Discussions By Condition: I cannot get a diagnosis.

2 years with erythema nodosum, but not dignosed yet

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: lizitrona
  • March 18, 2009
  • 04:07 AM

:confused:I got sick after I gave birth doctors said I had erithema nodosum. doctors said I was allergic to the birth control patch. A year past and I got the nodules again, but now I had more symtoms. Some of them are chills, but not fever, diarrhea once a week aproximately, elbows-hips-legs-heels pain and stiffness, fatigue, weight loss. I went to four different doctors and they got tested for TB, arthritis and many other diseases, but all the test came negative. One doctor said that it could be just a virus. Another year had past and my symptoms had gone away little by little, but I still get the chills every morning and at nightime. I tried to ignore it, but I know this is not common, theres something wrong with me. Somethimes I feel depressed and I think is because it's being 2 years and I'm tired of not getting dignosed. Please help:confused:

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4 Replies:

  • Have you been tested for Crohn's disease or ulcerative colitis?Are the nodules on the front of your legs,below the knee?It's possible that you've developed chronic erythema nodosum.
    richard wayne2b 1232 Replies Flag this Response
  • My brother was diagnosed with Behcets you may want to look up that disease and check the symptoms. When he started with that disease noone knew what was wrong with him and has had that disease years. And when he started the disease it was basically what you've described. I'm not saying that's what you have, but you may want to check it out. Hope this helps.
    Anonymous 42789 Replies Flag this Response
  • Have you been tested for Crohn's disease or ulcerative colitis?Are the nodules on the front of your legs,below the knee?It's possible that you've developed chronic erythema nodosum. Thank you for taking time to respond! Anwering your question, yes my nodules are on the front of my legs and below my knees. I researched about Crohn's disease and I think it's very possible that I have it, but I need to be tested. I live in Mexico and I don't have insurance, we spended our savings in all those tests. Next month we are getting an insurance, so it can cover it. Thank you again, it's nice to at least have a clue of what's happening.:)
    lizitrona 6 Replies Flag this Response
  • I have EN caused by a reaction to carcoidosis of the lungs ( a common cause of EN) Im my experience I would have chills if the nodules were really swollen and hot-seems reasonable with all the heat going out of your body from them. Do your chill coincide with hot red inflamed nodules ?
    EN is a very rare presentation and many doctors will be puzzled by it. Hits about 1 in 20,000, 4 out of 5 are women and most under 30 (when they have strong immune systems) Fatigue and chills without fever make sense (same thing I had) You need a dermatologist to do a biopsy of one of the nodules. IMPORTANTLY you must not do a "punch biopsy" it just doesnt get enough material to diagnose. Please let me hear from you.
    Anonymous 1 Replies Flag this Response
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