Discussions By Condition: I cannot get a diagnosis.

24/7 LIGHTHEADEDNESS along with pulsatile tinnitus- NO DIAGNOSIS!

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: LightyHead0704
  • January 14, 2009
  • 09:32 PM

Hey everyone! I am new here :)

I am an 18 year old female. I am ALWAYS lightheaded and have been like this for almost 2 months already. It is constant. From the moment I wake up until I go to bed. My life has completely been affected by this. I can't drive anymore and I am always scared to be alone because I worry that I might pass out any second. I also have brain fog, It's hard for me to concentrate and I feel pretty slow. :confused: It all started when I was getting swooshing noises in my left ear that went along with the rhythm of my heart/ my pulse. It's so annoying. :mad: I went to my doctor who took blood out to see what was going on. 2 days later was my first visit to the ER. I got the worst dizzy spell ever, I felt like everything was spinning and I felt that I was going to die! I panicked ofcourse! This was 2 months ago.

I'm not anemic or have thyroid problems, my blood test was good and didn't show anything but high cholesterol (which I am taking care of).
My blood pressure WAS always fine until for the past couple of days it's been high. I am also getting heart flutters...I think it is because I am so stressed out. I don't know what is wrong, I can't take it anymore it is very very frustrating:(

I've had MRI's with and without contrast of my brain, CT scan of my brain, Carotid Ultrasound.

I am currently on Effexor for my anxiety and taking Crestor for my cholesterol.

This has made a big impact on my life, I am too young to feel like I am going to die soon but this lightheadedness is driving me crazy, I just wish that I could get some magic pill that would make me feel normal again! I miss how my life was!

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11 Replies:

  • You need to see an ear specialist. You may have fluid in your ear canal, an infection, or something else going on that would affect your balance and hearing.
    aquila 1263 Replies
    • January 15, 2009
    • 05:32 PM
    • 0
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  • I went to an ENT & he said he doesn't think I have anything. He checked to see if he saw fluid or an infection and he said nothing was there. :( Maybe I need to go to another ENT.
    LightyHead0704 4 Replies
    • January 16, 2009
    • 02:54 PM
    • 0
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  • Is your lightheadedness different from your episode of vertigo?Also, what is your habitus?Are you short&fat or tall& skinny?
    richard wayne2b 1232 Replies
    • January 16, 2009
    • 03:30 PM
    • 0
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  • I am 5'6 I weigh 165. I am overweight but not obese. I do have high cholesterol but I am taking care of that by exercising, eating right and taking my medication (Crestor) And yes my lightheadedness is different from the episodes of vertigo. But the lightheadedness has been here since my first episode of vertigo which caused me to have a panic attack because I did not know what was going on.
    LightyHead0704 4 Replies
    • January 16, 2009
    • 07:25 PM
    • 0
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  • Your condition, called pulsatile tinnitus, can be due to a wide range of causes.In cases where the tinnitus is synchronous with the pulse, a dural av fistula should be ruled out. My assumption is your ENT have ruled out middle ear/temporal bone causes. The first logical step is to get CT of temporal bone and CT angio. EVEN IF THESE ARE NEGATIVE YOU MAY NEED AN ANGIOGRAM TO RULE OUT A DURAL ARTERIOVENOUS FISTULA, a connection between arteries and veins. I suggest seeing a university based otologist or neurointerventional radiologist with experience with pulsatile tinnitus. (If you are near Maryland, try Dr Eisenman at the University of Maryland tinnitus center). I have also suffered with this kind of tinnitus and was diagnosed with dural av fistula and am speaking from personal experience as well as a level of medical background. Hope this helps, and sincerely wish you all the best.
    Anonymous 42789 Replies Flag this Response
  • Hey everyone! I am new here :) I am an 18 year old female. I am ALWAYS lightheaded and have been like this for almost 2 months already. It is constant. From the moment I wake up until I go to bed. My life has completely been affected by this. I can't drive anymore and I am always scared to be alone because I worry that I might pass out any second. I also have brain fog, It's hard for me to concentrate and I feel pretty slow. :confused: It all started when I was getting swooshing noises in my left ear that went along with the rhythm of my heart/ my pulse. It's so annoying. :mad: I went to my doctor who took blood out to see what was going on. 2 days later was my first visit to the ER. I got the worst dizzy spell ever, I felt like everything was spinning and I felt that I was going to die! I panicked ofcourse! This was 2 months ago. I'm not anemic or have thyroid problems, my blood test was good and didn't show anything but high cholesterol (which I am taking care of).My blood pressure WAS always fine until for the past couple of days it's been high. I am also getting heart flutters...I think it is because I am so stressed out. I don't know what is wrong, I can't take it anymore it is very very frustrating:( I've had MRI's with and without contrast of my brain, CT scan of my brain, Carotid Ultrasound. I am currently on Effexor for my anxiety and taking Crestor for my cholesterol. This has made a big impact on my life, I am too young to feel like I am going to die soon but this lightheadedness is driving me crazy, I just wish that I could get some magic pill that would make me feel normal again! I miss how my life was!Not sure if you still check this forum but I found it during a google search. I been suffering from the exact same symptoms for 3 years now ever since the winter of 08'. I'm also in my teens. It started when I was 17 and I'm now 19. I've had tons of tests that have all come back negative but my biggest complaint and problem is I just can't find a doctor that seems to care. Well I'd love to compare notes if you're still suffering from this horrible aliment. I know exactly what its like. I've dropped out of 2 different schools, my grades have dropped, I quit my job, and I no longer drive my car (it sure was fun for the couple of months I did drive though) =/.
    Anonymous 42789 Replies
    • December 8, 2009
    • 07:38 PM
    • 0
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  • Hi there are some good comments here but I just wanted to add, as a pulsatile tinnitus sufferer, that there is support and info at http://www.whooshers.com that you may find helpful.
    Anonymous 42789 Replies
    • December 22, 2009
    • 08:17 PM
    • 0
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  • I also was diagnosed with a dural AVF fistula after a year of MRIs, ultrasounds etc never showing the real problem. Finally a new specialist directed me to have an MRA (to look at the blood vessels) and they were able to find the issue. Like the original author I had suffered from pulsatile tinnitus/wooshing in my left ear, dizziness/vertigo, headaches etc. Turns out I had a type 3 DAVF and was high risk for hemmorhage. I have since had endovascular surgery and am completely fixed!!
    Anonymous 42789 Replies Flag this Response
  • I have had the same issues since April of '10. The only med I was taking was 20 mgs of Crestor.At direction of my doc, I have stopped Crestor and the symptoms seemed to have stopped. I hope that's the reason, but things have started to clear up since stopping that med.
    Anonymous 42789 Replies
    • January 10, 2011
    • 05:10 PM
    • 0
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  • i also have lightheaded ness 24/7 sometimes worse then others i scared of falling i go hardly no where they found lesions on brain but said its not the reason they say anxiety but i only started get anxes when i started getting dizzy i take xanax now and still light headed and scared i am around 48 but its soooooooooooo scary i think doctors brush us off cause they don't know
    Anonymous 42789 Replies
    • January 14, 2011
    • 10:34 PM
    • 0
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  • Anyone taking or withdrawing from Lexapro or some type of anti depressants? I ve had extensive issues with this. Plus lightheadedness, a big hit of it and thought i was going to die too. Was stressed at that time yes, but ended up getting a lot of fluid in 1 sinus as well. Fluid went away, still dizzy! Movement in ears, pulsating with noise.. makes me more anxious.
    davyboy1980 5 Replies
    • November 18, 2013
    • 07:41 AM
    • 0
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