Discussions By Condition: I cannot get a diagnosis.

3yo with knee pain but doctors are not concerned

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: mama1401
  • June 3, 2009
  • 06:32 PM

I don't know what to do. I feel like there is something wrong with my daughter. I have three children - 8, 5, and 3 so I know what is normal and when something is wrong.
Since about November, my then 2 year old has been having severe knee pain. When it happens, she can't walk and seems to be in an extreme amount of pain. She doesn't like to be carried normally, so for her to insist on being carried is really unusual. We've done two sets of xrays (they xrayed her hip as well) and then an ultrasound series. There is nothing there. She will be in pain for 2-6 hours and then she'll be fine. I usually give her Motrin. I've been noticing more and more that it hurts the most when she has a fever (which is often). Her family doctor said that wasn't unusual, but I've never known anybody that couldn't bear weight just because they had a fever.
She's always been sick. She had reflux as a baby, chronic ear infections (still has them even though she's had tubes since she was 11 months old), pneumonia several times, asthma, allergic to milk and eggs. She's always been very small for her age as well, although she's catching up now that we've figured out the allergies and she's eating better. She also has sensitive eyes - she's sensitive to light and she squints a lot. Her eyes have been checked and are fine. Her fevers are becoming increasingly higher (sometimes +105F) and are slow to respond to medication. The last really high fever she had was 106 and it took two dosages of motrin and two dosages of tylenol to lower it significantly (I gave her one of each and the doctor ordered the second ones in the pediatric trauma room - I've only been in this room twice and both times with this child). Sorry this is so long. I just want to get it all in. Am I imagining a problem or am I right to think that all this just doesn't fit within the realm of "normal"?

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  • Blaze writes that stuff on just about every post around here-- you can check that for yourself. I would take it with a grain of salt. If you do live in an area with a predominance of ticks and she also has a rash, maybe check into it. But otherwise......well, Blaze thinks everyone either has Lyme or electrosensitivity. I also had pains like you describe as a child and unexplained fevers, light sensitivity, etc.. I do not believe you are imagining a problem, I believe there is a problem. When I was young, they passed it off as 'growing pains'.....however, I never grew out of them. Mine, I have recently learned, were caused by auto-immune dysfunction. It wouldn't hurt to have her checked for auto-immune conditions, although she is very young to be experiencing that. A Rheumatologist would be the best specialist to look at this for you and your daughter. Pain is regulated by your nervous system. A neurologist may be able to help. There is a great one on this site, I hope he sees your post.Keep searching for an answer until you find it. Be aware, however, that children that age.....well, if they get a lot of attention for something or you make them feel like it's a big deal.....they might 'fake' it sometimes just for the attention. I don't think that is what is going on for your daughter, but it is something to consider. Best of luck to you both. I really hope you find some answers. It's no fun to be in pain, especially for your daughter who I'm sure doesn't yet understand about medical conditions like an adult would. Chronic pain is difficult for adults!
    Harmonium 322 Replies Flag this Response
  • There is definately something wrong. I'm not sure if these links will help. From a quick research. Its possible she is suffering from sepsis arthrits.http://wrongdiagnosis.com/s/systemicjra/book-diseases-3a.htmhttp://www.wrongdiagnosis.com/p/psoriatic_arthritis/book-diseases-20b.htm
    Anonymous 42789 Replies Flag this Response
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