Discussions By Condition: I cannot get a diagnosis.

2 years - no answers - only 32 yrs old

Posted In: I cannot get a diagnosis. 26 Replies
  • Posted By: makitels pea
  • January 21, 2009
  • 09:36 PM

I am a 32 year old female, no children. I don't know if anyone can help me or not.....at this point I feel that the the problem will be found after it is already too late....I HATE the way I feel and all I want to do is live a normal life! I am afraid to have children, go on vacation or do anything that may be "too much" for my body.

When I have what I call an "episode" -- my face gets flush, I feel hot, I get dizzy, sweat, vision gets blurry, eyes actually shift to the right and back to center, my speech is slurred. Occasionally I have a "tight" feeling in my throat. Occasionally my nose or lips will become numb/tingling.

"Episodes" are more frequent just prior to, during and after my period.

The beginning --April 2007 -- Driving to work I became severly dizzy -- I had to pull over, the severity was making me sick to my stomach. I was out of work for 3 WEEKS with this. After several series of tests, a visit to an ENMT & neurologist many things were ruled out. My neurologist sent me to a cardiologist. Over the course of testing I learned how to make my symptoms less severe by remaining calm. I had a positive tilt table test -- I did not pass out but my bp dropped very, very low, I was extremely hot, blurred vision, slurred speech and I had seizure like tremors/shaking after they brought the table down. I was prescribed Florinef in November of 2007 and wore several types of heart monitors over the next several months. My normal blood pressure is 100/70, low. Florinef was prescribed to increase my bp.

Cardiologist thinks I may have an arrythmia but could not catch it on the external monitors.

April 2008 -- I have an Electrophysiology test done -- filament in the groin into the heart -- everything was normal... Cardiologist implanted a loop recorder. Every month the recorder is downloaded -- I make recordings and it does it makes them on it's own. Thus far -- everything is "normal".
Immediately following EP test I got a cyst on my inner thigh that was very very painful. In May 2008 I got a kidney infection, no symptoms until I urinated blood. In June 2008 I caught hand, foot and mouth disease from a 2 1/2 year old that lives with us. My doctor first diagnosed it as strep until blisters formed on my hands & feet. My feet felt like I was walking on glass.

Cardiologist just reduced my Florinef. I had an episode 2 weeks ago, today my throat is "tight" and my sternum area feels the same.

can anyone help me?

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26 Replies:

  • I am a 32 year old female, no children. I don't know if anyone can help me or not.....at this point I feel that the the problem will be found after it is already too late....I HATE the way I feel and all I want to do is live a normal life! I am afraid to have children, go on vacation or do anything that may be "too much" for my body. When I have what I call an "episode" -- my face gets flush, I feel hot, I get dizzy, sweat, vision gets blurry, eyes actually shift to the right and back to center, my speech is slurred. Occasionally I have a "tight" feeling in my throat. Occasionally my nose or lips will become numb/tingling. "Episodes" are more frequent just prior to, during and after my period. The beginning --April 2007 -- Driving to work I became severly dizzy -- I had to pull over, the severity was making me sick to my stomach. I was out of work for 3 WEEKS with this. After several series of tests, a visit to an ENMT & neurologist many things were ruled out. My neurologist sent me to a cardiologist. Over the course of testing I learned how to make my symptoms less severe by remaining calm. I had a positive tilt table test -- I did not pass out but my bp dropped very, very low, I was extremely hot, blurred vision, slurred speech and I had seizure like tremors/shaking after they brought the table down. I was prescribed Florinef in November of 2007 and wore several types of heart monitors over the next several months. My normal blood pressure is 100/70, low. Florinef was prescribed to increase my bp. Cardiologist thinks I may have an arrythmia but could not catch it on the external monitors. April 2008 -- I have an Electrophysiology test done -- filament in the groin into the heart -- everything was normal... Cardiologist implanted a loop recorder. Every month the recorder is downloaded -- I make recordings and it does it makes them on it's own. Thus far -- everything is "normal".Immediately following EP test I got a cyst on my inner thigh that was very very painful. In May 2008 I got a kidney infection, no symptoms until I urinated blood. In June 2008 I caught hand, foot and mouth disease from a 2 1/2 year old that lives with us. My doctor first diagnosed it as strep until blisters formed on my hands & feet. My feet felt like I was walking on glass. Cardiologist just reduced my Florinef. I had an episode 2 weeks ago, today my throat is "tight" and my sternum area feels the same. can anyone help me? These kind of baffling problems are often due to one or more of several modern day environmental issues. Because you mention it happens more around the time of your period suggesting hormonal involvment, and also you mention arrythmia, have you thought about the possiblity of it being related to EMF's or radiation sensitivity? (often similar symptoms) This can put the body into stress and interfere with the heart beat (interferes with the body's own electrical signals.) It also stresses the immune system in which case candida yeast grows out of balance and we catch bugs/infections. The tight throat can be something affecting the thyroid.. I ask because I had some similar symptoms - thyroid/arrythmia/flushing/sweat/blurred vision - although not as severe as yours. I had a lifestyle at the time which was high in "normal" EMF/radiation exposure from electronic equipment. Adjusting my sleep area (which cost me nothing) made a huge difference. What kind of work do you do? Karen
    Kinesiologist 62 Replies
    • January 22, 2009
    • 00:34 AM
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  • Karen Thank you for your quick response! Last night I went to ER -- for 2 days throat near adams apple down through sternum area has been "tight'. Not sore as in a cold/strep -- but tight as in feeling squeezed. I also have a prickling feeling. No change in intesity - just a constant tightness. At ER my bp was 168/116. My normal bp is 110/70 and with florinef about 130/88. ER took 6 vials of blood, did chest xray, several ekgs and monitored bp.Everything came back "normal" - bp went back down to 128/70 after 4 hours in ER. They gave me a muscle relaxant suggesting maybe I 'pulled a muscle'. took relaxant at bed time -- woke up and throat/chest is still tight..... -- cardiologist states that my bp will be low around/during my period, as will blood volume, bringing on my symptoms...the florinef is supposed to help by increasing the salt my body absorps thus increasing blood volume & blood pressure.... Do you know what type of doctor would test hormones? or what type of test could be done? I work in an office -- 7 hours at a computer, when I go home I frequently play video games on or off the computer? Many people I know have this work/play schedule and don't have these symptoms - I will mention it to Dr. I have had numerous testing on my thyroid -- everything is "normal". Blaze -- thank you for the links -- I will look them over! Beth
    makitels pea 11 Replies
    • January 22, 2009
    • 03:53 PM
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  • It's good you went to ER - don't worry about becoming a "regular" because you can't mess around with heart issues regardless of what it's caused by. Re hormones testing, ask your GP - maybe he/she will do it. My GP does it and I have mine checked quite frequently. You really have a high environmental stress lifestyle working in an office plus playing games afterwards - there are some things you can do to protect yourself. Some people may be fine now with this lifestyle, but eventually it can catch up. People have different tolerance levels. I have a lot of young people with problems with their office environments but they don't realise it in the beginning. It's not always physical - sometimes they feel anxiety or unreasonable emotional stress. The low natural energy in buildings (concrete, pavement, and steel significantly block the earth's natural magnetic field which we need for our own energy levels) plus the amount of wireless technology, computers, copiers, fluorescent lighting, etc. is very draining - all of this has to affect the immune system. Remember our bodies run on electrical (and chemical) impulses - all of this frequency chaos can be overwhelming to the body's delilcate electrical system so things don't work as they should. You've also had these infections and I've found that a consistant factor with this is candida imbalance which happens as a result of a suppressed immune system. According to Dr. Mercola, 80% of the immune system starts in the digestive tract and if it's overrun by yeast, the immune system suffers. I have a published article which I wrote on candida - if you'd like it I'll email it to you. It also outlines how you can protect yourself environmentally at work. But as I said - even if the environment is the root cause, for your own protection it's very important to monitor the symptoms medically until the problem is resolved and take whatever medication is required. regards, Karen
    Kinesiologist 62 Replies
    • January 22, 2009
    • 07:26 PM
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  • Has anyone actually looked down your throat to see if there's any swelling? There is something called hereditary angiodema than can cause your throat to swell inside (tightness) and it often gets worse around you period. I believe high blood pressure is sometimes associated with it. It's extremely rare, but it's called hereditary angioedema type III. There is no test for this as of yet. I would ask your doctor to consider sending you to a throat specialist & timing the visit around your period, or giving you carte blanche to see the specialist when you next feel these symptoms.
    aquila 1263 Replies
    • January 22, 2009
    • 08:23 PM
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  • thank you --- I found some information on here about Baroreflex failure -- I am going to discuss that with my doctor as most of my symptoms fall into it.:confused:
    makitels pea 11 Replies
    • January 23, 2009
    • 03:31 AM
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  • If I were you,I'd take the electromagnetic sensitivity stuff with a grain of salt.There're lots of experiments that suggest that it doesn't even exist.
    richard wayne2b 1232 Replies
    • January 23, 2009
    • 00:45 PM
    • 0
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  • It is certainly not always a major factor - it depends on the person's lifestyle. People also have different tolerance levels as in anything else. Often when there are puzzling symptoms and no medical diagnosis it can be a major consideration. Many people are aware of hating fluorescent lighting, getting head aches from cell phones, and getting tired or headaches at a computer, or at work. That is exactly what it typically is, therefor it is not reasonable to deny it's existance. Try searching it and reading some of the info and studies. There is a lot of credible information on it. I can understand your doubts as I was of the same opinion until about 10 years ago when I began to have more clients complaining about unusual symptoms. I began researching it, and discovered in studies that EMF's can interfere with the way the body assimilates calcium, which as you know has critical functions in the body and perhaps explains why people's sleep could have been affected. Studies have also shown that EMF's increase the release of metals in the teeth which could explain some jaw pain or tension. It is so real that approx. 250,000 people in Sweden (population 9,000,000) are registered as being electro sensitive, and 3% of the populaion (I believe that is the correct statistic) are on paid disability for it. Personally, I discovered quickly that I could never work in an office building, and suffered from insomnia until I made certain environmental changes in my sleep area. But like most things, it's something that people have to weigh up and evaluate themselves after thorough research.
    Kinesiologist 62 Replies
    • January 23, 2009
    • 02:19 PM
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  • Thank you Richard! I did notice that some of the information posted here has also been posted on many other stories here. I have had so many tests and "suggested" causes for my symptoms that I do take everything very lightly. I informed my doctors of the Baroreflex failure and am waiting to see what they think....... My guess is they will say, "no, it's not that because xyz" and I will continue my search while suffering with my random episodes. :(
    makitels pea 11 Replies
    • January 23, 2009
    • 08:49 PM
    • 0
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  • YOU MAY BE SEVERELY GLUTEN INTOLERANT! And the thing about it is, MD's know absolutely NOTHING about gluten intolerances, only "classic celiac disease" <-- when it's completely damaged your intestines and can no longer absorb vital nutrients! Gluten is the underlying factor in 77% of all auto-immine disorders and symptoms! I had siezures, abdominal pain, dizziness, IBS, cloudy head, general fatigue, anxiety, anema, hot flashes, abnormal periods, ANYTHING you can think of, and I was JUST 18. After a year and a half of going naturopathic and completely gluten-free, I AM HEALTHY!!! THANK THE LORD!! Do your own research and consider going naturopathic & gluten free! :)
    Anonymous 42789 Replies
    • January 23, 2009
    • 09:20 PM
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  • It's not enough that she blames every symptom known on electromagnetic sensitivity!Now she's accusing reputable sources of fraud in their investigations into ''her world!''
    richard wayne2b 1232 Replies
    • January 23, 2009
    • 11:12 PM
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  • Do you feel like there's a ''lump''in your throat?Do you think this could be a really bad case of PMDD?
    richard wayne2b 1232 Replies
    • January 23, 2009
    • 11:20 PM
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  • Blaze,ol' gal,methinks I've triggered an attack of your OCD!
    richard wayne2b 1232 Replies
    • January 24, 2009
    • 02:46 AM
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  • Could you please list all medications you currently take, and are you taking any bc? DOM
    acuann 3080 Replies
    • January 24, 2009
    • 02:51 AM
    • 0
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  • Could you please list all medications you currently take, and are you taking any bc? DOMI only take Florinef Acetate (fludrocortisone) and my cardiologist just reduced me from .02mg/day to .01 mg/day.I started bc again in July 07 and stopped taking it in Oct. 08 because I was never comfortable taking them.
    makitels pea 11 Replies
    • January 24, 2009
    • 11:23 PM
    • 0
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  • Do you feel like there's a ''lump''in your throat?Do you think this could be a really bad case of PMDD?I have only had the feeling in my throat a few times -- when my blood pressure spikes to 170/117 ........this last time I went to ER and by bp was up to 168/116 after a relaxing day...it feels more like someone is squeezing the front of my throat from my adam's apple down to my sternum.The more frequent, consistant symptoms are the hot flash, flushing, sweating, dizziness, blurred vision, slurred speech for a minute or less with a feeling of complete exhaustion afterwards including shaking of my hands.I don't think PMDD is the case - the onset was very sudden -- one morning all of a sudden I became very dizzy and it lasted for 3 weeks straight before it subsided long enough for me to even drive. Now I have "episodes" at least 1x per month up to as many as 10 - 12 x in some months. I do have them just prior to my period every month, which my cardiologist states has to do with change in blood volume?
    makitels pea 11 Replies
    • January 24, 2009
    • 11:33 PM
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  • Has anyone actually looked down your throat to see if there's any swelling? There is something called hereditary angiodema than can cause your throat to swell inside (tightness) and it often gets worse around you period. I believe high blood pressure is sometimes associated with it. It's extremely rare, but it's called hereditary angioedema type III. There is no test for this as of yet. I would ask your doctor to consider sending you to a throat specialist & timing the visit around your period, or giving you carte blanche to see the specialist when you next feel these symptoms.When they did the chest xray they did one of my throat as well -- everything was 'normal'. the throat tightness is not as common as my other symptoms. i believe it may just be a result of the random spike in blood pressure to 168/116
    makitels pea 11 Replies
    • January 24, 2009
    • 11:36 PM
    • 0
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  • YOU MAY BE SEVERELY GLUTEN INTOLERANT! And the thing about it is, MD's know absolutely NOTHING about gluten intolerances, only "classic celiac disease" None of the information I have found for gluten intolerance show severe drops & increase in blood pressure at random times, blurred vision or slurred speech....thank you for the suggestion though.
    makitels pea 11 Replies
    • January 25, 2009
    • 00:00 AM
    • 0
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  • I just have one thing to add to the other suggestions. It may be a food allergy or intolerance. Corn and wheat come to mind because I believe they may influence your hormones.
    Paulppaul 25 Replies
    • January 25, 2009
    • 01:42 AM
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  • Since you had a positive tilt table test,look up dysautonomia.
    richard wayne2b 1232 Replies
    • January 25, 2009
    • 05:49 PM
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  • What do you think the odds are that since you have this weird problem.that you're feeling panic attacks over it?
    richard wayne2b 1232 Replies
    • January 25, 2009
    • 05:53 PM
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