Discussions By Condition: I cannot get a diagnosis.

2 years w/o a diagnosis

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • August 19, 2007
  • 05:12 AM

HELP ME PLEASE!!

Two years ago while taking a shower my left leg spasmed out and I couldn't move it for a few seconds. I then proceeded to have a panic attack. About three weeks later I started aching everywhere. My whole body felt raw. It felt like flu-like symptoms but it never went away. As the months went on my joints would ache (hips and knees really bad). I had tremors on my left side, and now even my stomach goes into summersaults. My left side of my face droops slightly down. I get knife like jabs in my skin. I get extremely tired and need 2 naps a day. I fall asleep at the wheel of the car just going to work. I also drink about 3 gallons of water a day. I go from feeling like I have a fever to the chills and hot flashes (no temp on thermonitor). I have seen my family doctor dozens of times, 3 Neurologists, arthritis doctor, Infectious Disease doc, Endocrinlogists, 2 different Internal Med doc's, a psych doc. I've been tested for everything and everytime the results come back negative. When this started I was on Effexor, Remoron and Lorazepam. I suffer with panic disorder. The EEG showed something but the tech said it was the Remoron. I was taken off all meds and put on different ones. Still no changes. Next month will be two years and thousands of dollars later and I am still sick. My employer of 21 years was bought out and 90 people were let go. I have not worked for the past 6 weeks. I am getting unemployment right now but applying for jobs is hard because I am so limited with my pain. I am a 47 year old male. I feel as if all the doctors have chalked all of this up to my panic disorder. I'm not sure how much more I can take. I need an answer please someone. Please!! Thank you for listening.

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10 Replies:

  • For one thing, stop drinking so much water. 3 gallons a day, your thinning your blood too much. for another, stop taking all of your medicines (unless itis for something major like heart disease or thyroid or something), give your system time to cleanse and start over with the medicines. You may feel better without any of those. Start yoga or meditations to handle the anxiety. Try taking a multivitamin first, you may have low iron, though I'm not sure which of your symptoms would be caused by low iron. Did you go back for another brain scan after they changed your medicine? I don't think I'd be able to sleep at night until I had a scan reveal everything was normal, but thats just me. My cousin was in a similiar situation, the doctors told her she was dying but they didn't know why. She had rapid heartbeat, pain, sores on her organs, skin pain, fatigue, etc. She went to the Mayo Clinic and they told her she had fibromyalgia and her medicines were making her sick.
    Cheletwin2 3 Replies
    • August 23, 2007
    • 02:44 PM
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  • Have you ever read up on vitamin D deficiency?
    Anonymous 42789 Replies
    • August 29, 2007
    • 08:36 PM
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  • Have you tried an all natural parisite cleanse? If you have some kind of parisite it could be taking your vitamins and giving you all kinds of issues...there is a certian kind of parisite from pork...sorry can't remember the name that gets in your joints and is really hard to diagnosis...and the cleanse won't hurt you it will probably make you feel alot better.
    Anonymous 42789 Replies
    • September 1, 2007
    • 08:30 PM
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  • It sounds to me like you have fibromyalgia.Are you stiff and sore in the morning and no matter how much sleep you get it is never enough.Stabbing pains,numbness funny feeling skin sound familiar.Go back to your Dr and ask if you can be tested for this.Good luck
    Anonymous 42789 Replies
    • September 8, 2007
    • 04:04 PM
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  • Greetings, I am 27 years old from Ottawa, I have a doctorate in international relations, not medicine, but it has been of recent interest to me and I believe I may be able to help you as I frequently find myself explaining things to doctors and nurses. First of all please do not follow the suggestion that you should refrain from drinking water when you think you need it unless you are told to by a medical professional that has tested you, and given you a rational explanation. While I understand the average Canadian drinks roughly 1.2-2 L of water per day, and your consumption is very likely psychosematic (I speculate, from what I have heard), that is, due to you thinking you are thirsty when your body does not require hydration, your overconsumption of water can be linked to numerous causes, among them -- you are not properly processing sodium, low on potassium, and others. This is likely a side effects of a drug or a combination of different drugs....and your body may actually be using this water. I require more information. I need to know exactly what drugs you are on now, your dosage in mg if you can, and what you have taken in the past. I also need the dates you changed drugs -- the drug name and the brand name if you can -- and what your doctors claimed to be treating with them. I will follow with questions. This sounds like it may be immunoillogical, that is, some of your good cells are mistaking good cells for bad cells and attacking them (like what happens in rheumathoid arthritis) yet I am only speculating at this point detail is important, something many private health care providers do not understand. Do not be alarmed. This process can be treated with great effectiveness if this is the case with oral prescriptions. Yours, Brent.
    Dr. Brent Royal 24 Replies
    • September 9, 2007
    • 05:02 AM
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  • Greetings, I am 27 years old from Ottawa, I have a doctorate in international relations, not medicine, but it has been of recent interest to me and I believe I may be able to help you as I frequently find myself explaining things to doctors and nurses. First of all please do not follow the suggestion that you should refrain from drinking water when you think you need it unless you are told to by a medical professional that has tested you, and given you a rational explanation. While I understand the average Canadian drinks roughly 1.2-2 L of water per day, and your consumption is very likely psychosematic (I speculate, from what I have heard), that is, due to you thinking you are thirsty when your body does not require hydration, your overconsumption of water can be linked to numerous causes, among them -- you are not properly processing sodium, low on potassium, and others. This is likely a side effects of a drug or a combination of different drugs....and your body may actually be using this water. I require more information. I need to know exactly what drugs you are on now, your dosage in mg if you can, and what you have taken in the past. I also need the dates you changed drugs -- the drug name and the brand name if you can -- and what your doctors claimed to be treating with them. I will follow with questions. This sounds like it may be immunoillogical, that is, some of your good cells are mistaking good cells for bad cells and attacking them (like what happens in rheumathoid arthritis) yet I am only speculating at this point detail is important, something many private health care providers do not understand. Do not be alarmed. This process can be treated with great effectiveness if this is the case with oral prescriptions. Yours, Brent.
    Dr. Brent Royal 24 Replies
    • September 9, 2007
    • 05:03 AM
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  • Are you forgetting any symptoms? I have a feeling you are. I also want you on a good broadranging multivitamin according to your nearest pharmacist; and 2,000 mg of vitamin C daily, preferably 500mg tablets x 4 per day, every 6-8 hours. Of course, do not miss sleep to take a dose. If you can get Jameson (made with only natural sources).
    Dr. Brent Royal 24 Replies
    • September 9, 2007
    • 05:11 AM
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  • You can rule out a parasite.
    Dr. Brent Royal 24 Replies
    • September 9, 2007
    • 05:15 AM
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  • PLEASE DO NOT stop taking your medication unless told to by YOUR doctor!!!I also suggest that you not follow ANY suggestions posted by the guessing tea party on here unless a doctor in real life says they are a good idea. Thank you this is for your own safety.
    Dr. Brent Royal 24 Replies
    • September 9, 2007
    • 05:21 AM
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  • Whatever people tell you to rule out, don't listen. As long as you don't know what CAUSES your problems, keep looking. Treating symptoms is one thing, getting rid of the cause quite another.What you describe may in fact very well be a parasite! The trouble is that most doctors know very little about them, as there are so many different ones and they are no longer widespread. What is more, many parasites are notoriously difficult to find, in the stool and even the anti-bodies in the blood.Some parasites can cause neurological problems (shaking, numbness of the skin, disorientation / loss of balance) as well at pulpitations, sleeplessness and exhaustion. Certain parasites can cause very differing symptoms, depending on the person, and that makes the diagnosis soubly difficult. In most cases, however, there will also be a problem with digestion (constipation and/or diahorrea - it can change from day to day).I don't know whether you have travelled anywhere where exposure to parasites is high. Parasites can take years before they give you real trouble. In any case, I recommend you visit a medical centre specialised in tropical diseases. Bear in mind that due to international mobility, many parasites can these days also be caught in Western countries.While you are at it, check your blood for anti-bodies to "strongyloides stercoralis". I had it, and your symptoms sound somewhat familiar.Best of luck!
    GeoffBaker 18 Replies
    • September 29, 2007
    • 02:13 PM
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