Discussions By Condition: I cannot get a diagnosis.

4 years undiagnosed

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • December 23, 2006
  • 06:05 PM

I have been suffering from a multitude of diffuse symptoms since April 2003. The first symptoms were irregular heartbeat, dizziness, sever backpain, digestive problems, difficulty swallowing, night sweats, sleeping less than 2 hours a night and the list goes on. As the months passed, some of these symptoms disapated but then the muscle problems set in. Almost 4 years later I am virtually disabled unable to dress myself or perform normal daily functionsuch less work. I have lost weight and am visibly wasting away. I am stiff as a board in my spine and can barely lift my arms to feed myself. Repetitive motion is impossible. My neck and back are so stiff that I can not turn my head or twist my body. I spent the first 2 1/2 years seeing doctors. Mayo Clinic, U of M, as well as doctors in my own clinic. I have seen specialists in 14 different areas including neurology, rhuemotology and infectious disease as well as more homeopathic doctors. I have been tested for just about everything anyone could think of but all my tests have come back negative. I am now at a point where going back to a doctor is nearly imposssible as the car trip alone would do me in.
I was a 39 year old healthy man. Prior to this happening, I had strepp throat twice as a teenager - that's it! I never had to see a doctor. I enjoyed spending time in the outdoors with my family (yes I've been tested for Lyme and related diseases) and loved life.
I'm beginning to think I'm cursed. has anyone ever heard of somethig like this happening??
Running out of time and seeking an answer...

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3 Replies:

  • Did they check for any digestive disorders? Some malabsorption conditions can also cause the body to create a negative immune response. Did any antibodies for Rhuematoid arthritis pop up? I could imagine Addison's or Celiac's if nonspecific RA popped up and they didn't find the underlying cause.It is also possible that some sort of nerve damage in your spine could create a cascade of effects like you describe.You say your medical history isn't interesting, did ANYTHING happen at the time of acute onset? A death in the family? Lost job? Relationship problems? Just stressed? These factors can trigger the onset of pre-existing immune disorders. Family history could be helpful, even if the family members had chronic conditions that didn't even seem related (osteoperosis?)
    Azaral 152 Replies
    • December 24, 2006
    • 02:23 PM
    • 0
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  • This probably seems redundant and stupid, but I assume they ruled out fibromyalgia, I have it and am quite high functioning, a friend of mine has it and has been as sick as you describe. Check out the book, Fibromyalgia and Chronic Myofascial Pain Syndrome A Survival Manual by Devin Starlanyl, MD, and Mary Ellen Copeland, MS, MA. It lists pretty much all of the symptoms you describe (I'm not sure about the irregular heartbeat, but perhaps that is something that is actually seperate from everything else?? eg, I have a heart murmur, but it is completely unrelated to my fibromyalgia) as well as many more as this syndrome will manifest itself quite differently in many people. I also have a friend, a chiropractor who became absolutely incapacitated from it, same helplessness that you are experiencing, but the good news is that it eventually did get better and he is back working. (he was ill for at least two to three years) I hope this helps, if not, at least maybe an encouragement.
    Anonymous 42,789 Replies
    • December 24, 2006
    • 07:03 PM
    • 0
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  • It sounds like lead, chemical, arsenic, or pesticide poisoning. I am not a doctor. We will pray for you.
    Anonymous 42,789 Replies
    • December 24, 2006
    • 10:55 PM
    • 0
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