I am a 39yo Female, good overall health. 3 years ago, I began to suffer from upper back, shoulder, neck and head pain. I saw several doctors, have had MRI's, xrays and many attempts at physical therapy with no help.
The pain began between my shoulderblades, and was initally diagnosed with myofascial pain syndrome. That pain has moved and migrated some, settling mostly in my neck, and trapezius muscles. Now, If I do not treat the pain with codein or lortab, I will end up with a migraine. NSAIDs do not help. I have had many injections including trigger point injections, cervical and sub obcipital nerve injections. I had a couple migrains as a teenager, but none in my 20s-30's until this problem. The pain comes and goes, often different within any given day, some days with little pain, and several "flare-ups" each month. At its worst, I had constant pain and migraines every few days.
During this 3 years, I have stopped working, became pregnant (for the first time), had a baby, and am still breastfeeding. The pain was fairly consistant thoughout my pregnancy, with slight improvement during the last trimester. My only obvious change then was sleeping duration and position. We have tried new beds, pillows, exercises, stretching, massage. I have not taken any migraine prevention medications due to breastfeeding. I take Axert or imotrex for migraine's when they occur. I take Tylenol 3 as needed, often about 1 per day, except during severe flair-ups when I may take 3-4 in a day for 1-2 days. I had a migraine lately that did not respond to the imotrex, so I took lortab. I take Ibuprofen for general aches and pains, as needed.
I saw a rhumatologist early on, who did not think RA or lupus was likely. I do not have pain on my limbs.
Other things that have been going on, whether related or not I dont know...I have suffered some hearing loss, which one visit with a ENT said was probably just genetic. I have recently developed a whistling in one of my ears, which I have not yet had checked out.
I dont smoke, drink infrequently, take any other medications other than the above.
I have always been a strong, active person, with no psych problems, no particular stress, and a great husband and baby.
WHAT IS GOING ON????? The pain takes about 7 days a month out. The rest of the time, I am partially functioning most of the time. I cannot do many activities that use my upper body because it will sometimes cause a flair-up. I want my body back.
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