Discussions By Condition: I cannot get a diagnosis.

2 opinions later, no diagnosis.

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: michelle1210
  • November 15, 2008
  • 08:20 AM

I've been experiencing pain/discomfort in (what seems to be) my right ovary for over a year now. It gets worse during sex to the point that I haven't had sex in forever. There is a constant dull pain and during physical activities it becomes very painful. I was on birth control for 5 straight years. I started taking my pills sporadically and then altogether stopped.

I told my 1st gyno, she said it could be either a cyst on my ovary or a hernia.

My 2nd gyno said it was either a cyst or IBS. I don't have any symptoms of IBS.

After an internal ultrasound, (which revealed that I had a small cyst on my left ovary) they found nothing wrong. My 2nd gyno swears there could be no possible reason for pain in my right vary and didn't seem concerned with the cyst on the left.
I'm scared as I'm only 24 and will want to start having children in the near future.

Does anyone have any suggestions or have experienced the same symptom?

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8 Replies:

  • Does it get better when you lay down? Is it better in the morning? Is there any change after standing a lot? You mention that sex and physical exersize make it worse. Both of them increase heart rate and especially sex directs blood to your genital area. Therefore it could be a vascular problem. I am thinking of either venous insufficiency in your right ovarian vein (incompetant valves) or a arteriovenous fistula (opening between an artery and a vein). Both conditions are often overlooked and the patient is sent home with "it's all in your head". Well, it usually isn't. It is important to rule out, because this condition gets worse during pregnancy. Ovarian vein is impossible to depict with ultrasound. You need a phlebography and a good vascular radiologist or surgeon. These conditions usually appear in higher age (30 - 40), but I think that you should at least have them ruled out. Good luck with everything!
    Felsen 510 Replies
    • November 15, 2008
    • 04:42 PM
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  • go back to the first doctor..
    Monsterlove 2921 Replies
    • November 16, 2008
    • 05:43 AM
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  • Felsen might be right!
    Anonymous 42789 Replies
    • November 16, 2008
    • 03:22 PM
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  • I've had my period for 12 years & no children.No back pain, just localized pain above and to the right of the pubic bone. It does get a little better when I lay down. It's chronic pain, but does get worse with physical activity like crunches, crouching down for too long, running, etc. It feels like someone is punching or stabbing me in that spot when I have sex. I've never noticed a change after standing for a long period of time. It's still that constant ache. Almost like a really bad menstrual cramp that lasts forever.I've read about your suggestions and I think it could be possible but my chances of having either condition is very unlikely. "In the ovarian vein syndrome, the symptomsappear usually in multiparous women, being unusualin nuliparous women and children. It may also occurduring or immediately after labor, and in non-pregnantwomen before menstrual period"SOURCE:http://www.scielo.br/pdf/ibju/v29n1/v29n1a10.pdf
    michelle1210 1 Replies
    • November 17, 2008
    • 07:03 AM
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  • I must point out that many patients that post here have an unlikely diagnosis and you might be one of them. I think you should be examined by a good vascular surgeon to at least rule it out. I must though warn you that there are still some doctors out there that consider symptoms like yours and the diagnosis of pelvic congestion syndrome as typical for women with "hysterical predisposition" even though research shows varicose veins as the cause. You can also have an alltogether other vascular abnormality and not necessarily an incompetent ovarian vein. Good luck and please post here if they find out what is wrong. It'd good to get feed back.
    Felsen 510 Replies
    • November 17, 2008
    • 10:24 PM
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  • Felsen is dead on as usual. I had similar symptoms and as it turns out I have a double cervix and two wombs. The pain during sex was caused by pressure on the septum, meaning the wall separating the two cervixes. It was *excruciating!* I hope you get an answer soon. Best wishes.
    aquila 1263 Replies
    • November 18, 2008
    • 05:49 PM
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  • Have you had an exploratory laparoscopy? Your symptoms are CLASSIC endometriosis. By the way, ultrasound is absolutely useless in diagnosing endo, so if your doctors have ruled it out because of the ultrasound, get a second opinion. Endometriosis essentially grows on the outside of your internal organs, and very often the only evidence of it is VISUAL. Endo is one of those weird disorders that can be accompanied by a million different symptoms, but pain during intercourse and pelvic pain on exertion are both hallmarks. If nobody has actually LOOKED (with their eyes!) into your pelvic and abdominal cavities, you cannot rule it out. And the procedure is not a terrible one. It's usually outpatient surgery. Endometriosis is caused by endometrial cells (the ones that line your uterus) escaping the uterusn and getting into other parts of the body. Every time your period comes, those cells cause bleeding -- like getting your period in another part of your body! The result is often internal scarring and adhesions -- parts of your insides fuse together. When exertion causes those adhesions to stretch, it hurts. A LOT. My advice is to get a new OBGYN and specifically demand that they rule out endometriosis. Best wishes!
    karibou 6 Replies
    • November 18, 2008
    • 06:39 PM
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  • I agree with Karibou. It can also be endometriosis!
    Felsen 510 Replies
    • November 18, 2008
    • 06:48 PM
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