweetieCindy Thank you Cindy,My gut instinct is she has lupos too.And yes she does start feeling ill when shes out in the sun ,her sed rate is 33 wich shows high on thier scale of (10) amongst other blood work that shows some things very high and others too low.Thats very unfortunate you cant see someone else.I'm so sorry.Shes going back to see her rhuemy one last time on the 13th and then we have to find a new one as hes leaving to be head proffesor at the State of Ohios Ped rhuemy .So we'll see this time how it goes. I wish you all the best of luck and hope you find an answer soon. (((hugs))) Dawn
    dawns6 29 Replies Flag this Response
  • Sorry to hear that your daughter is having some problems. I've had chronic hives for about 6 years with a positive ANA. I've been worried about lupus too. I see a great rheumatologist in New York. She explained it to me this way: People are all different, so why should a sydrome look similar in everyone? Right now, we're thinking that I have some nebulous autimmune problem that's something like partial lupus and we just have to watch and see if I develop lupus in the future because I'm probabaly more likely to get it now than the average person. Maybe your daughter has a similar problem, some kind of autimmune condition that won't become as severe as lupus. Also, as you probably know, ANA screens for hundreds of antibodies and there aren't specific tests for each individual one, so she may have/develop a mild autoimmune disorder without becoming seriously ill. I'm not sure if you'll find this comforting or not. I hope so. Good luck!
    AlisonR1012 4 Replies Flag this Response
  • My suggestion, she needs to see a Pediatric Hematologist or Pediatric , Allergy-Immunology and infectious disease specialist. http://www.uchicagokidshospital.org/http://www.childrensmemorial.org/findadoc/default.aspspecializing in Hematology/OncologyMorris Kletzel, MD, Chicago Geoffrey A. Allen, MD, Arlington Heights, Chicago, Westchester Stanley Chaleff, MD, Arlington Heights, Chicago Kimberley J. Dilley, MD, Arlington Heights, Chicago Reggie E. Duerst, MD, Chicago Jason R. Fangusaro, MD, Chicago Stewart Goldman, MD, Chicago Yasmin C. Gosiengfiao, MD, Arlington Heights, Chicago David A. Jacobsohn, MD, Chicago Robert I. Liem, MD, Arlington Heights, Chicago A. Kyle Mack, MD, Chicago Elaine Morgan, MD, Chicago Sudha Rao, MD, Chicago Horace E. Smith II, MD, Chicago Alexis A. Thompson, MD, MPH, Chicago William Tse, MD, PhD, Chicago David O. Walterhouse, MD, Chicago Joanna L. Weinstein, MD, Arlington Heights, Chicago specializing in Infectious diseasesStanford T. Shulman, MD, Chicago Ellen Chadwick, MD, Chicago Robert Garofalo, MD, MPH, Chicago Ben Z. Katz, MD, Chicago Anne Heitzman Rowley, MD, Chicago Tina Q. Tan, MD, Chicago Ram Yogev, MD, Chicago Good Luck,Swarthy Mo
    Anonymous 42789 Replies Flag this Response
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