Discussions By Condition: I cannot get a diagnosis.

24 Don't have a Diagnosis it's been ongoing for 3 years pls help!!!

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Sesshy85
  • April 13, 2010
  • 02:26 PM

Good Day Everyone,

This maybe be a bit long so please, please bear with me. I've been having problems since i was 22, 21 really because that's when i was taking birth control yasmin, (which I'm reading now that it's causes serious problems in women) now it's not like i took it for years, I only took it for maybe 5 months before things started getting out of control. I started to have breast pain in my left breast, and shooting pain under my arms. I stop taking the pills which help a lot but then my fiance always loved to suckle my breasts, so i don't know if this started it too. I don't too many family diesease except both my great-grandparents dying of lung cancer and the women in the family having anemia. My aunt had surgery for thyroid problems.

Anyhoo, When i turned 22, I had burning pains in my arms and underarms, not in the breast yet and I went to the doctor and they check me out to see if it wasn't cancerous, came back negative, the pain got worst and spread to my left breast, then i had problems with my heart, a lot of palpatations, thinking that i had heart disease, the doctor sent me to the cardiologist just to be sure, that came up normal, mind you my other problems were not yet resolved. Over time the pain spread to my neck and my whole body, the burning searing, sharp pain, so my doctor suspected as fibromyalgia, went to the Rheumatologist, that came back negative because i didn't feel too much pain at the points when he touch them. By this time the pain spread to my right breast, underarm and right arms, whole neck, and still having the body pains, I went to get a ultra sound on my breast several tiimes over the years which came back negative, i've ask for a biopsie and they say because of the ultrasound and MRI they didn't want to risk further damage, mind you, they found no lumps what so ever.

SO sorry this is long but three years is a lot man, I've went back to the nuerologist several times becaues of these pain, did the exams, came back negative, then some strange things happened

Severl times when i was 23, i've had lost feelings in my right side, totally from the brain to the toe, and went to the emergecy room and nuerologist because of this, twice it happened, and they couldn't find any cause (see how frustrating this is?) I even had a brain scan came back nothing, now I've been to several specialist in regards to this and for 3 years using my insurance and of changes of insurance, i have maxed it out and now im in sort of debt with out insurance. I've had other symtoms too

A lot of fatigue
Pain so severe, thought i was kicking the bucket or had to quit work
pain comes and goes all over

Now I'm now 24 years old and now my pain has improved, not too much, but now i have more energy sometimes and i'm not down right bedridden sick like i was before. I have change most of my diet I have stop caffine on and off and it makes no difference pain is still there.

My major concern is my right side and my right breast, which has swollen now, from oct 2009 to present april 2010, i went to three breast surgeon, the las breast surgeon diagnosis with me with Mastalgia which is unexplain breast pain in the breast. My righ breast is now dropping and still swollen, at first i though it was IBC but nothing has change except the pain and swelling, from time to time if irritated my chest and breast would develop a rash and go away after a few hours.

This to me is the weirdest i've read and research over the years and nothing I've heard

If any suggestions please please let me know :):)

I try to keep a positive aspect of life and look to god to assist me through this trouble times

Reply Flag this Discussion

4 Replies:

  • I am sorry you have been having this problem for such a time. It makes it really hard to keep up hope when you can't find the cause. I found something for you to take a look at. http://www.neurologychannel.com/rsd/index.shtmlI know you probably have also already looked this up and might have mentioned it to your doctor but if not I suggest mentioning to your doctor you started having this issue after taking Yasmin. Here is a link for side effects of it.http://www.drugs.com/sfx/yasmin-side-effects.htmlAlso have you had any previous injuries, slight or major before this onset of symptoms? If so you might also be interested in this.http://www.ninds.nih.gov/disorders/reflex_sympathetic_dystrophy/reflex_sympathetic_dystrophy.htmburning sensation with pain and breast swelling; Any other symptoms for reference? If not thats fine just want to make sure and I wish you the best of luck on finding your problem.
    Anonymous 42789 Replies Flag this Response
  • Good Day Everyone, This maybe be a bit long so please, please bear with me. I've been having problems since i was 22, 21 really because that's when i was taking birth control yasmin, (which I'm reading now that it's causes serious problems in women) now it's not like i took it for years, I only took it for maybe 5 months before things started getting out of control. I started to have breast pain in my left breast, and shooting pain under my arms. I stop taking the pills which help a lot but then my fiance always loved to suckle my breasts, so i don't know if this started it too. I don't too many family diesease except both my great-grandparents dying of lung cancer and the women in the family having anemia. My aunt had surgery for thyroid problems. Anyhoo, When i turned 22, I had burning pains in my arms and underarms, not in the breast yet and I went to the doctor and they check me out to see if it wasn't cancerous, came back negative, the pain got worst and spread to my left breast, then i had problems with my heart, a lot of palpatations, thinking that i had heart disease, the doctor sent me to the cardiologist just to be sure, that came up normal, mind you my other problems were not yet resolved. Over time the pain spread to my neck and my whole body, the burning searing, sharp pain, so my doctor suspected as fibromyalgia, went to the Rheumatologist, that came back negative because i didn't feel too much pain at the points when he touch them. By this time the pain spread to my right breast, underarm and right arms, whole neck, and still having the body pains, I went to get a ultra sound on my breast several tiimes over the years which came back negative, i've ask for a biopsie and they say because of the ultrasound and MRI they didn't want to risk further damage, mind you, they found no lumps what so ever. SO sorry this is long but three years is a lot man, I've went back to the nuerologist several times becaues of these pain, did the exams, came back negative, then some strange things happened Severl times when i was 23, i've had lost feelings in my right side, totally from the brain to the toe, and went to the emergecy room and nuerologist because of this, twice it happened, and they couldn't find any cause (see how frustrating this is?) I even had a brain scan came back nothing, now I've been to several specialist in regards to this and for 3 years using my insurance and of changes of insurance, i have maxed it out and now im in sort of debt with out insurance. I've had other symtoms too A lot of fatiguePain so severe, thought i was kicking the bucket or had to quit workpain comes and goes all over Now I'm now 24 years old and now my pain has improved, not too much, but now i have more energy sometimes and i'm not down right bedridden sick like i was before. I have change most of my diet I have stop caffine on and off and it makes no difference pain is still there. My major concern is my right side and my right breast, which has swollen now, from oct 2009 to present april 2010, i went to three breast surgeon, the las breast surgeon diagnosis with me with Mastalgia which is unexplain breast pain in the breast. My righ breast is now dropping and still swollen, at first i though it was IBC but nothing has change except the pain and swelling, from time to time if irritated my chest and breast would develop a rash and go away after a few hours. This to me is the weirdest i've read and research over the years and nothing I've heard If any suggestions please please let me know :):) I try to keep a positive aspect of life and look to god to assist me through this trouble times I have Lyme disease with Babesiosis Co- infection. Lyme and Babesia Love to cause multiple symptoms like the ones you have mentioned. You need a western Blot for Lyme disease and ALL co- infections asap. I have a blog about my lyme, babesia and getting my diagnosis, it's: lymeball.com Good luck and feel free to ask questions.
    Anonymous 42789 Replies Flag this Response
  • I have Lyme disease with Babesiosis Co- infection. Lyme and Babesia Love to cause multiple symptoms like the ones you have mentioned. You need a western Blot for Lyme disease and ALL co- infections asap. I have a blog about my lyme, babesia and getting my diagnosis, it's: lymeball.com Good luck and feel free to ask questions. THanks you all everyone, I will definately check out your blog, I'll have to get tested again for all those, although i have been tested last year for lyme, lupus and other disease in relation and they came back negative Hey CHad thatnk soo much for the info, i've check out the website the yasmin and the systoms are horrible...thank god i have not experience all those systoms i have exprience problem 25 percent of it, Out of all of this, this is what i've experienced unusual hoarseness-because of allergyleg painswelling-right breast 6 months-doctors are not concern with it and i've been to 3 breast surgeonstendernesschest pain heavinessweight lossconfusionPalpatationsneck, shoulder, or arm pain; mental or mood changes (eg, depression); migraines-sometimes or just regular headaches severe abdominal pain or tendernessslurred speechunusual tiredness or weakness-a few times a week-there are times where i have too much and at times when i'm like a log but there are other problems that i have mention that could be in relation to Yasmin as well, like complications THanks so much for the support :cool:
    Sesshy85 1 Replies Flag this Response
  • you can try pranic healing.it works miraculously in pain reduction and its from my personal experience after my cesarian i stopped taking pain killers from 5th day after surgery because of severe drowsyness,but i was given pranic healing and i never felt any pain.you can go and check their website for further information www.pranichealing.com.God bless you.i hope you will have a goodhealth soon
    Anonymous 42789 Replies Flag this Response
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