Three years ago my neurologist was diagnosed with Parkinson's Disease. After years of increasing struggles with my symptoms...head tremor, lip tremor, digestive issues, numerous falls I was sent to a MAJOR Neurological Center for evaluation. What a JOKE that was. Brief general health questions, no questions on current symptoms (did not want to see the list I brought with me), simple neuro exam (touch your nose with your finger), had me walk the hall, then try to keep standing while neuro tried to push me forward. Way less than 1 hour exam (supposed to be a 2 hr appt.). Then this "specialist" says... "You don't have Parkinson's". (Don't get me started on what a cold hearted person this doc was!!!)
Sooooo...I ask, "Then what on earth is going on with me?" No answer. Several unanswered questions by both my husband & I - I asked her, "You ARE a neurologist, right?". She said she was. By now crying, but through my sobs I ask her what is wrong with me? What else could this be?" NO ANSWER.
We drove over 100 miles to see this doc. I expected a very extensive exam. I brought files on all doctor appts. and therapies I have completed. She did not want me to so much as pull one file out - including my "timeline".
Cannot get into see my local neuro for another 5 weeks. (Oh how a 15 minute phone call from her would calm me down! Simply unheard of these days.)
Your opinions & experiences, PLEASE! What else mimics Parkinson's? Has this happened to you? I don't care what the "label" is. I just want to know which battle I am fighting & what can be done to help with the numerous symptoms I must live with. (I had to take an early retirement due to my health last year!) HELP!!!