Discussions By Condition: I cannot get a diagnosis.

2 pulmonary embolisms and anemia Any help will be nice

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: darkphoenixrising
  • April 21, 2008
  • 01:28 AM

Back in January I had my first pulmonary embolism. The doctors couldn't give me a specific reason for it happening. I had way too many factors. Quit smoking 2 weeks prior, on hormones for 3 days, obese, not too active, and I think that is all on the list. At the time, I was also menstruating VERY HEAVILY, RBC 9. I was probably a bit dehydrated also, since I usually cant drink enough to keep up with the amount of blood I lose. The doctors wanted me to get a uterine ablation as soon as 3-4 months passed after my episode. Then another doc diagnosed me with a hernia. Then I got admitted with a partially obstructed bowel from all the scar tissue accumulated from past abdomenal surgeries. So the surgeries needed now are: Hernia repair, (now decided) hysterectomy, and scar tissue scraping. I ended up back in the hospital Apr. 1-6 for another "suspected pulmonary embolism". They told me that there was a change in my lungs and that was what they were going to treat it as. Ultimately, they didnt know. I got..."Well it happened because you are obese and sedentary." What exercies can I do to really lose weight with the ventral hernia I have? I walk and I have upped my walking since the 1st embolism. Well, Last night I went back to the hospital with symptoms very similar to an embolism. They didnt find any changes in my lungs, therefore released me from the ER. I am tired of the "we dont kno". I want my life back. If the "we dont kno" has bought me a lifetime of coumadin wrongfully, I will be very upset. I am seeking doctors at University of Chicago. My appointments are not til middle of May (pulmonary specialist) and June (hematologist). Is it pulmonary hypertension? Is it cancer? I have so many questions and I feel like I will never know. It is creating havoc on my marriage to, because I am treated like a child. My husband is too scared to let me have a life outside of the town. Any kind of help would be greatly appreciated. Just moral support even. My optimism is waning hurriedly.

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