It has been over 2 years since I first got sick. Durring that time, I have had several issues going on, with no firm idea of whats wrong, except low vit D and hashimotos (which seems to be under control.)
My symptoms seem to go in cycles between horrible headaches, upper back pain, pain in the right side of my neck and jaws, left side under ribs pain and chest pains. Latly I have also been getting tingling in my shoulders, weaness in my arms and a rubbery feeling in my legs. I have had many tests in the last 2 years, Brain MRI, chest x-rays, a chest CT (way at the beginning of all this) lots of blood work..etc. The chest pains seem to come and go and are not brought on my exercising. I also went to the cardiologist and had a stress test and a ultrasound of my heart. all of that came back fine. But I continue to be in greater pain. Yesterday I had a horrible migraine, my jaw ached and my arms felt weak, the pain in my chest almost feels like there is a ball or something in my chest. I seriously thought of going to the ER, but finally started feeling better around midnight. Today the migraine is gone but I have the upper back pain near my spine and pain on the right side of my neck (pain has been there for a few weeks now)
Most days I cant do much, I get a few household chores done, meals cooked for my son and then the rest of the day in bed. Life is no where near "normal".
I really feel like my Dr is missing something. I have a friend who has had the same pain in the back and side that I have had and she was recently diagnosed with Stage 4 lung cancer that had spread, and she had been going to the doctors several times a month for almost a year before they found that! I am going to the Dr again this Friday and am going to be more firm about getting some answers. So far she has just given me flexeril, but I dont want to take something to mask the pains until I know what it is I am masking.
Any ideas on what I could say to my doctor to get some answers/questions to ask..or ideas of what could be causing this pain would be appriciated.
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