Discussions By Condition: I cannot get a diagnosis.

2 year old off balance, ENT issues, history of fluid build up, sleep apnoea

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Grace1111
  • August 9, 2008
  • 10:15 AM

:confused: I have a 2 year old little girl who has not been well for nearly six months. After going to countless doctors, I finally was able to convince a local paediatrician to perform a CT scan which unveiled fluid build up predominantly in her right ear. A nasendoscopy and bilateral insertion of grommets was performed. The transformation in her was almost instant; she was back to her old self.

She was happy and without pain and discomfort for 5 days and then her symptoms returned. She was miserable again. After further investigation, a sleeping test revealed that she had sleep apnoea. As a result my daughter had her tonsils and adenoids removed.

Months have gone by now and she is still not happy. She is in constant pain and discomfort (eminating from the head region as she is always swiping at her ears and nose), off balance, losing weight and I have a feeling she cannot hear well. (Three hearing tests have found results to be inconclusive). I’m told that there is no way that there could be further fluid build up, but I’m not so sure. As I have mentioned, her balance is terrible.

My daughter had a great deal of relief for a short period of time after her grommets were inserted (a lot of fluid was released during the procedure) and I feel that the answer lies there. If anyone has any suggestions or experiences they would like to share, I would love to hear from you as I’m getting really desperate now.

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12 Replies:

  • What does she eat and drink on a daily basis? Was she breast or bottle fed? How is her digestion - does she have constipation or loose stools? DOM
    acuann 3080 Replies Flag this Response
  • She was breastfed for six months and has always been given good and healthy home cooked meals (never anything from a jar). Even though she does not have a great appetite, whatever she does eat is very healthy. Lots of fruit, vegies, breads, fish, meats etc. Ever since day one she has always been on a very strict routine i.e. out of bed no earlier than 7am, in bed by 7pm plus day time nap(s). I stared working two short days a week about 5 months ago and her Nan looks after her while I’m at work. She has a lot of “little buddies” that she plays with and a lot of family members around her that love her dearly. Before she got sick, she was a very easy going, content little girl.I’m very confident that the problem does not lie with her diet, routine or environment. As I stressed earlier, she is extremely off balance and when her grommets were inserted there must have been a lot of fluid and/or pressure that gave her massive relief for a short period of time.
    Grace1111 4 Replies
    • August 10, 2008
    • 02:50 AM
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  • Oops, sorry I forgot to add that her digestion is fine.
    Grace1111 4 Replies
    • August 10, 2008
    • 02:52 AM
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  • She was breastfed for six months and has always been given good and healthy home cooked meals (never anything from a jar). Even though she does not have a great appetite, whatever she does eat is very healthy. Lots of fruit, vegies, breads, fish, meats etc. She does not have any digestive problems. Ever since day one she has always been on a very strict routine i.e. out of bed no earlier than 7am, in bed by 7pm plus day time nap(s). I stared working two short days a week about 5 months ago and her Nan looks after her while I’m at work. She has a lot of “little buddies” that she plays with and a lot of family members around her that love her dearly.I’m very confident that the problem does not lie with her diet, routine or environment. As I stressed earlier, she is extremely off balance and when her grommets were inserted there must have been a lot of fluid and/or pressure that gave her massive relief for a short period of time.
    Grace1111 4 Replies
    • August 10, 2008
    • 02:56 AM
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  • Ears have a lot to do with balance, it makes a ton of sense that fluid causes her to be off balance. I will see what i can find that might explain the fluid.
    qwertyuiop123 453 Replies
    • August 11, 2008
    • 00:53 AM
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  • We live Australia and there are no cell phone towers near our home. As mentioned earlier, she was back to normal for about 5 days once the fluid from her ears was drained and grommets were inserted. I should also mention that she was a breech baby and that her head is not quite symmetrical. Physicians comment that they can see that she was breech when they look at her.I’m almost certain that fluid has something to do with her discomfort and vertigo, we just are unable to figure out how there could be fluid build up when she has grommets in place and adenoids have been removed. I was told by the ENT that the grommets are not blocked.
    Grace1111 4 Replies
    • August 12, 2008
    • 11:51 AM
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  • Maybe you should get a second opinion
    qwertyuiop123 453 Replies
    • August 12, 2008
    • 05:44 PM
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  • I think it will be a surgical procedure for her again; removing the tonsils/adenoids might not have had the results that the doctors had hoped for and complicated the situation. I am wondering if her sleep apnea needs further investigation. They may want to do a monitoring and hook her up to machines and put a video on her. I would follow through with ENT people; she may also grow out of the situation. You can try acupuncture and homeopathy to ease the situation for her.
    Monsterlove 2921 Replies
    • August 12, 2008
    • 06:35 PM
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  • I have heard chiropractic can do wonders for balance and ENT issues - but find a good one who specializes in pediatric adjustments. Your child is too young for acupuncture, but there are good herbal formulas to help with this problem. I agree homeopathy may also be helpful. Best wishesDOM
    acuann 3080 Replies
    • August 13, 2008
    • 00:19 AM
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  • My duaghter had acupuncture when she was about 18 months. I don't think there is ever an age to it. It was the only thing that helped her at the time.
    Monsterlove 2921 Replies
    • August 13, 2008
    • 02:51 AM
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  • Well, technically you are right. We don't leave needles in at that age, but do quick needling method. I think any of the above suggestions would be helpful in this case. DOM
    acuann 3080 Replies
    • August 15, 2008
    • 04:28 AM
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  • Hi,I'm 21 years old and i think i'm suffering from the same thing as your daughter. I've been feeling off-balance for about 4-5 months now. i was actually bedridden for a month i cudnt stand up cuz i wud feel soo offbalance. i went to the ENT and got tht caloric testing so test showed nothing wrong tht test was for vertigo though so i dun have any vertigo. whenever i stimulate my throat or push tightly on my mouth i can feel the water slushing thru my head in my left ear. ( tht feeling came in about 2-3 months ago) before that i was feeling miserable and soo off-balance i had 1 MRI and 2 CAT SCANS done. it showed no tumors or anything i don't even know if they checked for fluid cuz i wasn't even complaining abt my ears at the time. I believe the fluid in my ear gives me so much anxiety which makes me feel dizzy. it gets worse in places like class and malls or any closed space with too much stuff going on. i always get anxiety and panic attacks when i have a flu or a cold but gosh this is lasting forever. somedays or weeks i feel perfectly fine and nothing is wrong but it doesnt last for long. I'm going to see another ENT soon and explain to him in more details of what's going on. I'll keep u posted.
    rmk_1987 20 Replies
    • February 2, 2009
    • 10:36 AM
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