January 2003 my husband started experiencing pain in the balls of his feet. Summer 2003, morton's neuroma was removed from both feet. Since then, the pain and stiffness has progressively moved up his legs. Summer 2003 he had carpel tunnel surgery which didn't help at all. Hands feel like he is wearing "gloves" all the time and his wrists hurt. Been to 3+ orthopedic surgeons for hand and legs. List of types of doctors: 2 vascular, 4 neurological, 3 orthopedic, 2 endocrine, chiropracter, 2 physical therapists, 3 pain clinics, etc. I have 2 ziploc bags of medications that have not helped. You name it, he has taken it. All kinds of tests - blood work, xrays, mri's, etc. The only glimmer of hope we had occurred this past year. He was diagnosed with "complex regional pain syndrome" and had 4 sympathetic nerve blocks. Those didn't help either which means that diagnosis wasn't right either. He's also been diagnosed with fibromyalgia by a neurologist in Birmingham who didn't know what else to say.
My husband is not a complainer, yet lives in constant pain. He is feeling pain and stiffness in his legs regardless of activity or inactivity. The bottom of his feet hurt constantly He has purchased many, may pairs of shoes. The only shoes that are "somewhat" comfortable are z-coils. He wears shoes 24/7 - to sleep in, to take a shower in, etc. Oh - and the weird thing is that his feet have grown 2 shoe sizes and from a medium width to 4E width. Very strange - NO ONE has any suggestions on that. He can't walk on the bare floor at all. For 4 years.....
His hands have hurt for 4 years too. The carpel tunnel surgery didn't help in 2003. He saw another specialist in October 2006 to insure it wasn't carpet tunnel - and the specialist said it wasn't. The main symptom is the wrists hurt and it feels like he is wearing "gloves".
He has been diagnosed with low thyroid, b12 deficiency and takes cholesterol medicine for a slightly elevated level.
Family history: Mother was born in Germany and immigrated to US in 1947. Father from New York. Grew up in Louisiana. He is 57 years old with 2 school aged children who keep him very busy!!!
My husband stays in good spirits. Our favorite doctor remark is "...you have a perplexing problem". This was an orthopedic specialist in Memphis! That was it - that was all the dr. said. We laugh about that now.
Another favorite occurance was from a doctor in New Orleans. He abruptly left the room, we are thinking great, he has a diagnosis. He came back and said he probably had "restless leg syndrome". After all we have been through, we knew that was a misdiagnosis. Then the doctor's notes that we had to pay for to receive were incorrect stating that my husband had no problem walking on the bare floor without shoes. I'm not sure who this dr was examining, but it wasn't my husband. That was a big waste of travel expenses.
I have a 3 ring binder full of notes, test results, chronology, etc.
I would be glad to go to any doctor in any state or country. We just don't know what else to do or where to go. We have already spent thousands on doctors, travel, medications, tests. Any advice on a diagnosis or a good doctor would be extremely appreciated.
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