Discussions By Condition: I cannot get a diagnosis.

22 month old with odd symptoms

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • December 8, 2007
  • 05:11 PM

My 22 month old daughter went to the ER 2 weeks ago screaming for 2 1/2 hours;
- painful hands and feet (she even ripped the lid off her cup of water and jammed her hand in several times - which,in turn, seemed to hurt even worse)
- holding her head screamin 'ow, ow'
- Fever 103 which she had for the previous 10 days - only lowered by Motrin
- Slight Rash on hands and feet
- Large lymph nodes in her neck (also noticed when the fever came on 10 days previous)
- This one's strange: She kept involuntarily puckering her lips in an exagerrated way. Like you would pretend you are a fish with a little baby or a toddler.
- Seems distant, "spacey", or hard to distract during these episodes

To see all this together is quite disturbing for mom as you can imagine.

She had been on Augmentin and Antibiotic ear drops. They suspected Kawasaki's and sent us to a Children's hospital that basically ruled out Kawasaki's. So they suspected Augmentin allergy and discontinued use.

Problem...2 weeks later and she still has several episodes a day of grabbing hands and feet in apparent pain and still puckers her lips and has other involuntary mouth movements. She is otherwise healthy with no previous major sicknesses or surgeries - other than ear tubes at 7 mths. Any thoughts?

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6 Replies:

  • "A small number of children who have had a febrile seizure go on to develop epilepsy, but not because of the febrile seizures. Children who would develop epilepsy anyway will sometimes have their first seizures during fevers. These are usually prolonged, complex seizures." from MedlinePlus. Because of the spaciness and involuntary mouth movements, I'd have this checked out. I think she needs an EEG. Sorry to mention this.
    rad-skw 1605 Replies
    • December 13, 2007
    • 00:49 PM
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  • Did this happen after a vaccination? She still needs to be under the care of a M.D. Take her in for follow up visits.
    Monsterlove 2921 Replies
    • December 13, 2007
    • 06:49 PM
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  • My 22 month old daughter went to the ER 2 weeks ago screaming for 2 1/2 hours;- painful hands and feet (she even ripped the lid off her cup of water and jammed her hand in several times - which,in turn, seemed to hurt even worse)- holding her head screamin 'ow, ow'- Fever 103 which she had for the previous 10 days - only lowered by Motrin- Slight Rash on hands and feet- Large lymph nodes in her neck (also noticed when the fever came on 10 days previous)- This one's strange: She kept involuntarily puckering her lips in an exagerrated way. Like you would pretend you are a fish with a little baby or a toddler. - Seems distant, "spacey", or hard to distract during these episodes To see all this together is quite disturbing for mom as you can imagine. She had been on Augmentin and Antibiotic ear drops. They suspected Kawasaki's and sent us to a Children's hospital that basically ruled out Kawasaki's. So they suspected Augmentin allergy and discontinued use. Problem...2 weeks later and she still has several episodes a day of grabbing hands and feet in apparent pain and still puckers her lips and has other involuntary mouth movements. She is otherwise healthy with no previous major sicknesses or surgeries - other than ear tubes at 7 mths. Any thoughts? Wow, docs are still giving antibiotics for ear infections:confused: . If your little one has had chronic ear problems please look into food intolerances. Dairy is #1...I didn't realize I had a dairy intolerance until I was nearly 40, and had suffered from chronic sinus/ear infections since a baby (with tubes put in as well)...please look at her diet and see if you can find a common cause. Dairy is common, but so is soy, wheat, corn, and others. Food intolerances and allergies are #1 cause of chronic sinus and ear problems, and Western allopathic medicine just doesn't address this correctly IMO. Augmentin can cause behavior changes and agitation as a side effect, as well as a rash. It can also wreck the intestinal flora - please get your daughter a good quality children's probiotic - I like FloraBear's chewables and give them to my kids. A probiotic will help restore balance to the intestines, and will in turn help build up the immune system. Please do this asap. Please look into homeopathy to help with your daughter, or find a good naturopath or chiropractor who specializes in children. I have used Hyland's homeopathic remedies for my children, since they were infants. I use Aconite when they first get a fever, and give this remedy every 10-15 minutes until their fever subsides. I can usually get the fever down within a couple of hours. The trick to homeopathy is to use a remedy frequently at first, until symptoms subside. Hyland's teething tablets are brilliant!I use Pulsatilla if there is runny yellow nasal discharge. There are some good books you can get to learn more about homeopathy. It is a cheap, safe, and very effective treatment for children. My last thought is could she be teething? This can cause all sorts of pain and problems, including fever and swollen glands, esp if it is the back molars. Best wishesDOM
    acuann 3080 Replies
    • December 13, 2007
    • 10:27 PM
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  • No, no recent immunizations. We are a little behind because she was so sickly as an infant - they don't like to give immunizations when a baby has a fever. Additionally, we have moved this year and haven't quite established a Doctor. I did find one that I love, but we haven't even had a chance to transfer medical records b/c of the urgency of her symptoms. Our pediatrician said the symptoms are 'just strange enough' to see a Neurologist. Our Neurologist says her symptoms are 'just strange enough' for an EEG and MRI. We are scheduled for an EEG and MRI. All are planned within the next 2 weeks. I agree about antibiotics. She had consistent ear infections as a baby and they did give her some amoxicillan (sp.?) and augmentin, but only after we gave it SEVERAL, SEVERAL chances to clear up on its own. It still didn't clear up and they put in tubes. My doctor and I are both non-antibiotic people. We had to give it a chance after the infection would not clear. My child has rarely had antibiotics but after so long, one has to suspect bacterial that is not going to cure itself. I have restricted dairy and gluetin as well as wheat to try to determine the problems on my own. Considering this has all crept up in the last month, I can't imagine a sudden allergic reaction to such. I have kept a food diary since her first occurence and I have not made any correlations to her diet. These symptoms are beyond normal. To non-mothers, it would seem that I were over the edge in talking about this. To mothers...it's the point where you start to wonder; is there is something more I can do for my child, something that others are not catching, or something I should know myself? That's why I'm posting. If I could post a video, it would bring all mothers to tears. Disturbing...That's the only word I can think of. It makes me wonder what more I can do.
    hancam452 2 Replies
    • December 21, 2007
    • 06:09 AM
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  • I have tracked her diet for over a month now and can not find any consistencies that relate to an allergic reaction. I have tried gluetin free, wheat free, etc. I do not personally do well with milk...and have tried to limit my daughter of lactic acid. She doesn't prefer milk over water anyway (no...she does not get juice), so it wasn't difficult. She likes soy milk about the same. We still have problems. I am all for homeopathic and feel like I have read it all...including what you suggested. I am still at a dead end! Neurological, behavioral, reaction???????
    hancam452 2 Replies
    • December 21, 2007
    • 06:46 AM
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  • i am sorry to get off the subject of this thread, but I need to comment about the possibility of lyme disease in this child...blaze... i read your replies to nearly every original posting on this board for lyme dz and babesiosis. First off-Blaze, the treatment for your condition is a two week course of ceftriaxone or doxycycline- equally effective (NEJM Vol 337 July 31, 1997). Secondly- Lyme disease and Babesiosis are vector bourne and spread by the deer tick, if there are no risk factors for tick bite, or the individual is not an endemic region, then they don't belong on the differential. Additionally they are associated with characterisic rashes that spare the palms and soles of feet are (with Lyme) are pathognmonic for the disease.
    fewd4thought 126 Replies
    • December 22, 2007
    • 10:50 AM
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