Discussions By Condition: I cannot get a diagnosis.

20 kidney stones in ONE year

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • May 7, 2008
  • 02:58 PM

I am posting here on behalf of my roommate. She has had approximately 20 kidney stones over the past year. :eek: Before a year ago, she had never had a kidney stone. She has been to two doctors and neither of them have been very helpful. Her body is continuously forming new stones. Her diet is normal and even when it has been altered to avoid kidney stones, she still forms them. No family history is present. I am basically writing here as a last resort. It’s difficult watching my friend suffer and constantly being told she has to live with having kidney stones the rest of her life. She’s only 28 for crying out loud! Please, if anyone has any suggestions, I’m listening.

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  • Is she taking calcium supplements - Google (magnesium deficiency kidney stones) High calcium and low magnesium intakes have been shown to create calcifications such as kidney stones. If taking calcium, stop. Start on some quality magnesium supplement like UltraMag or magnesium chloride w/ some vitamin b6. Doing a TMA from traceelements.com may be helpful in assessing status of calcium/magnesium. Exatest is another affordable test to do.
    LINENUP 122 Replies Flag this Response
  • thyroid function might be checked... It does control some of the calcium mobilization or excretion. Therefore a sluggish thyroid will cause some calcifications to occur. TMA would help w/ that.
    LINENUP 122 Replies Flag this Response
  • An endocrinologist should be able to tell you whether your friend has hyperparathyroidism. A lot of folks think this is just another thyroid test but it is completely different because the parathyroid glands (located behind the thyroid) control the amount of calcium and phosphates in one's body. One of the problems with this disease is that the parathyroid gland tells the brain who tells the blood that it needs to absorb more calcium. When that "loaded with calcium" blood makes its routine "pass" through the kidneys the kidney's remove the extra calcium so the "purified" blood can continue to nourish the body. Eventually the calcium that is kept back in the kidneys will form stones. I have had this disease since 1986 and have undergone over 15 lithotripsy treatments which uses ultrasound waves to pulverize the stones so they can be passed in the urine. This condition requires surgery for correction as it cannot be controlled with oral meds. HTH!
    Als Gal 2 Replies Flag this Response
  • Wow! Thanks for all the suggestions. I'll tell my roommate about them. I believe her calcium level is normal but on the high side. It’s interesting because she’s lactose intolerant and she’s not taking calcium supplements. She’s had several lithotripsies over the past year and hopefully we’ll get to the cause before she has to endure another one. Thanks again!!!
    Anonymous 42789 Replies Flag this Response
  • Good luck! I, too, am lactose intolerant - I find that I can drink the lite version of Silk Soy milk. Please post when you learn anything more. Perhaps we can help each other out. Thanks!
    Als Gal 2 Replies Flag this Response
  • Kidney stones are formed when the hormonal/endocrine systems are fatigued, out of balance and calcium ends up being deposited in places it doesn't belong and can precipitate out of the fluids to crystalize in the kidneys. This indicates a substantial lack of digestable, usable calcium , hypoadrenal function, probably hypothyroid function as well, resulting in a "calcium shell phenomenon" which is a stress protective mechanism of the body. The calcium is being packed away, pulled from the areas where it belongs...bones, etc. and ends up in joints, muscle tissue, organs, and grays the hair. I recommend getting a hair analysis test performed by someone who really knows how to interpret them. I would suggest a saliva test for her female hormones. Especially look at Progesterone levels. (Probably too low in proportion to the Estorgens ) . Blood work is not her answer, because it only tells what is in the blood, not what is available for functioning in the body. She needs to add a good quality calcium, as well as thyroid and adrenal supplementation. Drink good quality water, no soda or coffee, or juice (except maybe aloe vera juice. I do not recommend soy drinks because of the estrogenic nature of the soy. Get a list of acid vs basic foods, aim toward the basic, and away from the acidic because we already get acid in the amino acids of proteins ( organic meat and eggs) Avoid grains, even whole grains. Eat sprouted breads like Ezekiel bread. Add lemon to your drinking water. Sorry to hear she is having so much trouble.
    Providence 7 Replies Flag this Response
  • Hyperparathyriodism (which are glands on your thyroid, not the thyroid gland) is one of the first things any doctor would look for in this case. If she's seen two doctors and they did standard blood tests, they would have found this because hyperparathyroidism would usually result in very high serum calcium levels, low phosphorous levels (calcium has an inverse relationship with phos, not magnesium). If she has normal serum calcium then I doubt hyperparathyriod is what is causing her kidney stones. Her PTH level (parathyroid hormone) which would be high if she had hyperparathyroidism and that would be an obvious diagnosis.So, assuming the doctors she's seen are competent, hyperparathyroidism should have already been ruled out. As somebody has said, Cushing syndrome can also cause hypercalcemia but you said her serum levels were normal, plus there's a ton of other symptoms she would have noticed by now (weight gain, swelling, round face, increased body and facial hair, red cheeks, muscle loss, enlarged clitoris, stretch marks, acne, easy bruising, no periods, to name just a few). But, the way to rule out Cushing syndrome would require a 24 hour urine for cortisol, which she may want to request if she has any of the other symptoms I listed.Endocrine problems aside, cardiovascular problems need to ruled out to make sure her kidneys are getting adequate blood flow. Again she'd probably be having various additional symptoms. Moving around also helps, again for blood flow.The doctor should get a 24 hour urine sample to test for calcium, phos, mg, sodium, potassium, sulfate, citrate, oxalate, uric acid, and total volume. Ask doctor if your urine is acidic or alkaline because that makes a big difference in what type of stone it is. Make sure to strain your urine and give any stones to Dr. for analysis because this can also tell them what kind of stone it is.For prevention number one always is drink lots of water (unless she's actually trying to pass a stone then she should drink just enough water to stay hydrated). Most of the following recommendations would depend on those urine test results. Avoid foods high in purine and oxalates (can't list off the top of my head, sorry. You'll have to google for those lists. All I remember is sardines and most meat are high in purines and chocolate, tea, and many vegetables are high in oxalate). Don't overdo the calcium, obviously. Make sure your vitamin A and D consumption is within the normal recommended range. Limit sodium. Increase potassium intake (makes urine more alkaline), unless your kidney stones seem to be associated with UTIs, in which case drink lots of cranberry juice (make urine more acidic) and go to the doctor if you have symptoms of UTI because you will need antibiotics. Don't overdo the protein. 50% of Americans eat 2x as much protein as they need! BAD for bones and kidneys! Finally, when you get that 24 hour urine test for the aforementioned levels, your doctor may be able to find an underlying cause of your kidney stones. At the least he/she will have an idea of what kind of stones you are having. There are many different medications to help treat the various types of stones, along with the appropriate lifestyle changes.I realize I've switched back and forth from saying "she" to "you" but you know what I mean. I'm sorry your friend is going through this I know (secondhand) how painful those can be! Make sure those doctors are giving her good pain meds, if not kick them in the shin for me. After that you should probably get a different doctor :DSorry so long hope that helped.
    CloudHidden 10 Replies Flag this Response
  • Tests came back negative for hyperparathyroid. She's been tested for Lyme's disease, arthritis, lupus, diabetes, general inflammatory disease, full metabolic panel and full CBC - all negative. We're back to the drawing board now. Thanks for your suggestions. Let me know if you have any more.
    Anonymous 42789 Replies Flag this Response
  • Get either a hair analysis or use Exatest and check magnesium status,, or better yet buy a high quality magnesium supplement like UltraMag from Source Naturals and take for sometime and see if the condition stops. If taking calcium this would cause reduction in magnesium stores.
    LINENUP 122 Replies Flag this Response
  • I've had 7 kidney stones in the past year and I am in the middle of passing the shards of a large one broken up by lipthotripsy (sp?). My doctors are working on a theory that mine are due to my use of Topomax for migrane headaches. Does your roomate take Topomax by any chance? I found another thread where Topomax caused an influx of stones like mine so I'm hoping my problems will stop. I'm in the middle of weening myself off the Topomax now.
    Anonymous 42789 Replies Flag this Response
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